Ravi Veriah Jacques (@ravihvj) Twitter Following • TwiCopy

Ezra 👹

@ahhrrr

RIP this account. find me at ezra.zone

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Olenka Sayko

@coco_chatel

Ukrainian-American. Theater/film/music/book lover. Former arts finance girlie. Left-ish Libertarian-ish. Life on pause due to disabling #LongCOVID.

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michelle 🍉🕊️

@michelle_lynn

artist + photographer @maryandluna. | she/her | 📍socal | ☉♈︎ ☾♊︎ AC♌︎ | leftist, #longcovid. I tweet about a lot of stuff. michelleelaluna.bsky.social

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Meighan Stone | @meighanstone.bsky.social

@meighanstone

Human rights at home & abroad ♿ Executive Director @LCCampaign. Past: President @MalalaFund, Senior Fellow @CFR_org, Fellow @Kennedy_School, @WFP & @ONECampaign

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Stéphanie Longet, PhD

@stephanie200586

Assistant Professor at the International Centre for Infectiology Research - Inserm (University of Saint-Etienne). Infectious diseases & mucosal vaccination.

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Cort Johnson

@cortjohnson

Founder of Health Rising /Phoenix Rising - Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia/Long COVID journalist/blogger - ME/CFS/FM patient for 40 plus years

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JK

@j_b_kennedy

Slowly getting there

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Yr buskined mistress & yr warrior love

@rhymeswithvery

PVS: Booster #2 05/22. Now: OH, dysautonomia, MCAS, pre-diabetic, fibromyalgia, #ME, corneal basement dystrophy syndrome. Pro-vax but #FcktheNIH. Mask up FFS.

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Bhupesh K Prusty

@bhupeshprusty

A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.

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ME Association

@meassociation

We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.

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Disability News Service

@johnpringdns

John Pring: editor/founder of Disability News Service; author of The Department, published by @PlutoPress, August 2024; disabled journalist; autistic.

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Hannah Davis

@ahandvanish

Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked

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SOURYA S.DASH

@souryadash

Be grateful for the wound that pushes you closer to God | Literature-Army-Corporate| #Longcovid instagram.com/souryadash/

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Sawyer

@sawyerblatz

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Seets💫

@mamasitaa__

Lover of plants, astrology, and being a good human. Long Covid sucks. Hot people wear masks. 🤌✨

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Resia Pretorius

@resiapretorius

Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation

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Frances Ryan

@drfrancesryan

Guardian journalist. Commentator of the Year 2024. Author of Who Wants Normal? (pre-order) and Crippled (out now). E: [email protected]

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Chris J. Maddison

@cjmaddison

ML faculty @UofT

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Dan Wyke 🦠➡️🧠🔥

@dan_wyke

M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack & Waterloo Press)

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Herberto Dhanis, PhD

@herbertodhanis

@snsf_ch Fellow at @UCL in brainstem dysfunction and autonomic failure in alpha-synucleinopathies | Biomed. Eng. and PhD in Neuroscience @EPFL_en (views own)

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Guus

@guustweet

#LongCovid since jan’21 ♿️ - tweets with brain fog, so pls bear with me - 📣 tries to advocate @NietHersteld - eager to learn - she/her - tweets in 🇬🇧 & 🇳🇱

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Laura Casey

@lauraannecasey

Research Editor, @WSJMag; @IAPE1096 board; 2022 @WSJ Trust fellow, disability coverage. Views are my own.

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GeoCK

@geoeduone

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Ishaan Jhaveri

@ishaan_jhavs

@nytimes Visual Investigations, using computational methods (Computer Vision, GeoSpatial Analytics, etc.) Muzafir from Mumbai. I tweet about 🏏 + 🦉a lot

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Alice Wong 王美華

@sfdirewolf

Disabled oracle. Founder, @DisVisibility. Editor, DISABILITY INTIMACY bit.ly/3SXjkzZ Available NOW!

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Binita Kane

@binitakane

#LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |

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Amélie Doche

@ladoche

Doctoral Researcher @BCUEnglish: Discourses of Value in Contemporary Literary Culture | (Slowly) recovering from #LongCovid & #MECFS | Beaujolaise

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Erik Johnson

@erikmoldwarrior

Original prototype for Chronic Fatigue Syndrome The syndrome NO ONE ever looked into. Not a single CFS doctor asked how it started.

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eIisa

@mildtin

Humanity's better future: Zero chronic illness. End needless suffering. Millions with Long Covid and ME/CFS working and waiting to get our lives back.

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Wading through treacle

@kimisgubbed

Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬

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Pam Bishop, PhD @pamelarbishop.bsky.social

@pamelarbishop

Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Migrating, find me here: @pamelarbishop.bsky.social

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Janet Dafoe

@janetdafoe

Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...

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Putrino Lab

@putrinolab

We make people (and technology) better at Mount Sinai. Opinions are my own.

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Naomi Harvey PhD #WearAMask

@naomi_d_harvey

Zoologist. She/her. 23yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ naomidharvey.bsky.social

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Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC

@doctorasadkhan

Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED

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Brian Fog

@useless_priest

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Siebe.

@patientpersists

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Kaelyn Lynch

@kaelyn_lynch

Multimedia Journalist | Filmmaker. Former: @outsidemagazine and @5280Magazine. kaelynlynch92 @ gmail dot com 🏳️‍🌈

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ME/CFS News

@mecfsnews

News, interesting information and commentary on ME/CFS. Mostly inactive these days.

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Barnaby Raine

@barnabyraine

History PhD @Columbia, asking why it became so hard to imagine the end of capitalism. Faculty @BklynInstitute, editor @Salvagedotzone. Waiting for Moshiach.

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Jonas R. Kunst (@kunstjonas.bsky.social)

@kunstjonas

Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Editor @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]

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Billy Hanlon

@bhanlon15

ME/CFS | Long COVID | IACC

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Elke Asen

@elkeasen

Previously: MSc in Economics Student @LSEEcon & tax policy analyst @taxfoundation | Life on Pause since Dec ‘21 due to #LongCovid/#MECFS

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Alba Azola, MD

@azolaalba

Assistant Professor @RehabHopkins and @HopkinsKids, Long COVID/Chronic Fatigue Clinic. Human, mother, physician, dancer, and scientist! My opinions are my own.

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charlos

@loscharlos

😎🌁🎷 #LongCovid March 2020 😵‍💫

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Jo Hunt (activism, also @JoElizaHunt for papers)

@healthhubris

Disabled psy therapist, researcher & activist. #MECFS #Chiari #CCI #EDS #longCovid. she/her. Animal lover. Here for intersectional social justice

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Tess Falor, Ph.D. | Renegade Research

@tessfalor

Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome

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Shaney Wright

@shaneywright

@WestHam Fan ⚒ | Accidental Centrist I Pro-Pragmatism and Real World Outcomes I Anti-Ideologues.

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sarah

@swastrosarah

#MaeveInquest updates in the space where thought is free of antagonising algorithm. Her legacy lives on swastrosarah.bsky.social

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@TheChronicCollaboration

@thechroniccolab

A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.

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Sarah O'Connell

@sarahoc_mecfs

#pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover

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LongCovidPharmD

@organichemusic

Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. PharmD.substack.com ko-fi.com/LCpharmD

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Jo Hunt (also blogging at @HealthHubris)

@joelizahunt

Disabled researcher, she/her. Therapist interrupted. pwME. Research affiliate Uppsala KBH. Multi-disciplinary #disability #politics #healthcare #psychotherapy

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Ror Preston

@rorpreston

Founder @ CrunchME | Creating the evidence & insight base to help crunch IACCs 💙 | #MECFS #LongCovid

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Long Covid on the short

@lc_ontheshort

The most prominent research on the causes of #LongCovid in a quick and digestible manner | Understanding raises awareness | by @HerbertoDhanis

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Long Covid Commentary

@longcovidcomms

Long covid patient who thinks the world needs more resources to solve and treat long covid and me/cfs #FBLC #pwLC #LongCovid #mecfs #pwME treat #PEM

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Faithless

@faithoxenbridge

Tired of defending my reality. Vax induced ME (still pro Vax) Bedbound. Not tired; sick. Used to write & teach. Here for the research and outrage.

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LongCovidAidBot

@longcovidaidbot

Here to support disabled #pwLC who must rely on #MutualAid to survive #COVID & #LongCovid #FBLC. #LongCovidAid #CovAidReq

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Junior

@nolimitjuni0r

22 year old long hauler fighting for his life back. Former CC/T&F athlete. @miamiheat fan. #longcovid #notrecovered.

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Post-Viral Trials News

@postviraltrials

No longer posting updates here – find me at postviraltrials.bsky.social

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Sammie McFarland - See you over there 🦋

@sammiefmc

Founder @LongCovidKids, & wellbeing coach on pause. “Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.”

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