hi guys, is this a typical p.e.m presentation? After going a funeral yesterday for 1 hour, hr was extremely raised all rest of day, and fatigue went a lot worse later on, couldn't sleep all night hr raised and aching severely in bed and feeling severely anxious? #MECFS #LongCovid

First time my Visible has shown me to be out my points for day its only 4pm, also been feeling horrendous last 2 weeks in a bad crash 🙃 hoping for better days ahead #longcovid 🙏

can anyone with experience with mitochondria supplements offer advice on a good regime to trial or a combo supplement with good effects, it's one thing I've never tried before since being unwell and seen many have benefits, also dietary stuff I'd be willing to include #longcovid

so my mum, dad, + sister have covid and both nephews, said they thought it was a bad cold until I asked them to buy tests which they suprisingly did. also my mil has same symptoms so prob also has it, it never goes away does it ppl don't even test now sadly 😔 #Covid #LongCovid

just got my results back for a anemia panel I had done, all seem OK apart from my active b12 it is 38 from what I can research this is very low, I've been of supps for 3 months now, anyone advise? #b12 here is article I found. google.com/url?sa=t&sourc…

Very concerning but does this change anything anyway? the dwp decide who's fit for work anyway, but can see draconian measures coming in to reduce the number of people on benefits. the country is in a mess won't accept the damage #longcovid has caused theguardian.com/politics/2024/…

its actually mad that monitormyhealth is the NHS testing privately offering active b12 and other blood testing that isnt even recognised by NHS doctors, how does it even make sense?

hello guys, since I had the severe dizziness come on Me 6 weeks ago, I'm now not dizzy 24/7 bit now cannot walk because I go dizzy then.and my legs don't feel.strong enough and have a feeling like I'm on a boat unsteady ground, anyone experienced this? #longcovid

morning everyone, this is the 5th week I've been severely dizzy now and nausea and weak limbs especially my legs, do I still ride it out or try get further evaluation, never felt like this in my whole covid journey. like my brain feels poisoned can't do anything atm #longcovid

can anyone recommend one of the private blood testing companies for b12 folate and full blood count please? at home is best for me atm but is it as reliable as normal blood draw tests?

this is a new trial for myself to see if it relates to any of the new symptoms I'm experiencing at least it shouod rule another issue out worst case #diabetes #glucose #LongCovid

This guy... doesn't want to search for biological mechanisms of #MECFS in order to save 'billions of dollars.' 🙄 Yet leaving many millions of young, sick and disabled people with #MECFS EVERY YEAR due to #COVID19 costs billions of dollars due to disability, healthcare…

hello anyone using the visible plus app, which do you set you exertion heart rate zone too? I think mine is set to high (99) and its not giving me a proper points score for the day #visible

hey everyone, my friends niece is stable, she's on ecmo and still has heart pumps to help her, her inflammtion levels are dropping a lot and she's starting to react to stuff, they have identified a genetic defect that can be susceptible to coranavirus' may of caused the reaction

thanks everyone for the kind words and wishes ive passed them on, she has now had open heart surgery and a pump fitted to help the strain on her heart and lungs, her inflammation markers are upto 300x what they should be, there hopeful it should peak today 🙏

one of my best friends neice was taken into hospital yday very unwell, body and face swelling and legs had gone stiff and rigid, she is now in intensive card and on ventilation and dyalisis, doctors found she has covid and are fighting to reduce the inflammation, she's only 5.

day 5, lungs have gone really tight and painful, heart pain and pots symptoms worsened, still extremely dizzy eyesight poor, weakness in arms and legs and painful muscles face still burning occasionally, is this covid again? had mild resp syp 3 weeks ago but zero atm. #LongCovid

can you have shingles without the rash? 111 gp thinks I may have it as my face is burning, severely dizzy and nausea and feel aching all over and weak limbs. been like this for 3 days now. anyone experienced similar its driving me insane #shingles #longcovid

M.E.: Lives devastated - and sufferers are told it's made up channel4.com/news/m-e-lives…

what is this anyone? guessing another money grab from someone? don't even know how they have my email. anyone else? #longcovid