PSP & CBD Awareness (@psp_cbd_msa) 's Twitter Profile
PSP & CBD Awareness

@psp_cbd_msa

A voice for those who can no longer use theirs. An ordinary person who cares enough to tell the world about the 'Other' PSP & related CBD / MSA
#PSPitsNotaGame

ID: 777268706267267072

linkhttps://www.facebook.com/groups/psp.warwickshire/ calendar_today17-09-2016 22:11:15

2,2K Tweet

644 Followers

1,1K Following

CurePSP (@curepsp) 's Twitter Profile Photo

Big news! Dr. Virginia Lee, a prominent member of the #CurePSP Scientific Advisory Board and a key collaborator, has been awarded the 2024 Rainwater Prize for Outstanding Innovation in Neurodegenerative Disease Research. rainwatercharitablefoundation.org/2024-rainwater…

CurePSP (@curepsp) 's Twitter Profile Photo

💡 Researchers and innovators, seize the opportunity to advance PSP and CBD research with #CurePSP's Pathway and Pipeline Grants. Deadline approaching: March 28, at 5 pm ET. Secure seed funding for your pioneering projects! psp.org/for-researcher…

💡 Researchers and innovators, seize the opportunity to advance PSP and CBD research with #CurePSP's Pathway and Pipeline Grants. Deadline approaching: March 28, at 5 pm ET. Secure seed funding for your pioneering projects! psp.org/for-researcher…
The PSP Association (@pspassociation) 's Twitter Profile Photo

PSPA is recruiting Link Volunteers throughout the UK to help support people affected by PSP & CBD. Good listener? Like helping people? We'd love to hear from you. pspassociation.org.uk/get-involved/v… #TeamPSPA #JoinUs #SupportVolunteers #VolunteerWithUs #PSPSupport #CBDSupport

PSPA is recruiting Link Volunteers throughout the UK to help support people affected by PSP & CBD.

Good listener? Like helping people? We'd love to hear from you.

pspassociation.org.uk/get-involved/v…

#TeamPSPA #JoinUs #SupportVolunteers #VolunteerWithUs #PSPSupport #CBDSupport
The PSP Association (@pspassociation) 's Twitter Profile Photo

Would you like to connect with other families living with PSP & CBD in your area? We currently have 30 local groups spread widely across the UK. Find a Group near you: pspassociation.org.uk/information-an… #PSPASupport #SupportGroups #PSPAMeetings #PSPCommunity #CBDCommunity

Would you like to connect with other families living with PSP & CBD in your area?

We currently have 30 local groups spread widely across the UK. 

Find a Group near you: pspassociation.org.uk/information-an…

#PSPASupport #SupportGroups #PSPAMeetings  #PSPCommunity #CBDCommunity
The PSP Association (@pspassociation) 's Twitter Profile Photo

Did you know you can apply for a PSPA Support Grant each year? Read Christine and Jim’s story on how the grants have benefited them both. pspassociation.org.uk/information-an… #SupportGrant #PSPASupport #Carers #CarersStory #SupportGroups

Did you know you can apply for a PSPA Support Grant each year? Read Christine and Jim’s story on how the grants have benefited them both.

pspassociation.org.uk/information-an…

#SupportGrant #PSPASupport #Carers #CarersStory #SupportGroups
The PSP Association (@pspassociation) 's Twitter Profile Photo

🤩PSPA Family and Friends Day - Leeds🤩 We are pleased to confirm the first two Family and Friends Days will be taking place on 15 June in Leeds! Registration for the event taking place at Village Hotel Leeds South, is now open. Secure your place today! eventbrite.co.uk/e/pspa-family-…

🤩PSPA Family and Friends Day - Leeds🤩

We are pleased to confirm the first two Family and Friends Days will be taking place on 15 June in Leeds!

Registration for the event taking place at Village Hotel Leeds South, is now open. Secure your place today!

eventbrite.co.uk/e/pspa-family-…
CurePSP (@curepsp) 's Twitter Profile Photo

🌟Join us for an insightful webinar on advocacy and the bipartisan National Plan to End Parkinson's Act! Learn how CurePSP and michaeljfox.org collaborate to drive this crucial legislation forward and how you can get involved! Register now: give.curepsp.org/event/ask-the-…

🌟Join us for an insightful webinar on advocacy and the bipartisan National Plan to End Parkinson's Act! Learn how <a href="/CurePSP/">CurePSP</a> and <a href="/MichaelJFoxOrg/">michaeljfox.org</a> collaborate to drive this crucial legislation forward and how you can get involved! Register now: give.curepsp.org/event/ask-the-…
Thames Path National Trail (@thamespathnt) 's Twitter Profile Photo

Join Moth and Raynor Winn today on the last leg of their #ThamesPath walk, leaving Putney Bridge 10.30am and walking to Westminster Bridge fund-raising for The PSP Association They're so close to reaching their target! 👉 justgiving.com/page/moth-and-… @Ramblers_London Go Jauntly

Join Moth and Raynor Winn today on the last leg of their #ThamesPath walk, leaving Putney Bridge 10.30am and walking to Westminster Bridge fund-raising for <a href="/PSPAssociation/">The PSP Association</a> They're so close to reaching their target! 👉 justgiving.com/page/moth-and-…
@Ramblers_London <a href="/gojauntly/">Go Jauntly</a>
Huw Morris (@huwmorris) 's Twitter Profile Photo

Come and join our group ! We are recruiting for a clinical fellow to work on Movement Disorders genetics in association with Aligning Science Across Parkinson’s PD_Progression and the Global Parkinson's Genetics Program (GP2) . Neurology Trainees gp2.org royalfree.nhs.uk/working-here/o…

The PSP Association (@pspassociation) 's Twitter Profile Photo

🤩 PSPA Family and Friends Day 15 June in Leeds 🤩 Thoughtfully designed for people with PSP & CBD, family members of all ages, carers, and friends. Register for the event at Village Hotel Leeds South here eventbrite.co.uk/e/pspa-family-… #FriendsAndFamilyDay #PSPASupport #PSP #CBD

🤩 PSPA Family and Friends Day 15 June in Leeds 🤩

Thoughtfully designed for people with PSP &amp; CBD, family members of all ages, carers, and friends.

Register for the event at Village Hotel Leeds South here

eventbrite.co.uk/e/pspa-family-…

#FriendsAndFamilyDay #PSPASupport #PSP #CBD
The AFTD (@aftdhope) 's Twitter Profile Photo

The AFTD 2024 Education Conference is less than one week away! It’s not too late to sign up to attend virtually to connect with others who understand #FTD, learn about available resources and support, and engage with experts to gain insights into FTD research. 🔴 Thanks to our

The AFTD 2024 Education Conference is less than one week away! It’s not too late to sign up to attend virtually to connect with others who understand #FTD, learn about available resources and support, and engage with experts to gain insights into FTD research.

🔴 Thanks to our
Cambridge FTD (@cambridgeftd) 's Twitter Profile Photo

Synaptic Loss is much more severe in β-Amyloid negative Corticobasal Syndrome (ie likely Corticobasal degeneration) than β-Amyloid positive CBS (ie likely AD); and correlates with phenotype #UCBJ PET Negin Holland WBIC Wellcome The PSP Association …mentdisorders.onlinelibrary.wiley.com/doi/10.1002/md…

The Good Grief Trust (@goodgrieftrust) 's Twitter Profile Photo

Thank you BBC Morning Live for highlighting the work of our charity this morning on the programme and helping to explain how to find the right support under our umbrella 🧡☂️ Linda Magistris OBE talked to actor Max Bowden about the importance of acknowledging that grief is unique to that

CurePSP (@curepsp) 's Twitter Profile Photo

We will be meeting with Rep. Jennifer Wexton and her team next week and we will be participating to a congressional briefing to share with staffers and other members of congress information about the importance of PSP research, clinical trials, and PSP patient voice!

The PSP Association (@pspassociation) 's Twitter Profile Photo

Could you be the next PSPA volunteer? If you are thinking of becoming a PSPA volunteer, we would love to hear from you. Get in touch and apply via our website: pspassociation.org.uk/get-involved/j… #VolunteerAwaernessWeek #VolunteerRecruitment #PSPANeedsYou #TeamPSPA #JoinUs

Could you be the next PSPA volunteer?

If you are thinking of becoming a PSPA volunteer, we would love to hear from you.

Get in touch and apply via our website: pspassociation.org.uk/get-involved/j…

#VolunteerAwaernessWeek #VolunteerRecruitment #PSPANeedsYou #TeamPSPA #JoinUs
Maura Malpetti (@m_malpetti) 's Twitter Profile Photo

Our work on blood-based inflammation markers in FTLD is published! We found a pro-inflammatory cytokine profile in patients that is associated with central inflammation and worse survival outcomes. Huge thanks to all families, colleagues and funders! academic.oup.com/brain/advance-…

Our work on blood-based inflammation markers in FTLD is published! 

We found a pro-inflammatory cytokine profile in patients that is associated with central inflammation and worse survival outcomes. 

Huge thanks to all families, colleagues and funders!

academic.oup.com/brain/advance-…