Population Health Research Network
@phrn_australia
A nationwide data linkage infrastructure capable of securely and safely managing health information from around Australia. #NCRISimpact
ID: 2468671886
http://www.phrn.org.au 29-04-2014 03:37:05
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How did Population Health Research Network collect public views on uses of #HealthData? Over several years, Annette Braunack-Mayer & team conducted focus groups & #PublicJuries to gather a wide range of views from a diverse cross-section of Australian society. phrn.org.au
Participants in Canada & Australia saw benefits to collecting, using & sharing #HealthData, incl for improving #HealthCare/systems, augmenting #Indigenous data sovereignty & assisting vulnerable populations: Annette Braunack-Mayer Population Health Research Network MORE ➡️ hdrn.ca/en/public/publ…
Participants in HDRN Canada - RRDS Canada & Population Health Research Network public engagements raised a number of caveats to using #HealthData concerning: ☑️Equity & fairness ☑️Governance & oversight ☑️Privacy & security ☑️Transparency & data literacy
Key takeaways on community attitudes towards using #HealthData? HDRN Canada - RRDS Canada & Population Health Research Network found public perspectives are complex but there is conditional support, considering who collected the data & why + what are implications of sharing/using data hdrn.ca/en/public/publ…
Read more here: phenomicsaustralia.org.au/the-ncris-heal… #NCRISImpact Australian Government Department of Education Bioplatforms Australia EMBL Australia Australian National Imaging Facility Phenomics Australia Population Health Research Network TIA
More than 100 concussion experts across the country have collaborated in a groundbreaking Australian Mild Traumatic Brain Injury (AUS-mTBI) study, so volunteers can now monitor their concussion symptoms via a newly revised HeadCheck app. ▶️bit.ly/3YK4P5B Curtin Media
In our new Impact Story, Professor Mishra explains how the Australian Longitudinal Study on Women’s Health links health and survey data to shed light on endometriosis, a crippling condition impacting one in seven women. ➡️ bit.ly/4dDXB7I @ALSWH Queensland Health #datalinkage