Thank you for philanthropy that helped develop CFTR modulators but do you know that Vertex Pharmaceuticals has turned their existence into torture for 000's around the world by rationing access thru extortionate pricing? Dr Tlaleng Mofokeng Gates Foundation gatesnot.es/3nZveH7?WT.mc_… via Bill Gates

The face of pure joy. It's #KaftrioDay for Rositsa Malinova At a cost of EUR 20, 556.80 for just ONE MONTHS supply the box should be gold plated This has the potential to save Rosi's life Donations via Paypal: paypal.me/forRosi @VertexSave Vertex Pharmaceuticals #BigPharma

CF children with COVID-19 usually do not develop serious disease, study finds. CF News Today #CF #CysticFibrosis #CFWarrior bit.ly/38fdyRk

When you have #cysticfibrosis, there are times it may seem difficult to feel productive. Jessika, an adult living with CF, shares 6️⃣ tips for staying motivated. cff.org/CF-Community-B…

Vertex Pharmaceuticals Great news that more people in the wealthiest countries will receive treatment but what about patients in countries where you don’t see massive profits? Where is your global access policy Vertex Pharmaceuticals? Every CF patient deserves the right to life. #vertexsaveus Bill Gates $vrtx

“To someone not stuck in a loop of sickness, recovery, and managing symptoms, it can seem like the math is easy: Sick + new treatment = better. But better is relative to where you were starting from and each person's experience with CF is unique.” on.cff.org/3aIEifW

Dr Tlaleng Mofokeng 000’s of CF families around the world are urging you to investigate our UN complaint against Vertex Pharmaceuticals for ignoring Human Rights guidelines for pharma companies and denying access to life-saving medicines. Please make their wish come true & help to end the suffering.

@VertexSave Dr Tlaleng Mofokeng Vertex Pharmaceuticals Happy New Year Dr Tlaleng Mofokeng In 2021 please be the voice of people w/ #cysticfibrosis a rare disease which makes them in a minority struggling to be heard - but they must be because they're dying needlessly & in a world full of tradegy where there is hope it surely must be realised

Fabulous what #Kaftrio can do! Well done Jillian. #CysticFibrosis

France, Spain, Poland, Ukraine, South Africa, India, New Zealand, Australia, Canada ... the list of countries being denied access to Trikafta/Kaftrio is endless. It’s time to publish a global access policy & end the suffering Vertex Pharmaceuticals. #globalcffamily @KaftrioForAllFR

Does a lung transplant cure cystic fibrosis? Lung transplant is an option for some people with cystic fibrosis (CF). But even though these “new” lungs will be free from the effects of CF, it’s not a cure for this genetic disease. #CF #CysticFibrosis bit.ly/3pLXSvX

Strawfie Challenge Dr Tlaleng Mofokeng Vertex Pharmaceuticals Will you step up Vertex Pharmaceuticals or let seriously ill patients die when your drugs could save them? Surely it’s an easy decision. You care about CF patients don’t you? Actions speak louder than words. #humanrights #endthesuffering

Good news that health authorities in Bulgaria have agreed to fund Kaftrio for Rositsa Malinova for 3 months but what then? Why isn’t she (& other seriously ill patients) being offered ‘compassionate use’ access? Shame on you Vertex Pharmaceuticals #humanrights Dr Tlaleng Mofokeng Strawfie Challenge

Please come and sign our letters to Vertex and the UN insisting on immediate worldwide access to Vertex medicines for ALL patients with CF. To do this join our FB group now: facebook.com/groups/VertexS… #globalCFfamily #ignored Together we will be heard.

Thanks to all for signing our letters to Vertex & the UN so far, pls share our Page and encourage others to join the group and sign: facebook.com/VertexSaveUs We need all signatures by 23 Feb. 4 DAYS TO GO! TOGETHER WE WILL BE HEARD. #VertexSaveUs #CysticFibrosis #kaftrio #trikafta

#cisticfibrosis #vertex #trikafta_in_Ukraine Vertex help my daughter

Vishaka's future would look so much brighter with access to Vertex Pharmaceuticals's life-changing CF drugs Two minute read👇👇 breathewithme.org/post/i-lost-my… Jolene du Plessis Tanya Koorts Vaishnavi cf/Aware Monika Luty SINDHUJA #TrikaftaNOW #globalcfdrugs4all #cfawarenessmonth #India

Lizzie put the needle and we begin to drip. Pseudomonas aeruginosa destroys the lungs of my daughter. # Vertex my daughter dreams of living! Dreams of Trikafta! Anyone who wants to help paypol paypal.me/1981l

We were very proud to work with some of the people involved in @VertexSave Us to win access to life changing treatment for NHS patients. Deeply proud that, even though they now have access, they’re still fighting so every person with #cysticfibrosis in the world does too.