Neurocognitive assessment platform for clinical trials in PKU: White paper developed by the NPKUA neurocognitive wo… pubmed.ncbi.nlm.nih.gov/39089209/

Nutrient Status and Intakes of Adults with Phenylketonuria pubmed.ncbi.nlm.nih.gov/39203860/

Long-term safety of sapropterin in paediatric and adult individuals with phenylalanine hydroxylase deficiency: Fina… pubmed.ncbi.nlm.nih.gov/39237321/

Community Notice - Vitaflo Ireland Cookery Roadshow Low protein community is invited to join Chef Neil in Dublin, Cork & Limerick for an interactive cookery session next month. Details on how to register below 👇🏻 Can’t wait! Thanks Vitaflo Dietitians 👩🏼‍🍳🍚⏲️🍆🥒🥔🥕🥦🍅

Apples are in season🍏🍎🍏making it the perfect time for a delicious Promin Low Protein Apple and Raspberry Crumble! So yummy and heartwarming—give it a try!🍮🍮🍮 Simply head over to our You Tube channel here youtube.com/watch?v=HQKVfG… Enjoy!😍 #MadeWithPromin #lowprotein #PKU

#PKU Community - an inperson invite to Liverpool this Friday - to take part in a S.P.O.R.T Focus group You'll get #lowprotein snacks and refreshments, a chance to feed into important research on PKU & sports To get involved: email: [email protected] 😎😎😎

#PKU community Stamp price increase *AGAIN* You may wish to stockpile 1st class stamps between now & 7 October (4 weeks’ today) A 1st class stamp will be £1.65 (2nd class stamps will remain at 85p). 🆘🆘🆘🆘🆘🆘🆘🆘🆘🆘🆘🆘🆘

Ready for the off! Here we come!

Ready to go for the race!!!! NSPKU

We all earned medals and educated some people about PKU on the way round too!

You nearly pipped Jake to the post too! Anita MacDonald 😂

Congratulations to all at NSPKU A super initiative for such a worthy cause🏃‍♀️🏃‍♂️👏👏

#NSPKU shout out to a very hard working #PKU #IMD health care professional Eg A lot of #PKU pregnancies managed by Diane & team and much much more…..

At the preconception health and care conference in Belgium. It’s important to know that men’s health influences the health of the resulting children. It’s not all about the woman. #preconceptionhealth Ilse Delbaere Michel De Vos