Neuromuscular Complex Care Centre
@nmccc_nhnn
Neuromuscular Specialist Unit providing coordinated MDT care based at The National Hospital for Neurology and Neurosurgery, London
ID: 1183447063406796800
https://www.ucl.ac.uk/cnmd/patient-services/nmccc 13-10-2019 18:19:23
31 Tweet
219 Followers
76 Following
Yesterday team #mitochondrialdisease held a patient engagement day alongside The Lily Foundation for patients with Mitochondrial Disorders natalie j. 💙🇧🇼🇿🇦🇬🇧🇨🇦🇺🇦🇪🇺🌏 Robert Pitceathly @MRC_CNMD #patientengagement
Well done Sherryl Chatfield and @gitaramdharry!
Thanks to fabulous team- we achieved so much for patients in ten years - next ten will be even better as we enter new era of genetic disease modifying treatments we will lead! Thanks Marcel for great lecture! UCL Queen Square Institute of Neurology UCLH Marcel levi Daniel Kendell UCL Brain Sciences @MRC_CNMD Neuromuscular Complex Care Centre
Happy #OTWeek2019 to all the wonderful OTs working with #neuromusculardisease Lizzy_Flavell Rebecca Jeffcott
Great grand round on nasal high flow oxygen therapy by ronan astin . A lovely summary of current evidence and plenty of food for thought. Thank you. ACPRC Neuromuscular Complex Care Centre
An interdisciplinary SLT-PT model has really helped support our patients living with MND better manage their own swallowing, secretion and chest clearance needs. Bringing together the skills of both disciplines adds value to patient care Charlotte Massey #alsmndsymp
Congratulations to our colleague Dr. Chiara Pizzamiglio for finishing her training today. A great member of #teamnmccc Neuromuscular Complex Care Centre
Happy New Year 2020 from Team NMCCC🎉🎉🎉Neuromuscular Complex Care Centre @MRC_CNMD NHNN NMCCC Nursing Team UCL Queen Square Institute of Neurology UCLH
Recently published paper using data from the @PhenoDM1 study - "Activities of daily living in myotonic dystrophy type 1". Neuromuscular Complex Care Centre Lochmüller Lab @MRC_CNMD @CureDMcharity Myotonic Dystrophy Foundation Charlotte Massey National Institute for Health and Care Research @ceci_jm Newcastle University MYOTONIC DYSTROPHY onlinelibrary.wiley.com/doi/abs/10.111…
NMCCC’s Consultant Respiratory Physician ronan astin presenting on the importance of respiratory physiology in helping people living with #MND MND Association North London MNDA Jan Clarke
So inspirational we just couldn’t tweet!- hearing stories from people who contributed their creativity and stories to our new #neuromuscular Bridges Self-Management app- website and book such an amazing project thanks to all that have their time so selflessly @gitaramdharry UCLH Charity
We’ve been nominated by Jodi Allen to post photos of our daily life for 1 week. No people, no explanations. Here is a week in the life of the 2020 NMCCC...Day 1 #virtualMondayMDT #neurologist #cardiologist #respiratory #PT #SLT #psychology #OT #dietitan #nursing #holisticcare
Day 2 of our photo challenge (thanks Jodi Allen) Here is a lovely card made for the staff by one of our patients last week. Today we nominate @meekocruces #patientart #alternativetherapy #nmccc #christmascards
Day 3 of our photo per day challenge #sunrise #morningviews #Queensquare Today we nominate Mayumi Rossi