ERN-LUNG European Reference Network on Rare Bone Diseases ERN CRANIO ERKNet ERNICA ERN-Skin EURACAN ERN eUROGEN ERN-EYE ERN-ITHACA ERN RARE LIVER ERN TransplantChild ERN ReCONNET 🇪🇺 VASCERN RareEndoERN ERN GUARD-Heart @ERN_RND 🧠 EpiCARE ERN ReCONNET 🇪🇺 MetabERN ERN EuroBloodNet

OMG😱 it’s finally here. the #SSIEM2024 book of abstracts is out now. doi.org/10.1002/jimd.1… SSIEM 2024 Annual Symposium

The #SIMMESN adult metabolic working group & MetabERN Joint Position Statement. 🚩Adult metabolic patients are increasing➡️new challenges for #healthsystems 🚩Knowledge of adult metabolic medicine should quickly increase & improve in the next years sciencedirect.com/science/articl…

The upcoming #MetabERN2024 Annual Board Meeting in Budapest is approaching! 📅 from 27th to 29th November Excited to see the outcomes of our efforts and meet with our members! 🔗metab.ern-net.eu/metabern-annua… #RareDiseases #ERNeu

🌎 RDI is advocating for a WHA Resolution on Rare Diseases in 2025. This could boost access to care, drive research, raise awareness, and create smarter, more inclusive healthcare. Let's drive lasting change together! Register today: tinyurl.com/2mmz7fpz

📣We are delighted to participate in the 15th European Epilepsy Congress organised by ILAE, alongside our colleagues from EpiCARE, @ERN_RND 🧠, ern euro_nmd and ERN-ITHACA. Find us at booth 423! #Rarediseases #EEC2024 #Epilepsy #ERNeu

👥Do you want to know all the details about Neurological ERNs and get answers? 🇮🇹 Join us at 423 booth at the La Nuvola Convention on September 7th-11th Centre from 9:00am to 5:00pm! #EEC #Rome #Epilepsy #EpiCARE ILAE @ERN_RND 🧠 MetabERN ern euro_nmd ERN-ITHACA

Which year were the ERNs launched in? Do you know which are their primary aims? Come join us at Booth 423 in the #EEC2024 to participate in a surprise game and earn a sweet treat! 🍬 #RareDiseases #Epilepsy #ERNeu #Neurology EpiCARE ERN-ITHACA @ERN_RND 🧠 ern euro_nmd ILAE

Amazing experience this week at SSIEM 2024 Annual Symposium! A big congratulations and heartfelt thanks to the incredible organizers! 👏 #SSIEM2024 #RareDiseases #ERNeu

📍#EEC2024 has started in Rome! The first day of the Congress has come to an end already, closing with a remarkable Welcoming Ceremony. We are looking forward to the next exciting sessions. Find us at booth 423 in the exhibition area! #RareDiseases #ERNeu #Epilepsy #Neurology

#EEC2024 has ended today, having been a really a successful congress attended by over 3000 people and with more than 400 speakers and presenters. Thank you to all who visited booth 423 to learn about ERNs! #ERNeu #Epilepsy EpiCARE ERN-ITHACA @ERN_RND 🧠 ern euro_nmd ILAE

The European Rare Diseases Research Alliance ERDERA kicks off with a bold vision to make Europe a global leader in rare diseases research and innovation. 🚀 Read press release🗞️erdera.org/wp-content/upl…​ 🌍💙 #ERDERA #RareDiseases EUScience&Innovation🇪🇺 Horizon Europe🇪🇺 Inserm

#EPNSCongress2025 invites you to submit your latest research, clinical studies, or innovative approaches to paediatric neurology Unique opportunity to share your insights with your colleagues, exchange ideas, and learn from each other epns-congress.com/abstracts/

The ERICA ERN Research Conference will take place in Udine, Italy! 📅 11-13 December 2024. ERICA stakeholders will gather to discuss the progress and future of the ERN related research activities. Check out the full program and all the details 🔗 erica-rd.eu/event/erica-ga…

DeCODe project, led by the University of Twente, was launched last week to improve healthcare for children with #RareDiseases. The project will speed up pediatric and orphan device development by guiding and supporting developers! More here: metab.ern-net.eu/decode-project/ #EU4Health

Reminder! Submit your Abstract for ERICA ERN Research Conference. Deadline already in October: erica-rd.eu/event/erica-ga… ERN-LUNG European Reference Network on Rare Bone Diseases ERN CRANIO ERKNet ERNICA ERN-Skin EURACAN ERN eUROGEN ERN-EYE ERN-ITHACA ERN RARE LIVER ERN TransplantChild ERN ReCONNET 🇪🇺

🗓️🇪🇪Save the date! October 3rd: Meeting on the integration of European Reference Networks into the Estonian healthcare system 📌Organised by the Competence Centre of Rare Diseases at Tartu University Hospital. Register to attend in person or online! bit.ly/3MW3Wjk👇📝

🗓️Attention! Call for Abstracts related to ‘ERN Research’ deadline is extended until 15th October! See the call text and Regulations For Abstracts: erica-rd.eu/event/erica-ga…

The deadline for abstract submissions for the upcoming ERICA ERN Research Conference has been extended to October 15, 2024! Hurry and submit your abstract showcasing your ERN research! ℹ️ More info: erica-rd.eu/event/erica-ga… #RareDiseases #ERNresearch #ERNeu

🚨Exciting news! ERDERA is pre-announcing its 2025 Joint Transnational Call for Proposals! 🚨🌍 🔗 Read more here: loom.ly/-YEsh3Y #RareDiseases #Research #JTC2025 #ERDERA