TAYSHA GENE THERAPIES ANNOUNCES PLANS TO SUBMIT CLINICAL TRIAL APPLICATION TO UK REGULATOR FOR GENE THERAPY IN CHILDREN WITH Rett syndrome MID-2023 Both Rett UK and Reverse Rett welcome this news of a UK clinical trial of gene therapy for Rett syndrome. ir.tayshagtx.com/news-releases/…

"In all the years that I've been doing journalism, I've always found the people who are the most generous are the people who have the least to give." Richard Engel finds generosity in the besieged city of Chasiv Yar, eastern Ukraine.

Airs this Friday on 1yr anniversary of Russia’s invasion of Ukraine. Check out the clip (and with annimations!)

Congrats to Blue Bird Circle for celebrating 100 years of service to Houston children with #neurological conditions. More via @houstonchron: bit.ly/3VrUyY1. Thanks @TheBlueBirdHoufor tirelessly supporting #pediatric neurology #research Texas Children's & BCMHouston!

The winners of the “National Television Feature” category are NBC News Richard Engel, The Today Show & On Assignment with Richard Engel for “Richard Engel Reports: Ukraine’s Vilshany Orphanage.” youtube.com/watch?v=gZGiwa…

UK friends, please sign this petition. Hospices offer vital services to families like ours. Not just while Henry was alive, but also now with much needed grief support. Shooting Star Children's Hospices

Check out our latest hour. Now on youtube. On Assignment with Richard Engel: Revolt from Within - The Rise of Wagner youtu.be/Z0Y2LZIfd2A

I’m very proud to be joining this wonderful organization. They were a source of support and education for us and and I look forward to helping in any way I can.

Lack of holiday clubs is a nightmare for disabled children and families. Open doors, open minds and targeted £ are needed to ‘sort summer out’ once and for all ⁦Kids⁩ Parents left feeling 'rejected' over lack of SEND holiday care for children bbc.co.uk/news/education…

A year ago today, we tragically lost Henry Engel to #Rett syndrome. Today, the Duncan NRI team Texas Children's is using Henry’s cells to rapidly advance new treatments and end this #RareDisease. Learn more: bit.ly/47ywubM Mary Engel Richard Engel

Exciting news. Getting closer to a time when people don’t have to have to struggle with Rett Syndrome. Lots of gratitude to the families who are participating in the clinical trials.

Tonight I spotted @wsj reporter Will Mauldin in Kyiv covering the Secretary Antony Blinken visit and wearing a Free Evan button.  Evan Gershkovich continues to be held by Russia, arrested while doing his job.  For more information on Evan: wsj.com/news/evan-gers…

Today, Taysha Gene Therapies announced that a 2nd adult patient has been dosed with TSHA-102 in their trial of the gene therapy with a 3rd adult patient and complete enrollment by year-end. The 1st pediatric patient in the U.S. trial in Q12024. More info: buff.ly/3PujQCl

The first paper to be published documenting research that was done using our late son Henry’s cells. We are grateful to Dr. Huda Zoghbi and her entire lab and the team UC Berkeley for their ongoing work to find treatments for Rett Syndrome. This is Henry’s legacy. Richard Engel

Family of Hamas hostage says he's there, at the Sabbath table, in their hearts. By Richard Engel Marc Smith Gabe Joselow & Corky Siemaszko nbcnews.com/news/world/fam…

Our son Henry attended a special education school in the UK. His teaching assistants were paramount to his safety & enjoyment at school. He lit up when I would mention their names. They made his life happier by being in it. They are indispensable & deserve a fair wage.

British Sign Language to be introduced as GCSE in England bbc.in/488KeK4

my favorite article of the week. for those who struggle to communicate, art can be an especially powerful and liberating means of expression. GO SFMOMA! nytimes.com/2024/05/07/art…

Fighting for Olympic Gold: Ukraine’s Athletes at War - YouTube youtube.com/watch?v=H0bvJB…

Pod is live! podfollow.com/the-world-with… Every Wednesday join Yalda Hakim and me as we report from the frontlines, and try to make sense of this crazy world we live in. Take a listen!