
Marion Ferguson
@marion_super
'Mum to 4 great people and granny to Seven little people. I raise awareness for CF & campaign for access to life saving medicines.
ID: 374760663
https://www.facebook.com/marion.ferguson.7 16-09-2011 22:05:12
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I find it astonishing & telling that those advocating reduced international travel for every day folk, pay by mile, every larger uLEZ schemes & 15 min cities are the ones with private jets, travelling the world with impunity & enough money to drive any where anytime regardless of



Scottish campaign group for access to #cf drugs Quest For A Cure are keen to clear up the inaccurate information in this report.

Been busy with Comments NICE guidance life saving drugs for #cf ! Thanks to HEHTA for inviting, Jeane Freeman , Dr Gordon MacGregor & us to take part in a discussion. Thanks to Thomas for an emotive viewpoint. Discussing #cf drugs further with Jenni Minto MSP Scottish Parliament




There are inaccuracies around the reporting of the access to CF drugs in Scotland. Please follow Quest For A Cure for accurate information

met with Jackie Baillie, & Scot Gov Health to discuss the NICE (& SMC’s collaboration) for appraising Symkevi, Orkambi & Kaftrio. We voiced our community concerns re draft guidance from NICE. Reassuring to have discussion where we were engaged & our concerns taken on board.


Jenni Minto MSP & Alison Strath thank you for taking the time to listen to us today 🙏🏻

Quest For A Cure Jenni Minto MSP It is always a privilege to meet colleagues from Quest For A Cure - Jenni Minto MSP & I very much valued the lived experienced shared, discussing the NICE Healthcare Improvement Scotland MTA draft guidance & listening to your aspirations for the #CF community - we will continue to engage with you



