MPN World (@mpnworld) 's Twitter Profile
MPN World

@mpnworld

Online platform for the global Myeloproliferative Neoplasms (MPN) community๐Ÿฉธ
Meet with MPN patients around the world! ๐Ÿซ‚
๐Ÿ“ฒ Powered by @gmpnsf
#MPNsm

ID: 1848689961257799680

linkhttp://mpnworld.org calendar_today22-10-2024 11:36:59

33 Tweet

15 Followers

22 Following

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โ“Not sure how MPN World works? Check out our FAQs โ€” everything from access to data security. ๐Ÿ’ฌ Still confused? Reply with your question. ๐Ÿ”— mpnworld.org/page/faq-s #MPNsm

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๐Ÿ“ข Looking for the next MPN event or webinar? MPN World keeps you posted with: ๐Ÿ—“๏ธ Timely event updates ๐Ÿ“š Tools for learning & advocacy ๐Ÿ’ฌ Real community connection ๐Ÿ“ฒ Join for free now โ†’ mpnworld.org #MPNsm

๐Ÿ“ข Looking for the next MPN event or webinar?

MPN World keeps you posted with:
๐Ÿ—“๏ธ Timely event updates
๐Ÿ“š Tools for learning & advocacy
๐Ÿ’ฌ Real community connection

๐Ÿ“ฒ Join for free now โ†’ mpnworld.org

#MPNsm
Global MPN Scientific Foundation (@gmpnsf) 's Twitter Profile Photo

๐ŸŒ Today we take a step forward. MPN World will be presented at #MPNEURONET2025, in front of the global MPN medical community. A platform created by patients, now connecting across borders. ๐Ÿ“Ž gmpnsf.org/post/mpn-worldโ€ฆ Ruben A. Mesa, MD, Claire Harrison

๐ŸŒ Today we take a step forward.

<a href="/MPNWorld/">MPN World</a> will be presented at #MPNEURONET2025, in front of the global MPN medical community.

A platform created by patients, now connecting across borders.

๐Ÿ“Ž gmpnsf.org/post/mpn-worldโ€ฆ

<a href="/mpdrc/">Ruben A. Mesa, MD</a>, <a href="/harrisoncn1/">Claire Harrison</a>
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๐Ÿง  Need to help MPN patients access reliable, tailored info? ๐Ÿฉธ Vera, the chatbot from MPN World, builds a custom MPN info page in seconds. ๐Ÿ“„ Practical. Shareable. ๐Ÿ”— mpnworld.org #MPNsm

๐Ÿง  Need to help MPN patients access reliable, tailored info?

๐Ÿฉธ Vera, the chatbot from MPN World, builds a custom MPN info page in seconds.

๐Ÿ“„ Practical. Shareable.
๐Ÿ”— mpnworld.org

#MPNsm
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๐ŸŒ MPN World = global connection for MPN patients ๐Ÿ“ Cross-border learning ๐ŸŒŽ Cultural insights ๐Ÿ’ฌ Shared patient experiences ๐Ÿ“ฒ Recommend the platform to patients or explore it yourself: ๐Ÿ”— mpnworld.org #MPNsm

MPN World (@mpnworld) 's Twitter Profile Photo

๐Ÿ†• New group alert on MPN World! ๐Ÿง˜โ€โ™€๏ธ The MPN-Journal Group helps patients reflect, track, and connect. ๐ŸŒ Also: MF Patients International is now 230+ strong. ๐Ÿ‘‰ Recommend it to your patients today: mpnworld.org #MPNsm

๐Ÿ†• New group alert on MPN World!

๐Ÿง˜โ€โ™€๏ธ The MPN-Journal Group helps patients reflect, track, and connect.
๐ŸŒ Also: MF Patients International is now 230+ strong.

๐Ÿ‘‰ Recommend it to your patients today: mpnworld.org

#MPNsm
Ruben A. Mesa, MD (@mpdrc) 's Twitter Profile Photo

Amazing day at #ASCO25 plenary session! First an #MPN abstract in the plenary! Second, amazing job by Andrew Kuykendall MD for presenting #VERIFY PhIII trial demonstrating Rusferatide impact on phlebotomy and PV symptoms in PV MPN World MPN Research Foundation Takeda MPN_Hub Moffitt Cancer Center

Amazing day at #ASCO25 plenary session! First an #MPN abstract in the plenary! Second, amazing job by <a href="/KuykendallMd/">Andrew Kuykendall MD</a> for presenting #VERIFY PhIII trial demonstrating Rusferatide impact on phlebotomy and PV symptoms in PV <a href="/MPNWorld/">MPN World</a> <a href="/myMPNRF/">MPN Research Foundation</a> <a href="/TakedaPharma/">Takeda</a> <a href="/MPN_Hub/">MPN_Hub</a> <a href="/MoffittNews/">Moffitt Cancer Center</a>
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๐Ÿฉบ Doctors โ€” your MPN patients now have a secure space to track symptoms, join local support groups, and access curated resources. ๐Ÿ“ฒ Recommend mpnworld.org and help them feel connected, informed, and empowered. #MPNsm

๐Ÿฉบ Doctors โ€” your MPN patients now have a secure space to track symptoms, join local support groups, and access curated resources.

๐Ÿ“ฒ Recommend mpnworld.org and help them feel connected, informed, and empowered.

#MPNsm
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๐Ÿšจ MPN Journal is now part of MPN World! Track symptoms, record treatments, and bring data to every visit โ€” securely and anonymously. ๐Ÿ‘ฉโ€โš•๏ธ Doctors: recommend it to your patients. ๐Ÿ“ฒ Join here โ†’ mpnworld.org/topics/4428/hoโ€ฆ #MPNsm

MPN World (@mpnworld) 's Twitter Profile Photo

๐ŸŒ Access MPN World anytime, from anywhere. ๐Ÿ“ฑ Now available on Android and iOS. ๐Ÿ’ป Use it on your phone, tablet, or computer โ€” wherever you are. Join the global platform for MPN patients & caregivers โ†’ mpnworld.org/page/benefits_โ€ฆ #MPNsm

MPN World (@mpnworld) 's Twitter Profile Photo

๐Ÿ“Š Track symptoms, blood counts, and doctor visits in one secure platform MPN Journal is created by MPN patients for real-life tracking ๐Ÿ‘ฉโ€โš•๏ธ Physicians can recommend it to patients and use printed reports in consultations ๐Ÿ”— Learn more: mpnworld.org/topics/4428/hoโ€ฆ #MPNsm

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Fear, anxiety, and sadness are common in patients with MPNs. ๐Ÿ”‘ Emotional care is as essential as medical treatment. ๐Ÿ‘ฉโ€โš•๏ธ Encourage patients to: โœ… Learn about their disease โœ… Track symptoms with tools like MPN Journal ๐Ÿ”— mpnworld.org/news/28581 #MPNsm

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MPN Journal empowers patients to track symptoms and treatments while contributing to real world evidence in MPNs ๐Ÿ‘ฉโ€โš•๏ธ Physicians can recommend it to patients to generate printable reports for better consultations ๐Ÿ”— Learn more inside MPN World mpnworld.org #MPNsm

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๐Ÿ‘ฉโ€โš•๏ธ๐Ÿ‘จโ€โš•๏ธ Hematologists & MPN specialists! MPN Journal already covers symptom tracking. What else should we add to MPN World to better support your patients? Reply with your ideas โฌ‡๏ธ #MPNsm

๐Ÿ‘ฉโ€โš•๏ธ๐Ÿ‘จโ€โš•๏ธ Hematologists &amp; MPN specialists!
MPN Journal already covers symptom tracking.

What else should we add to MPN World to better support your patients?

Reply with your ideas โฌ‡๏ธ

#MPNsm
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๐Ÿ“น Watch how a patient uses MPN Journal day-to-day to track symptoms and treatments. ๐Ÿ’ก Reports can be printed and shared with doctors to support care. ๐Ÿ‘‰ Available in MPN World ๐Ÿ”— mpnworld.org/topics/4428/hoโ€ฆ #MPNsm

MPN World (@mpnworld) 's Twitter Profile Photo

๐Ÿงญ Want to reduce patient isolation? ๐Ÿ‘‰๐Ÿป MPN World offers private local groups where patients can find connection, support, and shared knowledge. ๐Ÿฉธ ๐Ÿ“ฒ Encourage your patients to join. It makes a difference! Visit mpnworld.org #MPNsm

MPN World (@mpnworld) 's Twitter Profile Photo

Help your patients connect & grow ๐ŸŒ MPN World is a global patient community where individuals with PV, ET, and MF can find local groups, support, and educational events. Recommend MPN World to your patients today โ†’ mpnworld.org #MPNsm

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๐Ÿ‘ฅ MPN World groups are live! Private spaces for: โœ… MF patients โœ… Young adults โœ… Parents โœ… Spain, Belgium, Netherlands, LATAM โœ… Symptom tracking with MPN Journal Doctors: help patients connect and thrive in trusted communities. ๐Ÿ“ฒ mpnworld.org #MPNsm

๐Ÿ‘ฅ MPN World groups are live!

Private spaces for:
โœ… MF patients
โœ… Young adults
โœ… Parents
โœ… Spain, Belgium, Netherlands, LATAM
โœ… Symptom tracking with MPN Journal

Doctors: help patients connect and thrive in trusted communities.
๐Ÿ“ฒ mpnworld.org

#MPNsm
MPN World (@mpnworld) 's Twitter Profile Photo

๐Ÿฉบ Your patients can now track symptoms and treatments with MPN Journal โœ… Print summaries for your consultations โœ… Organize their health records โœ… Support global research ๐Ÿ“ฒ Invite them to join the MPN Journal group: mpnworld.org/topics/4428/feโ€ฆ #MPNsm

๐Ÿฉบ Your patients can now track symptoms and treatments with MPN Journal

โœ… Print summaries for your consultations
โœ… Organize their health records
โœ… Support global research

๐Ÿ“ฒ Invite them to join the MPN Journal group: mpnworld.org/topics/4428/feโ€ฆ

#MPNsm