Register for our Sept. 10 webinar with Dr. Peter Rowe (Johns Hopkins Children's Center) to discuss his book "Living Well with #OrthostaticIntolerance: A Guide to Diagnosis & Treatment." He'll cover causes, symptom mgmt & answer your questions. #MECFS #LongCovid. ow.ly/XQm450SKnKf

CONTENT WARNING Isla was only 18 years old when she died in May. She had been ill with ME since 6, later with POTS & MCAS. Her family say she faced disbelief & neglect from many professionals. Things have to change for ME patients #VerySevereME #POTS #MCAS Andrew Gwynne MP

🚀 Exciting news! We’re thrilled to introduce RTHM Direct, a game-changing service for #LongCOVID, #MECFS, #dysautonomia/#POTS, and mast cell activation #mcas treatment access. direct.rthm.com 🧵 More details ⬇️ (1/8)

📢#ME is clear to see in the blood of 1,455 #pwME <New Preprint, not peer reviewed> 116 blood molecules or cells are significantly different between #pwME and population controls & in both females & males & these differences are NOT due to inactivity medrxiv.org/content/10.110… 1/4

Work moves forward with the Minnesota Department of Health Grant! #MEAction's Ben HsuBorger met with #MEAction Minnesota this week to give an update! Thanks to state chapter lead Terri Wilder and all who attended! See original announcement here: meaction.net/2024/07/30/mea…

We have a question for you. What information was most useful to you as you were learning about myalgic encephalomyelitis (aka ME/CFS)? Answer here: ow.ly/oUJe50TaUOr Open until October 1st. You cannot return to the form. #pwME #MyalgicEncephalomyelitis #MECFS

Join us at our amazing virtual art gallery this weekend! As we come to the end of August, it is the perfect time to visit The Severe ME Artists Project 2024 virtual gallery that is held in honor of Severe ME Day on August 8th. meartistsproject.com #pwME #SevereME #Art

Happy Labor Day! We are taking a day of rest and will see you back here tomorrow! We have a busy September ahead! #pwME #MECFS #LaborDay

Sending out our best to all who are attending the #MECFS Collaborative Research Center Working Group Meeting at Stanford Med/SGTC this week including #MEAction's Scientific Director Jaime Seltzer It'sME(Jaime). The meeting is closed because unpublished data is being presented.

ANNOUNCEMENT: The Emory University School of Nursing in partnership w/ CDC will host a Voice of the Patient panel discussion on September 18. MEAction GA advocates will talk about their lived-experience with #MECFS and #LongCovid. If you're in ATL, join us! #TeachMETreatME

Can the ME Community help ME Foggy Dog get more signatures on this petition and get it trending during ME Awareness hour this evening? ow.ly/3yKp50TfbNS #MyalgicEncephalomyelitis #VerySevereME #SevereME

Love seeing our shirts in the community! Check out #MillionsMissing #StillSickStillFighting #TeachMETreatME shirts, hoodies, and more. bonfire.com/store/meaction…

It's hoodie season! Or it will be or maybe it is hoodie season all year long for you. The good news is we have lots of new hoodies to choose from! Check out our #MillionsMissing, #StillSickStillFighting, and #TeachMETreatME hoodies: bit.ly/MEActionStore #pwME #Hoodie #MECFS

Check out our new flier that you can print & take to your clinician sharing the ME/CFS continuing medical education created by #MEAction & Mayo Rochester Clinic staff. We also offer email language if you prefer to share that way! ow.ly/oCrF50TfVub #TeachMETreatME #pwME