Muscular Dystrophy Awareness Association
@mdaa_india
A Patient/Parent Advocacy Organization of #MuscularDystrophy. Let's create #Awareness, #Prevention, #Management and Find #Cure.
ID: 1472544478883766278
19-12-2021 12:29:16
170 Tweet
247 Followers
80 Following
Last year, the govt assured financial assistance of Rs 50 lakh to every rare disease patient. So far, not a single patient has benefited from this scheme. 10 children have died waiting for treatment. I request Shri Dr Mansukh Mandaviya to act immediately by clearing these payments.
#MuscularDystrophy Patients/Parents of #UP, #Bihar, #Karnataka, #Odisha, #Punjab, #Rajasthan and other states organised #Awareness camps & Rallies and submitted letters to authorities in their respective states. #DMD #BMD #LGMD #FSHD #NMD Ministry of Health Deptt. of MHFW GoUP
#Delhi : जंतर मंतर पहुंचे बड़ी संख्या में पीड़ित, 'भारत में नहीं है DMD का इलाज' #JantarMantar #Duchennemusculardystrophy #LatestNews Supreet Sachdev 🇮🇳
#InPhotos | 'Living one day at a time': Parents of children with #DuchenneMuscularDystrophy. | Garima (she/her) See more: bit.ly/3nmvZit