✅ Happy to report that we are moving forward to #SLAKE STEP 4 👍 The international panel of experts, PANs from Lupus Europe and AgrupacionLupusChile + the members of the ERN ReCONNET 🇪🇺 #Lupus group are triaging the preliminary bank of 500 questions, to retain only the essential ones 👌

✅ Management of REFRACTORY #LUPUS ⬇️
#Lupusawareness month

✅ Holistic #Lupus Management in 2024 👍 #Lupus AwarenessMonth

✅ Did you guys into improving #CART cells for #Lupus see this international call for research funding ⬇️ for cellular therapies in #SLE by Lupus Research Alliance?
-Up to 300,000 USD for preclinical studies
-Up to 600,000 USD for ancillary studies
Check the link below for more

✅ Holistic #Lupus Management in 2024 👍 #Lupus AwarenessMonth

✅ #Fatigue & #Lupus ⬇️
1) Assess with PROs, e.g: FACIT-Fatigue, MFI, FSS
2) Rule out common causes: anemia, sleep apnea, thyroid pbs
3) Treat disease activity, if any
4) Assess and manage pain, stress, anxiety, depression
5) promote physical activity
LINK:doi.org/10.1136/lupus-…

🦋It's #LupusAwarenessMonth ❗

🦵 #KickLupus :  make it visible

Take part in the Living With Lupus in 2024 survey.

🗣️Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.

🧵Find the link for all 21 languages in this thread⤵️

✅ Anyone 🙋with #LUPUS actively involved in #physicalactivity ?
🏃💃⛹️🚴🧘🤾🏋️🏌️
- If NOT, why NOT?
#Pain ? #Fatigue ?
➡️ The SECRET is to start with tiny goals (like 5-10 mins/day) and keep going until the body ADJUSTS, and then add +5 min every new week 👍 #LupusAwarenessMonth

✅ Taking the opportunity of the #Lupus awareness month 👏 to retweet 🔄 the FREE LINK ⬇️ to our 2024 The Lancet Seminar on #Lupus ⏳ Temporary download ⬇️ for FREE, for all 👨‍👩‍👧 with many interesting key-facts 🔑 for general practitioners ( #GPs ) & #PATIENTS with #SLE 👍

✅ The 10th of May is the World #LUPUS DAY 🌍🌎🌏 Let's make some noise to raise #LUPUS AWARENESS 🙏 and keep in mind that this #AUTOIMMUNE disease is affecting 3-4 MILLION people worldwide 😅 Hopefully RESEARCH is increasing and more & more people know it's #LupusAwarenessMonth

Very happy to share our nature Rheumatology Review on #Relapsing #polychondritis with Laurent ARNAUD et coll. ⬇️⬇️⬇️
We discuss the 🆕 differential diagnosis like #VEXAS and other mimickers.

✅ During STEP 3, a total of 234 potential #treatment strategies have been submitted by the experts of ERN ReCONNET 🇪🇺 #SLICC & SLEuro for rare #Lupus manifestations. I will do a lil bit of triage and duplicate removal and we will pick the winners🏅during phase 4 👌

✅ Very happy to share with you the link to our latest nature Review #Rheumatology on relapsing #polychondritis ⬇️ With Mertz Philippe et Coll., we dig deep into the main differential diagnoses, including #VEXAS 👍 Read only at the following LINK:rdcu.be/dGxy6

✅ May is #Lupus awareness month!!! 🦋 Let's spread the word! #Lupus is an #autoimmune disease affecting approximately 3.4 MILLION people in the world 🌎🌍🌏 and is associated with a wide range of #symptoms , some of which are not always visible!

No single test can determine whether a person has lupus. The doctor will look at the entire picture — medical history, symptoms, and test results — to determine if you have #lupus .

Here are a few ways to prepare for your visit with your health care provider.

Are you aware of the new recommendations on physical activity and exercise for patients with SLE?
Find out here 👉 loom.ly/2S3OoJg
Laurent ARNAUD Manuel Ugarte-Gil Ioannis Parodis #MedEd #MedTwitter #lupus #RheumTwitter

✅ Happy to share this slide about Treat-to-Target (T2T) in systemic #Lupus 🎯 Now a question to YOU 👉 What are the limitations to apply T2T in REAL LIFE. What practical barriers 🚧 are you confronted to?