#LupusChat (@lupus_chat) 's Twitter Profile
#LupusChat

@lupus_chat

#Lupus Community - Chat: Sunday at 3PM ET - Next #LupusChat is March 23 on BlueSky | Moderated by @TiffanyandLupus, @Xtel007, @CaringForLupus & @Syncenerd_Carli

ID: 345790395

linkhttps://bsky.app/profile/lupuschat.bsky.social calendar_today31-07-2011 05:18:16

49,49K Tweet

10,10K Followers

3,3K Following

Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

🚨 ERN ReCONNET - SLICC - SLEuro expert #consensus on the therapeutic management of RARE systemic #lupus erythematosus manifestations ⬇️ CHECK LINK: doi.org/10.1016/S2665-…

🚨 ERN ReCONNET - SLICC - SLEuro expert #consensus on the therapeutic management of RARE systemic #lupus erythematosus manifestations ⬇️
CHECK LINK: doi.org/10.1016/S2665-…
Janet Pope (@janetbirdope) 's Twitter Profile Photo

#ClinicalPearls discoid lupus - scars often Low chance of getting systemic #SLE But SLE Pts can have discoid lesions Vs Acute cutaneous lupus is mostly in SLE #LUPUS2025 Dr. John Cush Dr Vicky Werth

Janet Pope (@janetbirdope) 's Twitter Profile Photo

Rx of cutaneous lupus If desperate off label Topical JAKi #Rituximab MMF better than MTX lenalidomide > thalidomide - less neurotoxicity #LUPUS Dr. John Cush

Rx of cutaneous lupus
If desperate off label
Topical JAKi
#Rituximab
MMF better than MTX
lenalidomide > thalidomide - less neurotoxicity 

#LUPUS <a href="/RheumNow/">Dr. John Cush</a>
Donald Thomas, MD (@lupuscyclopedia) 's Twitter Profile Photo

I really like this graphic simplifying the latest American College of Rheumatology guidelines for treating #SLE #lupus nephritis that appeared in Dr. Costenbader's Dr. John Cush RheumNow article: rheumnow.com/news/shifting-… If all docs were to use this concept (I'm a HUGE believer in TRIPLE therapy

I really like this graphic simplifying the latest <a href="/ACRheum/">American College of Rheumatology</a> guidelines for treating #SLE #lupus nephritis that appeared in Dr. Costenbader's <a href="/RheumNow/">Dr. John Cush</a> <a href="/RheumNowNews/">RheumNow</a> article: rheumnow.com/news/shifting-…

If all docs were to use this concept (I'm a HUGE believer in TRIPLE therapy
Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

✅ This is the last opportunity to contribute to this research on #Lupus #brainfog ⬇️ as we will soon close this 1st step. We will then analyze your contributions, let you know what we found and move forward with the development of the Lupus Brain Fog Severity Scale (#LBFSS) 👍

Lupus Foundation of America (@lupusorg) 's Twitter Profile Photo

We’re 2️⃣ weeks away from our June 26 Lupus & You event: The Male Journey! Be sure to register for this free event to learn more about the experiences of men living with #lupus, featuring an exciting line-up of speakers: buff.ly/G9y5CNk #MensHealthMonth

We’re 2️⃣ weeks away from our June 26 Lupus &amp; You event: The Male Journey!

Be sure to register for this free event to learn more about the experiences of men living with #lupus, featuring an exciting line-up of speakers: buff.ly/G9y5CNk

#MensHealthMonth
Lupus Foundation of America (@lupusorg) 's Twitter Profile Photo

1 in 10 people with #lupus are men — but their stories are often overlooked. This #MensHealthMonth, we’re raising awareness about how lupus impacts men differently. From more severe complications to delayed diagnoses. 🔗 Learn more about lupus and men: buff.ly/QB1lL9S

1 in 10 people with #lupus are men — but their stories are often overlooked. This #MensHealthMonth, we’re raising awareness about how lupus impacts men differently. From more severe complications to delayed diagnoses.

🔗 Learn more about lupus and men: buff.ly/QB1lL9S
#LupusChat (@lupus_chat) 's Twitter Profile Photo

Please join us in celebrating all the wonderful Dads and Father figures in our community and across the world. Happy Father's Day to you all!! ~The #LupusChat Team 💜

Please join us in celebrating all the wonderful Dads and Father figures in our community and across the world. Happy Father's Day to you all!!

~The #LupusChat Team 💜
Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

✅ Check my visual summary for the American College of Rheumatology #recommendations for the screening 🔎 and treatment 💊 of #LUPUS #NEPHRITIS ⬇️ What would you change? Please DO let me know if an update 🔄 is needed 👍

✅ Check my visual summary for the <a href="/ACRheum/">American College of Rheumatology</a> #recommendations for the screening 🔎 and treatment 💊 of #LUPUS #NEPHRITIS ⬇️ What would you change? Please DO let me know if an update 🔄 is needed 👍
Nouf Al hemmadi (@noufahmedalham2) 's Twitter Profile Photo

Beautiful slide illustrating EULAR recommendations for management of lupus nephritis, from diagnosis, induction ( immune treatment), None immune ( adjuvant) and what to do in sever cases. It also included MAHA and atypical HUS associated. Great work.

Beautiful slide illustrating EULAR recommendations for management of lupus nephritis, from diagnosis, induction ( immune treatment), None immune ( adjuvant) and what to do in sever cases. It also included MAHA and atypical HUS associated.

Great work.
Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

✅ Why are we suddenly getting so many updated #lupus recommendations? (15+ in the last 5 years!!) ⬇️ by various groups worldwide 🌍🌎🌏 #NEDAI2025

✅ Why are we suddenly getting so many updated #lupus recommendations? (15+ in the last 5 years!!) ⬇️ by various groups worldwide 🌍🌎🌏
#NEDAI2025
Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

✅ Final reminder to contribute to our PATIENT research STUDY for the development of the #Lupus #BrainFog Severity Scale - a questionnaire to assess the characteristics and severity of brainfog in lupus 🦋 ➡️LINK:lupusresearch.limequery.org/697679?lang=en

✅ Final reminder to contribute to our PATIENT research STUDY for the development of the #Lupus #BrainFog Severity Scale - a questionnaire to assess the characteristics and severity of brainfog in lupus 🦋
➡️LINK:lupusresearch.limequery.org/697679?lang=en
Lupus Foundation of America (@lupusorg) 's Twitter Profile Photo

#FactFriday 💡 DYK UV rays from indoor lighting can trigger symptoms? Photosensitivity isn’t just about the sun. For many with #lupus, running errands or sitting in an office under bright lights can lead to flares. 💜 Learn how to protect yourself: buff.ly/MxjxQbY

#FactFriday 💡 DYK UV rays from indoor lighting can trigger symptoms? Photosensitivity isn’t just about the sun. For many with #lupus, running errands or sitting in an office under bright lights can lead to flares.

💜 Learn how to protect yourself: buff.ly/MxjxQbY
Donald Thomas, MD (@lupuscyclopedia) 's Twitter Profile Photo

👉 Study from Duke shows that some patients with type 2 symptoms are probably immunomodulated and can improve with immunomodulatory therapy. lupus.bmj.com/content/12/1/e… This is important, because there have been articles written for healthcare providers stating that the treatment

👉 Study from Duke shows that some patients with type 2 symptoms are probably immunomodulated and can improve with immunomodulatory therapy.

lupus.bmj.com/content/12/1/e… 

This is important, because there have been articles written for healthcare providers stating that the treatment
Lupus Europe (@lupuseurope) 's Twitter Profile Photo

Are factors like fatigue, depression or pain preventing you from pursuing your fitness goals? We have🔝news! Join our free tailored exercise program, designed to accommodate those with mobility limitations buff.ly/45SQAMr Try it this Summer! Let's #KickLupus together!

Are factors like fatigue, depression or pain preventing you from pursuing your fitness goals?

We have🔝news!

Join our free tailored exercise program, designed to accommodate those with mobility limitations buff.ly/45SQAMr

Try it this Summer!

Let's #KickLupus together!
Lupus Foundation of America (@lupusorg) 's Twitter Profile Photo

Aging with #lupus is not about slowing down. It's about adapting, thriving, and staying connected. Join us Sept. 4 for a special Lupus & You on aging with purpose. Register today: buff.ly/O9E5M6Y

Aging with #lupus is not about slowing down. It's about adapting, thriving, and staying connected. Join us Sept. 4 for a special Lupus &amp; You on aging with purpose. 

Register today: buff.ly/O9E5M6Y
Lupus Foundation of America (@lupusorg) 's Twitter Profile Photo

💜 New podcast! Ever wonder how doctors measure if #lupus mild, moderate, or severe — and why it matters for your care? 🩺 Dr. Luís Inês shares how a tool called SLE-DAS can guide better treatment and connect labs to how you feel. 🎧 Listen now: buff.ly/0sk12LC

💜 New podcast! Ever wonder how doctors measure if #lupus mild, moderate, or severe — and why it matters for your care? 🩺 Dr. Luís Inês shares how a tool called SLE-DAS can guide better treatment and connect labs to how you feel.

🎧 Listen now: buff.ly/0sk12LC
#LupusChat (@lupus_chat) 's Twitter Profile Photo

Got SLE? 💜 Been on a biologic? You could earn $150 for sharing your experience in a 90-min online lupus research interview! #LupusChat Ages 21–55, no Lupus Nephritis. Apply by TODAY Aug 8 👉 shorturl.at/GfJk5

Got SLE? 💜 Been on a biologic?
You could earn $150 for sharing your experience in a 90-min online lupus research interview! #LupusChat

Ages 21–55, no Lupus Nephritis.

Apply by TODAY Aug 8 👉 shorturl.at/GfJk5