LupusABC 💜💪🦋 Meeting

#Lupus Accelerating Breakthroughs Consortium, a first-of-its-kind public-private partnership bringing people w/ lupus together in collaboration with FDA, other federal agencies, medical societies, industry, academic clinical researchers
#Lupus chat

Take note! One of my fave books I’ve ever written is Reel, featuring a heroine living with lupus. Please engage with this readathon in the month of May 💜

👉Management of fatigue in SLE by Prof Laurent ARNAUD

🔸Why we should be measuring fatigue

🌟Use a validated PROs ➡️ rule out common causes➡️ check SLE disease activity ➡️rule out other causes ➡️ targeted interventions (physical activity)

🔬 Upcoming Live Expert Session: 'Why Are Lupus Labs Stuck in the 1960s?' with rheum & Medical Advisory Board member, Dr. Thomas. Join us LIVE on our Facebook page on April 27th at 10AM for a crucial discussion that could change the way we think about treatment & diagnosis.

Did you know #lupus tricks your immune system into attacking your own body, affecting everything from your skin to your heart? It's tough because you might look fine, but are fighting a battle inside. Don’t let appearances fool you—support is crucial. #InvisibleIllness

#MinorityHealthMonth | Join us April 22nd at 12pm PST for 'Strategies For Navigating Bias in the Patient Experience' with psychologist, lupus warrior & #LupusLA Medical Advisor Board Member, Dr. Blied! Gain tools to advocate for the care you deserve. RSVP: bit.ly/register-april…

Three Weeks from today! Join us for the 2024 Lupus Medical & Educational Symposium held in Worcester, MA during
#lupusawarenessmonth 💜 👩🏻‍💻 🦋

Sabemos que hay mucho talento entre nosotras: ¿Quieres ser colaboradora? Lúpica es la única revista latinoamericana especializada en la divulgación del lupus desde todos los ámbitos, hecha por personas como tú.

Si te interesa colaborar y conocer, escribe antes del 22 de abril a

Today we are meeting to celebrate the first anniversary of #LupusABC , a partnership uniting individuals with #lupus and industry, clinicians, researchers and government to identify and pursue ways to accelerate lupus drug development. Visit bit.ly/LupusABC #lupus voices

📅 Mark your calendars for our 4/23 Lupus & You event! Join us next week as our exciting lineup of speakers discuss the impact of lupus on oral health.

Register today ↓
buff.ly/3vXiEld

Join our Men’s #Lupus Support Group 4/18 at 4pm PST / 7pm EST! “Why do you need this support group? As men, we need a safe space where we can come to talk about things. Lupus is not just a physical battle, it’s also a mental battle.” - Dion, Facilitator | lupusla.org/supportgroups

.Caring For Lupus is in Bethesda, Maryland today for the Lupus Accelerating Breakthroughs Consortium! So proud of all advocacy work Elizabeth is doing with Lupus Research. She’s a dedicated caregiver who uses her experience for the betterment of lupus research. #LupusChat

#NewsFromTheLab 📣 | Did you know that there is a NEW blood test poised to revolutionize care for Systemic #Lupus Erythematosus? Join us April 16th for our next “News From The Lab” live session at 4pm on Facebook with the creators of the new LuGENE lab test by Ampel BioSolutions!

DYK that lupus can affect your mouth, causing dryness, gum disease and more? Your oral health matters! 🦷

Learn how to care for your smile and manage symptoms: buff.ly/3PIwMWb

🌟📢 Próx webinar: Claves p' la Gestión óptima d #Sjögren 🌟📢

Cuando: 24 d abril a las 5pm HORA CET
Si tienes #Sjögren o conoces a alguien q lo tenga, ¡Compártelo!

Inscripción ➡️ https:/bit.ly/3PyHSwH

#MesDeConcienciaciónSjögren #EstoEsElSjögren #sjogrens

🔺Se estima que el 14-17% de pacientes con lupus tienen, además, síndrome de #Sjögren .

Para todos ellos, así como para las personas q conviven con él (familia, pareja, amigos…), Asociación Española de Sjögren, Soc.Esp.Reumatología y Societat Catalana d'Immunologia han organizado este webinar q no os podéis perder 👇

For all my reading peeps 👀 ⚇ 𝚝𝚑𝚎 𝚙𝚑𝚊𝚗𝚝𝚘𝚖 𝚖𝚎𝚗𝚊𝚌𝚎 made a #LupusAwarenessMonth book challenge for May called #LupusBookBingo24 ! This looks so fun imma try to participate. ☺️📚💜 #LupusChat

🆕 Commentary: Creating Plain Language Summaries to Disseminate COVID-19 Research Findings in #Rheumatology The Journal of Rheumatology

Our The COVID-19 Global Rheumatology Alliance team sought to explain research findings in the pandemic to pts living w/ rheumatic diseases #SciComm #HealthLiteracy

jrheum.org/content/early/…

La Salud Mental y equilibrio emocional es importante y aquí nos tienes 😊

Servicio de Atención Psicológica (SAP) @felupus
TUS EMOCIONES CUENTAN❗️
Escribe a [email protected]

Agradecer apoyo y colaboración @msocialgob @agenda2030gob @gsk @labsrubio y AstraZeneca España

Register NOW for a day of wellness, connection, & empowerment! If you have lupus, fibromyalgia, other autoimmune condition or support someone that does, join us.
May 11, 2024 * 10:00AM - 3:00PM PST
📍Art Community Center, Baldwin Park, CA & Virtual
➡️bit.ly/L4LWellnessDay…