How can real-world data support clinical trial development and research? RWD can help reach beyond borders, connect stakeholders, and streamline post-market surveillance. Learn more: zurl.co/l9hV #realworlddata #postmarket #clinicaltrialrecruitment

Congratulations again to Lumiio for their winning submission in last year’s competition! We’re accepting entries for our Fall 2024 session through August 30th. digitalhealthawards.com #RareDisease #PatientOutcomes #PersonalizedTreatment #Treatment

August is #SMAAwarenessMonth! The combined efforts of patient organizations and researchers have created groundbreaking treatments for SMA. It's outcomes like these that inspire us to do the work we do, and the power of digital health tools to enable community collaboration.

We are excited to share the launch of the digital platform BetterLife FSHD! We are honoured to have partnered with the FSHD Society in the creation of it, helping to empower patients across the country. Click the below announcement to learn more 👇 #BetterLifeFSHD

September is #ArthritisAwarenessMonth, raising awareness for the 4.6 million Canadians impacted. The Mobility for Life Project at the McCaig Institute at U Calgary is helping to fill research gaps for Albertans! Find out more here: zurl.co/lDwY #MobilityForLife

Today is #WorldDuchenneDay, dedicated to raising awareness for the 250,000 patients around the world living with Duchenne Muscular Dystrophy. Do you know someone in Canada living with DMD? Check out Defeat Duchenne Canada 's clinical trial finder tool: zurl.co/56jO #WDAD2024

September is Thyroid Cancer Awareness Month, one of the most common cancers in the United States. Digital innovations are opening doors for early-detection tools and collecting patient insights and data. Learn more here: zurl.co/yLq6 #ThyroidCancerAwarenessMonth

This week is #WorldMitochondrialDiseaseWeek, hosted by MitoCanada to raise awareness those living with mitochondrial disease. The organization was co-founded by Blaine alongside other families to advocate and fundraise research efforts. Read his story: zurl.co/SFez

The launch of FSHD Society’s #BetterLifeFSHD digital health platform signifies an important development for people living with the disease across the United States! We were honoured to have partnered with them on this important project. Learn more: zurl.co/MJ4L

📍Monuments across Canada are lighting up red to raise awareness for PANS PANDAS 🔴 Raising awareness is important for patients and their families to find community, and help inspire action to improve diagnosis and treatment protocols. #Red4Pans #PANSresearch #PANDASresearch

On World Acromegaly Day, we raise awareness for the at least 2,000 Canadians with Acromegaly. The Canadian patient registry is a tool we helped develop to inform research to help improve diagnostic pathways and quality of life for patients. Learn more: zurl.co/6uT3

Why is it important to develop digital health tools that cross international borders? To unlock research and treatment development potential for health communities often limited by small populations. Learn more about our current programs: zurl.co/Gp2v

Empowering underserved health communities with our digital data health platform is our company's mission. Learn more about our collaborating with the FSHD Society to build BetterLife FSHD: zurl.co/RdZ4 #BetterLifeFSHD #rarediseaseresearch #realworlddata

Exciting news in the year! We are hiring for an Intermediate/Senior Software Developer, with particular experience in Laravel/PHP. Click the link to apply and learn more 👉 zurl.co/Pe9VT #hiring #softwaredeveloperjobs

Even more exciting new years news! We are now hiring for TWO Intermediate/Senior Software Developer positions: 🟡 Laravel/PHP expert (at least 2 years) - zurl.co/nbj9K 🟡 Flutter Mobile App expert (at least 2 years) - zurl.co/KTMBK Learn more and apply 👆

On Saturday March 1st, the Rare Disease Network of Alberta (rDNA) will be hosting Rare Disease Day 2025: Unlocking Hope for Rare Diseases in Edmonton. Members from our team will be attending! 🧬 Learn more and register: zurl.co/swLbs #rarediseaseday2025

International collaboration is crucial to develop effective treatments and faster pathways to diagnosis for rare diseases like FSHD. Lumiio has joined forces with the FSHD Society and TRiNDS to create the Global FSHD Innovation Hub! Learn more here: zurl.co/fEPoe

We are excited to welcome Bryanne Kwong to our team! 🎉 She's joining us as Manager, Growth and Marketing, using her business development skills in the healthtech sector to help Lumiio continue to grow. Learn more about Bryanne: zurl.co/js5IL

Today is International Rare Disease Day, raising awareness for over 300 million people worldwide with rare diseases . Digital tools have the potential to fuel research and better disease literacy, find out how by scrolling through the pages below 👇 #RareDiseaseDay

Congratulations to our Co-Founder and Chief Medical Officer Dr. Lawrence Korngut! 🎉 He received the King Charles III Coronation Medal for his "outstanding contributions to the Canadian and global ALS community." Lawrence was among 38 other recipients from @ALS Canada