2/2 17. Crohn’s Disease and Ulcerative Colitis (Inflammatory Bowel Disease) •Initial Treatments: Early treatments included corticosteroids and basic immunosuppressants, which provided some relief but had significant side effects. •Incremental Improvements: The development of

More examples that showcase how continued research and development in medical therapies have transformed previously fatal or severely debilitating diseases to chronic. 1/2 WHY NOT ALS? 14. Asthma •Initial Treatments: Early treatments included basic bronchodilators and oral

A speech that will touch people’s hearts for years to come ❤️ Steve Gleason delivered a memorable moment while accepting the Arthur Ashe Award for Courage at the 2024 ESPYS.

Please take the few minutes to listen to Steve Gleason - "Live Impossible"’s acceptance speech, when receiving the Arthur Ashe Award for Courage. Bravo, Steve and Congratulations! ALS/MNDMamaBears Deb Bellina Kandy Simons Mitze Klingenberg BSN, RN BridgetRebecca ᴊᴀɴɪᴇ °.｡·🫧.｡  @Shines2017 Jan Mattingly

Recently, some people have been accused of not genuinely advocating for #ALS but instead supporting a single drug. I wonder where these individuals stand on Clene's data and their application for accelerated approval. While I support regulatory flexibility, this might be going

It would only be #BetterTogether if the The ALS Association joined forces with BrainStorm and helped to support and fund the Phase 3b trial. Without that, we are truly NOT #BetterTogether. That is all outlined in the lawsuit brought against them, by the 15 chapters that

Say YES to #onedrugadvocacy because right now, THERE IS NOTHING ELSE and yes, it worked on the children of my fellow MamaBears, as well as some of your friends. And please, don’t feel “left out” of our ALS/MNDMamaBears group. You don’t have children with ALS or any that died from

Ask not what #ALS can for you, ask what you can do to illuminate #ALS. Her ALS Story #33yearsold #ALSAwareness #Russia #Light 🌻

I remember posting about this a while back and thought it good to post again. See my recap above. The path of a single drug's discovery, as seen in the examples below, can be groundbreaking as it paves the way for further innovations in treatment, creating a foundation for more

Does anyone know anything about this? I just saw this on LinkedIn. They are making pretty huge claims and haven’t even been approved. Is this “okay”? Are the laws regarding drug promotion the same in Canada as it is with the U.S. FDA ? linkedin.com/posts/nyassin_… Deb Bellina

Happy New Year everyone….My wish for 2025 is that it will be THE year for newfound hope and long-awaited discoveries in the world of ALS/MND. I am anxiously waiting for the NurOwn Phase 3B trial to begin and I applaud the tenacity of C Lebovits and team at BrainStorm for not

My Daughter Deserves Better. The national The ALS Association recently released its financials, and the numbers tell a truly painful story. While they paid top executives hundreds of thousands of dollars (one receiving $500,000 in salary!), they also laid off 40 employees and saw 15

Great news!

I’m a Mama Bear who’s seen what NurOwn can do. My friends' sons got the real thing—and they’re living. Not just surviving, but truly living. People need to believe them. Believe what we see. Believe what they know. Believe it is possible. #ALS #NurOwn #BelievePatients

From everyone in CT affected by ALS, Thank you, ALS United Connecticut! ❤️