Our previous chair Lucy Dixon giving her experiences working with international research networks at the #ERSCongress BEAT-PCD (ERS CRC) #patientrepresentative #PCD #collaboration

The second BEAT-PCD (ERS CRC) patient conference will take place again this year online on Tuesday November 21st at 14:00 CET, organised jointly by patients with PCD and their families, researchers and clinicians. Register for free on our website beat-pcd.squarespace.com/events/2023/11…

Less than a week before our second Patient conference. Slides will be available to download in English, French, German and Spanish. During the presentations, an AI software will provide translated subtitles in many languages. We hope to see you there!

Join us for our next expert talk on "Fertility and PCD" with speakers Leonie Schreck & Prof. Sophie Christin-Maitre! Wednesday 20th December at 5PM CET on Microsoft Teams. Register here👇 beat-pcd.squarespace.com/events BEAT-PCD (ERS CRC) Yin Ting Lam Mathieu Bottier, PhD Myrona Goutaki Amelia Shoemark #PCD

Did you missed our PCD Patient Conference 2023? did you enjoy it and want to watch it again? The translated presentations as well as the video replays are now available on our website! beat-pcd.squarespace.com/patients

Very happy to participate to the PCD medical research board meeting this year and talk about our BEAT-PCD (ERS CRC) study on research priorities from the perspective of healthcare professionals, researchers and people with PCD PCD Support UK Yin Ting Lam Prof Jane Lucas 💙 PCD research group at ISPM Bern

Here at the PCD medical board meeting Leonie Schreck discusses infertility among adults in PCD PCD research group at ISPM Bern. Happy to see much discussion about this important issue in the program!

Really looking forward to our next BEAT-PCD (ERS CRC) experts talk this Monday when the real experts of PCD share their perspective about multidisciplinary care! #primaryciliarydyskinesia European Lung Foundation

Brilliant Leonie Schreck emphasising need of fertility counselling in #PCD Starting at transition to adult care PCD research group at ISPM Bern Myrona Goutaki BEAT-PCD (ERS CRC) Claudia Kuehni

Latest pulmonary data of the Swiss #PCD registry by Myrona Goutaki PCD research group at ISPM Bern BEAT-PCD (ERS CRC) Claudia Kuehni at 🇨🇭 pulmonology congress

• Yin Ting Lam raising awareness about #treatmentburden in #primaryciliarydyskinesia. We need to understand it so we can take measures to reduce it 💪 BEAT-PCD (ERS CRC) PCD research group at ISPM Bern

Strong representation of #primaryciliarydyskinesia research at the Swiss pulmonology Congress Yin Ting Lam Leonie Schreck PCD research group at ISPM Bern BEAT-PCD (ERS CRC)

2 weeks until the PCD Annual meeting (BEAT-PCD (ERS CRC) - ERN-LUNG) in Vienna, Austria. We will have a great line-up of speakers. Registration and program available on our website beat-pcd.squarespace.com/events/2024/9/…

We've set up ready for #BEATPCD2024 - looking forward to a day dedicated to PCD! BEAT-PCD (ERS CRC) #PCD #PCDSupportUK #Cilia

Our own Leonie Schreck presents data from the #livingwithPCD study on incidence and predictors of pulmonary exacerbations among people with PCD #PCDVienna24 PCD research group at ISPM Bern Claudia Kuehni PCD Support UK PCD Foundation DCPES. Discinesia Ciliar Primaria / Kartagener PCD Australia

Latest data on exacerbations in #PCD presented brilliantly by Leonie Schreck BEAT-PCD (ERS CRC) Myrona Goutaki #BeatPCD2024

Congratulations to Leonie Schreck for winning the best presentation during the research highlights session this morning

Consensus definition of sinonasal and otologic exacerbations in #PCD by Myrona Goutaki 👏 Publication in ERS publications available soon BEAT-PCD (ERS CRC) #ERSCongress

Come to PS-18 for more #PCD posters chaired by Myrona Goutaki Leonie Schreck Mine Yüksel Kalyoncu BEAT-PCD (ERS CRC) #ERSCongress

🔴 J3 [#ERSCongress] : poster session - les Dr Yin Ting Lam Leonie Schreck et Myrona Goutaki présentent les possibilités de suivi (médical, administratif), les troubles de fertilité (80% des hommes, 60% des femmes avec #DCP) et les conseils pour la prise en charge.