LadyPZander
@LadyPZander
Wife,mother &pet owner👩❤️👨🧑🏼👧🏼🐶🐈⬛Passionate about raising awareness of the #ValproateCrisis & the damage that #Valproate can cause to an unborn child
ID:20552032
10-02-2009 22:17:54
1,8K Tweets
104 Followers
195 Following
#ValproateCrisis
Praying for positive news from #UKGovernment soon, following the publication of #TheHughesReport over 3 months ago
#RedressNow
#FirstDoNoHarm
Emma Murphy (INFACT) ☘️💕😘🦋 Infact - Independant Fetal Anti-Convulsant Trust janet williams MBE INFACT/FACSA Patient Safety Commissioner Maria Caulfield MP Catherine Cox 💙 Lisa Boothman warren matthews
#Compensationforvalproate
Was great to attend First Do No Harm APPG chaired by Sharon Hodgson MP Julia Cumberlege and hear from
1) Jason Farrell
2) Patient Safety Commissioner
3) Diana Johnson DBE MP 🇬🇧🇺🇦🌈 in particular listen to her campaign story #Contaminatedblood
janet williams MBE INFACT/FACSA
#Valproate Crisis
Our children are harmed by #Valproate and will live with this for the rest of their lives…meanwhile government ‘consider all options’ from the #HughesReport
Let’s hope they make the right decision by our children and that they are not left waiting any longer
The stories we're seeing in the media at the moment with Contaminated blood & post office scandal & how they've been lied to is appalling. Department of Health and Social Care MHRAgovuk created a nightmare for pregnant women from 1973 when prescribed Valproate & constantly lied to & told it was safe.
One of the known biggest medical scandals caused by our very own Regulators & Government
All gone very quiet 🤫
Is the Section 35 back in our Campaign like it has been in the past? janet williams MBE INFACT/FACSA
#compensationforvalproate
Thank you Dee Dee We janet williams MBE INFACT/FACSA Infact - Independant Fetal Anti-Convulsant Trust will continue to campaign for women to receive informed choice during pregnancy 💪🏼
Well done to Emma Murphy (INFACT) ☘️💕😘🦋 + team.
Women also need to be informed of other drugs which can cause birth defects:
➡️SSRIs (widely prescribed)
➡️Pregabalin
➡️Accutane
➡️Phenytoin
➡️Primidone
➡️Carbimazole
➡️Carbamazipine
➡️Phenobarbital
➡️Lamotrigine
➡️Debenox
➡️Primodos
April 2022 & The Times and The Sunday Times Shaun Lintern reports in a full & bold report about #Valproatecrisis & how it was allowed to happen then covered up by Governments & Department of Health and Social Care Two years on & following the #Hughesreport & the children harmed still wait.!
#ValproateCrisis
PURPOSEFUL DECISIONS TO NOT TELL PATIENTS ABOUT THE KNOWN RISKS OF HARM TO THE BABY HAS CAUSED TENS OF THOUSANDS BABIES TO BE BORN DISABLED; WITH PHYSICAL MALFORMATIONS & NEUROLOGICAL DISORDERS SUCH AS AUTISM
WHEN WILL GOVT ACT ON #HUGHESREPORT TO SUPPORT VICTIMS
#FetalValproatespectrumdisorder was recognised by Geneticists in the 1980's yet it took until 2018 for MHRAgovuk Department of Health and Social Care to admit the problem after meetings with Infact - Independant Fetal Anti-Convulsant Trust Emma Murphy (INFACT) ☘️💕😘🦋 . If you took #Valproate during pregnancy pls get in touch infactuk.com
janet williams MBE INFACT/FACSA HM Treasury Jeremy Hunt Department of Health and Social Care Patient Safety Commissioner Emma Murphy (INFACT) ☘️💕😘🦋 Warren Matthews LadyPZander Lisa Boothman Shaun Lintern Janet the report was published in February. We have written to the PSC to say we are looking at the recommendations. We commissioned the report so we want to look at these recommendations seriously