🌍 This #WorldLupusDay , at 19h, participate in a unique event specially tailored for young people with lupus.

‼️This is not just any webinar for the youth. It is a webinar made by youth for youth.

📧 Join us! Send an e-mail to [email protected] -Secure your spot now!

Have you been invited by your clinician to take part in the RAIRDA Survey 2024? Please tell us about your experience to help us to ensure that rare diseases remain a priority #RAIRDaware

🔗ipsos.uk/RAIRDAsurvey20…

Our latest survey reveals 91% of respondents have taken or are taking oral steroids for their lupus treatment. This week and on #WorldLupusDay (10 of May), let's amplify awareness on steroid impacts & advocate for ongoing research. worldlupusfederation.org/2024/05/06/wor…

Thank you to everybody who attended our ‘Go That Extra Mile’ London walk on Saturday for #WorldLupusDay !! 🙌

#LupusAwareness #GTEM

Would you like to tell us about your experience of your RAIRD? Use the following link to take part in a survey to ensure that rare diseases remain a priority.

🔗ipsos.uk/RAIRDAsurvey20…

#RAIRDaware RAIRDA

10 days to go until #WorldLupusDay ! 🌍

Have you seen our poster for 2024? You can download it here: lupusuk.org.uk/wp-content/upl…

For more information on how you can get involved with World Lupus Day and help to raise awareness of #lupus , visit lupusuk.org.uk/world-lupus-da… 💜

#LUPUSUK

We are proud to launch an updated version of our Lupus and the Skin information booklet.
You can find more information about the update here: lupusuk.org.uk/updated-lupus-…
Or get a free copy:
- PDF: lupusuk.org.uk/wp-content/upl…
- Paper copies from [email protected] or 01708 731251

A fantastic display of talent from both Colleges last night to raise money for LUPUSUK 💙!

Congratulations to all who took part. For a longer version of the show, please visit: youtube.com/watch?v=3C6EWo…
Gareth Hughes

Izzy, our former Deputy Head Girl for Charities, is running to raise money for LUPUSUK 💙 - read her inspiring story and donate below. #courage #commitment #kindness #mondaymotivation justgiving.com/page/izzy-arku…

Share your insights today by following this link: ipsos.uk/RAIRDAsurvey20… #PatientAdvocacy #RAIRDcommunity #RAIRDaware LUPUSUK 💙 SRUK | Scleroderma & Raynaud's UK Vasculitis UK - In memory of John Mills MBE 💙💚 #BSSA

Good to see the collaboration that rheumatology and nephrology has. Dr. Louise Oni l have learnt so much l can’t wait to apply in practice Julie Begum Fidelma Gordon LUPUSUK 💙

Nominations close TODAY at midnight! #MovementForGoodAwards

🔗health.movementforgood.com/index.php?cn=1…

Take a few moments to complete our survey and make a difference:ipsos.uk/RAIRDAsurvey20… LUPUSUK 💙 Vasculitis UK - In memory of John Mills MBE 💙💚 SRUK | Scleroderma & Raynaud's UK #BSSA #PatientCare #RAIRDaware

excellent BSR network and celebratory event between #patient organisations and #BSR24 RAIRDA LUPUSUK 💙 ARMA

Great to be here at #BSR24 with our RAIRDA colleagues SRUK | Scleroderma & Raynaud's UK LUPUSUK 💙 Vasculitis UK - In memory of John Mills MBE 💙💚 @Sjogren’sUK Please come and visit our stands

A good first day at #BSR24 😊 Wendy Diment LUPUSUK 💙 EATC for Children

Here's a 'hello' from some of the other charities at The British Society for Rheumatology Conference BSR #BSR24 The interest in their work from the delegates here is really wonderful.
SRUK | Scleroderma & Raynaud's UK
Versus Arthritis
LUPUSUK 💙
NRAS
NASS
Vasculitis UK - In memory of John Mills MBE 💙💚
CCAA - Kids With Arthritis (JIA)

We are pleased to be at #BSR24 today, where our CEO Caroline gave a talk on “The one thing I would like my rheumatologist to know” 😊

BSR #LUPUSUK #LupusAwareness

Good to be here at #BSR24 💜EATC for Children LUPUSUK 💙

The 'Living with lupus in 2024' survey will be closing very soon! Lupus Europe

Your participation will help to refine understanding and improve treatments and support for #lupus .

🔗Complete the survey here: surveylegend.com/s/5h8u