Stupid FB algorithm keeps showing me pages of bees and wasps right now. 🐝⛔

We know through multiple scandals that those affected voices can be dismissed and gaslit for decades.
Yet when scrutiny is finally applied it seems unthinkable to not be on the side of the silenced.
Systemic self-interest is very real & very powerful.

Update. After several more attempts to get back in the bathroom we found the queen barely alive crawling along the dining room carpet.

Or a queen. There is a chance this isn't the same queen and she is still trying to find a way back in.

It's been an odd day. ⛔🐝

Yes please to this campaign 🪑

I can hear buzzing everywhere now 🫣🐝

Update: the queen is persistent and possibly has magic powers.
She managed to get back into the sealed bathroom, discovered by me with screams heard by husband's work colleagues on his zoom call. Then had her trapped in a sealed plastic box which she managed to escape from...🐝

Fun morning. Husband had to extract a wasp's nest from behind our bathroom blind today. Luckily it was still in the early stages.

House is now hermetically sealed for the next few days to prevent retribution. ⛔🐝

Have you already spotted #UniteToFight2024 in press articles?

Let's collect them here !
👇👇👇

Startups that either are or have potential to enable excellent data collection from #MECFS & #LongCovid patients *at home*, to power wider research:

💙Visible - biometrics & symptom tracking
🧬Sano Genetics - genetic testing
🩸ImYoo - blood-based multiomics
🫄

When I was diagnosed with Long C0vid, ME and POTS the NHS was not there for me when I needed it.

It falls to Labour to make sure the NHS is there for you when you need it.

❓Will #Streeting ensure effective treatment for the 2 million with Long Cvd❓

Last chance to vote!

New research published by ​a  #UCSF / #Harvard team provides the ​strongest evidence yet ​that the #COVID_19 virus can persist for months ​to yrs after infection. ​Employing an ultra-sensitive blood test, the team found that proteins ​m​ade by the virus were still present​​ for up

CHOOOOON! 😍

#pwME #pwLC I just listened to an episode of Pod Save The UK and they asked for listeners to write in with examples of 'heroes' - people who are making change, doing radical things, maybe aren't getting enough attention in the press. #unitetofight2024 ? @TheChronicCollaboration ?

Looking to speak to people currently on PIP benefits who are concerned about how the government's proposed changes will impact them #journorequest #pip #disabilitybenefits

I’m getting braver at sharing my story (and feel a bit nervous sharing this one!) - for this #WorldMEday , Daniel Moore held safe space for me to talk about the harm inflicted on me from GET, CBT, and brain-retraining.

These practices for MECFS must stop.
#GlobalVoiceForME

This is fantastic work. It’s something our charities should have done but haven’t. Well done Izzy. Really well done. Lovely to see familiar faces on there too.

Hello #PwME can anybody help me with some figures? I'm trying to find a good summary of the amount spent on research into #mecfs in the UK compared with other chronic illness. A while ago I saw a handy summary but now I've lost it!