Reflecting on all of the incredible advocates we met this weekend. Thank you for sharing your experiences, stories, and hugs with us. Hopefully all the attendees and FSIG are taking a well deserved rest day today!

Today is #WorldSarcoidosisAwarenessDay! Our sarcoidosis program manager J.P. created this video to thank the sarcoidosis community and our foundation partners: @StrongerThnSarc, @SarcofI & @Sarcoid_Network for helping us drive research forward.

What would you share about your journey with #fabry? We're working with FSIG to elevate community voices and we want to hear from you! #fabrydisease #raresnapshot #rarediseasetruths

Thinking of all those who haven't received answers, are fighting to know more, and deserve more options #UndiagnosedDay

Last week a few of our team members attended the Global Genes RARE Drug Development Symposium! We had a fantastic time meeting industry members and patient advocates who are all on a mission to bring treatments to the rare disease community.

Ahead of #WorldSickleCellDay this Sunday, advocates Wunmi Bakare (Wunmi Bakare) and Teonna Woolford (SickleQueenT) describe the details of their days and the drive behind their work. allstripes.com/blog/an-inside…

#wewillremainvigilant

Grateful for our ambassadors who share their stories.

On #NationalNonprofitDay, we want to thank the nonprofits that support & advocate for those affected by rare disease. We are grateful to work closely with many of these organizations and are committed to continue supporting their important work. #RareDisease #PatientAdvocacy

Back-to-school season can feel overwhelming for rare disease caregivers. To help make things a little easier, we created a basic explainer about the differences between IEPs and 504s. allstripes.com/blog/iep504-ra…

Check out our Director of Epidemiology Nelson Pace, PhD with our 8-foot-tall research poster on treatment patterns for depression and anxiety among patients with #ProgressiveSupranuclearPalsy in collaboration with CurePSP! #ICPE2022

We created this resource to highlight the differences between CLOVES & Proteus. If you are an individual, or a family member of an individual with PROS, and are interested in contributing medical history to advance new treatments, learn more at allstripes.com/pros

We spoke to Dr. Chapman about her ongoing work to advance research and treatments for people living with MMA & PA, including through the AllStripes and HemoShear JUMP study. allstripes.com/blog/it-was-a-…

I appreciate this is virtual and FREE. Registered and looking forward to the discussion on Monday.

At AllStripes, our mission is to unlock new treatments for people affected by rare disease, and we're always celebrating advancements in the rare disease community and applauding the hard work of the stakeholders and families involved.

.AllStripes, HemoShear & Organic Acidemia Asn are working together to power urgent research into MMA and PA.

Halloween can be a challenging holiday for children with disabilities. Here are some tips on picking out costumes, preparing for Halloween night and ways for everyone to be inclusive: healthblog.uofmhealth.org/lifestyle/tips…

Grateful for you and your voice @Citywithchair

In an article for our Staff Story series, our Chief of Staff, Aditya Shah, shares the tricontinental journey his family went through to receive a Rett syndrome diagnosis for his daughter, Lila. allstripes.com/blog/from-ital…

Kathy is an Ambassador for the AllStripes #PropionicAcidemia research program. If you are a person, or a family member of a person with PA, and are interested in contributing medical history to advance new treatments, learn more at allstripes.com/pa