David Taylor Tammy Moore I will be gone soon and you will keep on milking the als cow, along with calaneet and @Lance4good . but rest assured that karma will get you when you least expect it . Patrick Nelson

.BrainStorm C Lebovits "BrainStorm shares the community’s sense of urgency, and we communicate when it’s possible to do so responsibly." 1/26 2146 DEAD "...immediately after the (peer review) is in print, we will speak to our plans for BLA filing." 11/15 3298 DEAD #TALKSHIT

One of the hardest things of #ALS is knowing that every day you get worse. There are no days ahead that your physically going to get better. #EndALS #everypointmatters Dr. Robert M. Califf

#als has won I m waving the flag. I feel so horrible. Every fiber og me is destroyed I m ready t to die I m ducking the life. Out of my family

#als has destroyed me. I lost everything we even had to get of our dog. How can I die. I m a usrleee piece of shit. No dad or husband I have no control of my body

I won’t. Good night moon Brian Wallach Sandra Abrevaya Steve Gleason - "Live Impossible"

Got my peg tube it. I hate it it hurts like hèll I cànt keep food do

Keanin Loomis ALS Canada Mashkawizii ALS is an important cause but ALS Canada is a charity scam who only helps its healthy executives and employees. Money raised for them is money wasted. It does not improve the lives or outcomes of Canadians dying from ALS.

Sandra Abrevaya Chris Snow Kelsie Snow Chris had this fortunate outcome because he has a genetic marker 99% of us do not have & which has over 30 years of research behind it. This allowed him to get a treatment which slowed his progression very early in his disease. There’s no way to follow this w/o a time machine.

NU-9: "we hope to start with healthy volunteers in a Phase 1 clinical trial early in 2023,” A Phase 2 clinical trial in people with ALS may begin in early 2024. “It is a long process — POSSIBLY 10 TO 12 YEARS! alsnewstoday.com/news-posts/202…

Sean Mino Another promising trial that won’t be available to most of us #pals while we are still alive. It’s disheartening for me to read hope in the future.

What hurts the most is I dying to be a dad. There are so many dads that could care less about their kids. #als kills #fathers U.S. FDA please help us be #dadd

Her name was Hanna. Hanna Lambert. Hanna needed #whateverittakes to be done. Hanna is the reason we fight for #AMX0035, Hanna is the reason we fight for #Nurown. On 10/17/2017, Hanna lost her battle with #ALS. And at 17 years old, there was nothing that could be done.

Grant W Smith Good for u I m ready to die only 11 months after dx

I need help dying my care team ignores me I a burden to my family. I need MAID my state does not have it pleasè help me

Can I go to another state to get M A J D services I can’t live like this #als fam please help

The only real ALS Twitter account is Derek Koval. Raw. Brutal. Honest. No bullsh*t. If Derek has an evil twin it surely is Brian Wallach

I sometimes wonder if there are too many #ALS " non-profits" and if their funds would be put to better use funneled into one common interest instead of spread a hundred different directions?