We're raising awareness of a critical issue in NICE's appraisal process

Today MND's in the firing line, tomorrow it'll be another disease. Join us & urge NICE to address this & work w/Biogen to bring tofersen to people w/ SOD1-MND in the UK

Open Letter: myname5doddie.co.uk/whats-on/artic…

We're tagging other charities that support research to ensure that they're aware of this issue, which could affect them too:
Cancer Research UK Policy MND Association Dementia UK Parkinson's UK British Heart Foundation Diabetes UK Alzheimer's Society Prostate Cancer UK Teenage Cancer Trust The Brain Tumour Charity 40TUDE LifeArc

Thanks for having us! And looking forward to Guernsey tonight ☺️

Great evening at the club with @jilladouglas & @gallagheruk colleagues warming up for Siam Cup, thanking sponsors for their support in 23/24 & raising £1,700 for 🇯🇪 branch of MND Association

Is anyone experiencing problems downloading The Times and The Sunday Times crossword clues this morning 🤔

We're sad to hear of the death of James Clarke & our thoughts are with his friends & family. James was a great supporter of ours & a Doddie Champion too.

His efforts to drive MND research were tireless & he accomplished a huge amount.

Full statement:
myname5doddie.co.uk/whats-on/artic…

Hi Jill Douglas 20 women are climbing 24 Peaks in 24 hours with no sleep fundraising in support of My Name'5 Doddie Foundation
Over £22,000 raised already with 6 weeks to go.

Please retweet and share. Thank you 💙🥁🗻🥾

#MND #mndawareness

We're proud to announce a partnership with Matt Hampson to support people with MND to access world-class facilities at the Get Busy Living Centre

The opening event was also attended by Ed Slater who is a great friend of both charities 🙌

Full story:
myname5doddie.co.uk/whats-on/artic…

It takes a fantastic team of professionals to produce our ITV Snooker coverage, and as our season end approaches, a big shout out to each and every one of them 👏👏👏👏

A very happy birthday to great friend to Doddie and the Foundation Kenny Logan 🥳

Kenny is tireless in his support of the MND community and, alongside his team at Logan Sports Marketing, has been a key cog in the Foundation's work since our inception.

Any chance of a retweet Nick Mullins Ben Kay Stuart W Hogg David Flatman Emily Scarratt Austin Healey
Jill Douglas Martin Bayfield Nans Ducuing Andrew Cotter Sarra Elgan Easterby Sarah Hunter Brian Moore for our MND fundraiser in Bordeaux linkedin.com/posts/grant-bo…

Happy 30th BBC Radio 5 Live so many memorable moments but spending two months in Oz for RWC 2003 stands out, and British & Irish Lions 2005 NZ an absolute privilege alongside Invers, Ian Robertson, Alastair Hignell Rob Andrew Alison Rusted & Ed Marriage

We share the MND community's anger & frustration at NICE's decision to appraise tofersen through the STA route, meaning it's unlikely the drug will be approved for use in England & Wales.

We will take action on behalf of the community.

Full statement 👇
myname5doddie.co.uk/whats-on/artic…

Always an honour to represent My Name'5 Doddie Foundation and thanks to Department for Science, Innovation and Technology Alzheimer’s Research UK and all involved with the Dame Barbara Windsor Dementia Mission for including us in their Downing Street event. Look forward to exploring how we can work together.

As a national group of MND healthcare professionals, patients and MND charities we have written to NICE requesting an urgent review of their decision about Tofersen. NICE #MND UK MND Research Institute UK MND Clinical Studies Group MND Association mndcsg.org.uk/#h.vl5d4roawb92

Take a bow Dame Laura Kenny always delivered and entertained, what a champion! You’ve inspired so many youngsters and it won’t be the same without you 👏👏👏👏😌

Incredibly proud to showcase some of the vital research we fund with our new research portfolio page 🔬

My Name’5 Doddie has committed over £11M to research – a figure that'd make Doddie proud as we work to fulfill his legacy of a World Free of MND
myname5doddie.co.uk/research/our-r…

Busy and really enjoyable couple of days in Dubai with @gallagherglobal colleagues for our inaugural conference here.

I miss you and you haven’t even left. Liverpool FC #Klopp

Very much looking forward to the 6N getting underway - and what a way to kick it off with a trip to Marseille 🇫🇷👏👏great to be part of this team.