Infact - Independant Fetal Anti-Convulsant Trust
@infactuk
Infact are the registered Trust & National Campaign Group representing every affected person in the UK harmed by Sodium Valproate and other AEDs in Pregnancy
ID: 970976504971710465
http://www.infactuk.com 06-03-2018 10:56:53
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An avoidable man made tragedy just waiting to happen. NOW will the @mhra Royal College of General Practitioners & Royal Pharmaceutical Society do what's needed!! Infact - Independant Fetal Anti-Convulsant Trust Emma Murphy (INFACT) βοΈπππ¦ look forward to action not words!!
Emma Murphy (INFACT) βοΈπππ¦ Janet Williams MBE INFACT Campaign Infact - Independant Fetal Anti-Convulsant Trust @BrineMP Health and Social Care Committee Lucy Allan Julia Cumberlege Paulette Hamilton MP Well done, Emm and Jan. Thanks to all supportive Parliamentarians and Julia Cumberlege I do hope that Marie Lyon will be invited to a separate hearing once the legal formalities are out of the way. #redress for all injured by #primodos #valproate and #mesh is imperative
Emma Murphy (INFACT) βοΈπππ¦ Janet Williams MBE INFACT Campaign Infact - Independant Fetal Anti-Convulsant Trust @BrineMP Health and Social Care Committee Lucy Allan Julia Cumberlege Paulette Hamilton MP Well done Emma and Janet for speaking so passionately, you did yourselves and your family proud today, has you have done every day youβve advocated for them x
#compensationforvalproate #valproatecrisis Huge thanks to LΓse McNally ITV Granada Reports @ITVGranadaGamal for featuring our Campaign for justice for thousands of #valproate families Janet Williams MBE INFACT Campaign Infact - Independant Fetal Anti-Convulsant Trust
Such a fabulous Xmas present π The Times and The Sunday Times Shaun Lintern Janet Williams MBE INFACT Campaign Infact - Independant Fetal Anti-Convulsant Trust #Timeshonourslist
The team here are delighted founders Emma Murphy (INFACT) βοΈπππ¦ & Janet Williams MBE INFACT Campaign have been recognised by The Times and The Sunday Times in The Alternative Honours List 2022. Huge congratulations to them both thetimes.co.uk/article/alternβ¦
Yesterday in a letter to the Health Minister and Patient Safety Commissioner we Janet Williams MBE INFACT Campaign Infact - Independant Fetal Anti-Convulsant Trust requested urgent intervention from the Government Shaun Lintern #valproatecrisis #babieslivesmatter #patientsafety #informedchoice
Today we Janet Williams MBE INFACT Campaign Infact - Independant Fetal Anti-Convulsant Trust have written to the Health Select Commitee Health and Social Care Committee WinchesterMP about the lack of action with regards Redress for Babies, children & adults disabled by #valproatecrisis Department of Health and Social Care #compensationforvalproate
We Janet Williams MBE INFACT Campaign Infact - Independant Fetal Anti-Convulsant Trust have submitted an FOI to MHRAgovuk MHRA Meds Safety as to there reasoning behind the new guidance with #Valproate and the Pregnancy Prevention Programme #valproatecrisis #compensationforvalproate
Clarity : We Janet Williams MBE INFACT Campaign Infact - Independant Fetal Anti-Convulsant Trust have NEVER called for #Valproate to be banned, and as evidenced in the meeting do share the same concerns of the 2 consultant prescribing SUDEP Action All regulatory decisions & responsibilities lie solely with MHRAgovuk
Infact - Independant Fetal Anti-Convulsant Trust Emma Murphy (INFACT) βοΈπππ¦ worked 10yr with many Govt bodies to better warnings, with NICE to update guidance, the EU Medicines Agency & @mhra towards the PPP for Valproate & the World Health Organization (WHO) to update the #ICD11 for diagnosis & Essential medicines list for guidance worldwide.
We Infact - Independant Fetal Anti-Convulsant Trust has had input into the Condition Insight Report for the benefit system, played a huge part in the Review Tweets & now work towards compensation with Department of Health and Social Care Maria Caulfield & Patient Safety Commissioner Let's not forget the disabled by #valproatecrisis
Infact - Independant Fetal Anti-Convulsant Trust Janet Williams MBE INFACT Campaign Proud to be nominated for βCommunity Organisation for Disabilityβ the only active Charity in the UK supporting families both here and worldwide that now live with disabilities as a result of #Epilepsy meds taken in Pregnancy National Diversity Awards
Itβs not been βunderestimatedβ the regulators have known since licensing in 1973 the harm #valproate would cause to babies,yet they PURPOSELY hid this information & continued to do so until we Janet Williams MBE INFACT Campaign Infact - Independant Fetal Anti-Convulsant Trust started our campaign Itβs a Man made scandal The Pharmaceutical Journal
"The estimated 20,000 victims of valproate born to female users exist primarily because information has been consistently withheld since licensing in 1972. We see this latest revelation as further regulatory failure and evidence of harm" - Emma Murphy (INFACT) βοΈπππ¦ 6/6 thetimes.co.uk/article/3bde7cβ¦
#valproatecrisis Janet Williams MBE INFACT Campaign Infact - Independant Fetal Anti-Convulsant Trust Shaun Lintern Patient Safety Commissioner Maria Caulfield Jeremy Hunt Steve Barclay Cat Smith MP Caroline Nokes Christian Wakeford MP Rosie Duffield MP Liz Twist MP WinchesterMP Sharon Hodgson David Linden Ben Lake AS/MP thetimes.co.uk/article/men-onβ¦
#valproatecrisis Quite a catastrophe donβt you think ? MHRAgovuk Sanofi #Fetalvalproatespectrumdisorder #FVSD #Autism #BABIESLIVESMATTER The Study should be released immediately βΌοΈβ οΈ Janet Williams MBE INFACT Campaign Infact - Independant Fetal Anti-Convulsant Trust Catherine Cox π warren matthews Lisa Boothman LadyPZander