Today marks a breakthrough for the #WHIMsyndrome community with the #FDAApproval of a therapy that targets the underlying cause of WHIM syndrome. Thanks to the patients, investigators, the FDA, & our #X4tizens for making this historic milestone a reality! brnw.ch/21wJhah

April is #PrimaryImmunodeficienciesAwaremeness Month. PIs are a group of 450+ rare, chronic conditions in the body’s immune system doesn't function correctly. Individuals with PIs are more susceptible to infections. Learn more: bit.ly/30VwJMZ Immune Deficiency Foundation

Last week, we visited #CapitolHill with more than 80 advocates from the #PIcommunity to make legislators aware of #PrimaryImmunodeficiency and promote policies that ensure a healthier day, every day. Thank you to everyone who participated!

Thank you so much to 💖ironmouse😈VSHOJO💖 and the entire streaming community for the incredible support you've shown the primary immunodeficiency community. We're so grateful!

Data from our 2023 National Patient Survey shows that respondents who were diagnosed with an #autoimmune condition before they were diagnosed with #PrimaryImmunodeficiency were more likely to wait 10+ years for their PI diagnosis: bit.ly/3UbWBiU.

This World PI Week, @info4pi and Immune Deficiency Foundation are focused on promoting the quality of life for people with PI, early diagnosis, availability, and access to treatment and care worldwide. Let's raise awareness, spread hope, and support those living with primary immunodeficiency.

Join the many patients, policymakers, healthcare professionals, researchers, journalists, company representatives, and other partners that come together this week to shine the light on what living with a PI means and how to deliver change. #WorldPIWeek #MedTwitter

Today is the third day of #WorldPIWeek ! In honor of this, change lives this #PIAwarenessMonth by contributing to the Immune Deficiency Foundation. By doing so, you will support resources for those #LivingWithPI , including advocacy and research efforts: bit.ly/3PGcf4x

It's World PI Week! This week is dedicated to educating health policy-makers, schools and families, and the public about primary immunodeficiencies (PI) to drive the earliest possible diagnosis and optimal treatment. Join us in raising awareness of PI this week! #WPIW

We're so grateful for all of our volunteers who allow us to continue supporting this community! Whether you've visited a local plasma center, lent a caring ear to another, written to a legislator, supported an event, or managed a local support group - thank you!

“Public health systems & private insurers must remove affordability barriers & administrative hurdles for antiviral therapies.” In The Daily Reflector, Lynn Albizo, chief of public policy, argues for affordable copays for #COVID19 antiviral therapies: bit.ly/3UmnXDZ.

VTuber @Ironmouse shares her story about using her platform to help raise awareness for plasma donation to over one million of her followers and how she raised over $100,000 for @idfcommunity! #plasmatherapy #ironmouse
bit.ly/4cF0l4M

A #PrimaryImmunodeficiency diagnosis changes lives, and your support will make an impact! When Gary was undiagnosed, he experienced frequent hospital visits and recurring infections, but after receiving treatment, he is able to feel better. Donate today: bit.ly/3TCqTuI

Connor Immune Deficiency Foundation Reminder that Primary Immunodeficiency Diseases (PIDD) are chronic illnesses causes by hereditary or genetic defects that make the immune system not function properly. For more information, visit primaryimmune.org.

We're excited to attend the Clinical Immunological Society annual meeting May 1-4 to connect with providers across the U.S. to discuss clinical immunology, primary immunodeficiency (PI) diagnosis, research, and treatment! Stop by and say hi!

Huge congratulations to Connor and his community for raising over $1 million for the Immune Deficiency Foundation during his 3rd Cycleathon across Japan.

Thank you @citizensvoice for raising awareness about the thousands in PA who rely on plasma treatments. bit.ly/3JiRpV6

We cannot express how grateful we are. Absolutely blown away. Thank you so much for your support and dedication to the PI community. You all just changed so many lives.

Connor Words cannot express how much this event means to me. Thank you so much Connor and everyone who participated. I am so proud of you. You have gone above and beyond to help people like me. Thank you so much.

I am one of the many people living with PI and today has been such an overwhelming day. Thank you all so much from the bottom of my heart for helping us raise over 1 million dollars for the Immune Deficiency Foundation . Thank you Connor for always working so hard for us. DONATE PLASMA.💖