Hopeful(@Hopesaxons) 's Twitter Profileg
Hopeful

@Hopesaxons

Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection

ID:1299432666236846087

calendar_today28-08-2020 19:44:36

117,8K Tweets

1,7K Followers

2,4K Following

Dr Claire Taylor(@drclairetaylor) 's Twitter Profile Photo

Pete 😷 #COVIDisAirborne It’s actually tragic that the people of this country celebrated β€˜freedom day’. It’s the most elaborate illusion ever pulled off. That Covid was over, it wasn’t airborne and everyone could celebrate as normal. when you look at the death&disability since it’s v sad.

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tern(@1goodtern) 's Twitter Profile Photo

PANS/PANDAS is responsible for so much childhood heartache. More doctors and healthcare professionals and parents and carers and teachers need to know πŸ’”πŸ‘‡

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Claire Cooper(@ClaireC17610645) 's Twitter Profile Photo

This condition if recognised and treated early enough can make a huge difference to a child's long term prognosis and give the their childhood back. It impacts not only the child and their education but their families and their lives too.

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Susannah H(@firebug70) 's Twitter Profile Photo

Listen to your intuition, don’t let anyone dismiss your concerns.. thank you tern for highlighting the importance of recognising the symptoms

Listen to your intuition, don’t let anyone dismiss your concerns.. thank you @1goodtern for highlighting the importance of recognising the symptoms #Pans #Pandas
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Gillian Mathewson(@gmathewson1) 's Twitter Profile Photo

PANS PANDAS UK Places going fast on todays training on supporting children with PANS and PANDAS in education settings... book NOW to avoid disappointment x.com/PandasPans/sta…

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Joanne Holloway(@CharmingAngelCo) 's Twitter Profile Photo

I urge anyone in education if they have capacity today to join this training to support children with debilitating illnesses These are horrific conditions that greatly impact education and attendance. Awareness is key to correct understanding and support

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Prof Rhys Thomas MBBS MD FRCA(@rhysthomas) 's Twitter Profile Photo

Def this and Myocarditis. Children are not safe until we take Air Hygiene seriously just like we did for water and Cholera.

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Rapscallion Cat(@CatRapscallion) 's Twitter Profile Photo

Hopeful tern Exactly. It’s really worrying. AE patients are missed all the time too & often end up sectioned due to psychosis & treated inappropriately with antipsychotics.

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Julia Marie(@julia_doubleday) 's Twitter Profile Photo

So what happens after 5 infections? 10? 20?

Asking for millions of kids who will have been infected a dozen+ times before they reach adulthood

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Laura McCall(@mrsmacbiogal) 's Twitter Profile Photo

tern I watched a love one go through this when he was 3 or 4. He seems to have fully recovered (an adult now) but there were several months in which he had bouts of terrifying intrusive thoughts. It would occasional resurface t/o childhood with new Strep infections.

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joanne gill(@joanneG007) 's Twitter Profile Photo

tern Thank you for posting. I wished I'd trusted my intuition with our son. 3 yrs in absolute crisis. No help from anyone! professionals blaming the lockdowns and . Found out about and 3 months of treatment. Our son said, 'It feels like I'm back.'

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Moleculera Labs(@MoleculeraLabs) 's Twitter Profile Photo

Teens developed paranoia, suicidal thoughts, brain fog after COVID-19.

Anti-neural antibodies may attack brain tissue in pediatric patients who had been infected with SARS-CoV-2, resulting in neuropsychiatric symptoms, according to study authors.
bit.ly/3qrII2H

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Hopeful(@Hopesaxons) 's Twitter Profile Photo

SamπŸŸβ€πŸŒˆπŸ˜·πŸŒπŸ‡΅πŸ‡Έ Andrew Gregory Our daughter was referred to β­οΈβœ¨πŸ’™CAMHS NetworkπŸ’™βœ¨β­οΈ in 2019. They had little understanding of . We had to go private to get a diagnosis and treatment - abx & anti inflammatories.
It has taken 5 yrs and for 2 yrs of those she was misdiagnosed with
It has been πŸ’”

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Panda Mama(@PandaMama2024) 's Twitter Profile Photo

tern Our child was almost medicated for epilepsy, MRI/EEGs clear so I queried pandas, things turned somewhat unprofessional to say the least, then we got fobbed off to a psychiatrist, I got a 2nd medical opinion regarding pandas symptoms, abx for strep. Pandas symptoms gone by day 4!

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