Hopeful (@hopesaxons) 's Twitter Profile
Hopeful

@hopesaxons

Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection

ID: 1299432666236846087

calendar_today28-08-2020 19:44:36

122,122K Tweet

1,1K Followers

2,2K Following

PANS PANDAS UK (@panspandasuk) 's Twitter Profile Photo

πŸ“° Exciting Coverage in The Economist! 🌟 In this insightful piece, journalist Natasha Loder highlights PANDAS as a key example of the growing body of research supporting the link between infections and neuropsychiatric symptoms. πŸ”— economist.com/science-and-te… #PANS #PANDAS

Susannah H (@firebug70) 's Twitter Profile Photo

Have you noticed unusual symptoms in your child, or children you teach, post viral or bacterial infection? Consider #Pans #Pandas #edutwitter #PansPandasHour timely diagnosis and treatment is much more effective.

Have you noticed unusual symptoms in your child, or children you teach, post viral or bacterial infection? Consider #Pans #Pandas #edutwitter #PansPandasHour timely diagnosis and treatment is much more effective.
Hopeful (@hopesaxons) 's Twitter Profile Photo

My daughter a year ago today. Since March she’s had difficulty walking - often using a wheelchair. She had Covid, EBV & Strep. The hospital diagnosed FND. In the past 2 months BTs showed high Strep (AntiDNASE 1020) & low Vit B12 PANS PANDAS UK Long Covid Kids - #LongCovidKids #PansPandasHour

My daughter a year ago today. Since March she’s had difficulty walking - often using a wheelchair.
She had Covid, EBV & Strep.
The hospital diagnosed FND. 
In the past 2 months BTs showed high Strep (AntiDNASE 1020) & low Vit B12 
<a href="/PANSPANDASUK/">PANS PANDAS UK</a> <a href="/LongCovidKids/">Long Covid Kids - #LongCovidKids</a> #PansPandasHour
Jason I (@jason_isaia) 's Twitter Profile Photo

Hopeful PANS PANDAS UK Long Covid Kids - #LongCovidKids If she cant walk post viral its clearly not FND and its some horrible post viral syndrome like Long Covid or MECFS if she has a symptom called PEM. If she does have PEM Have her see an MECFS known doctor only. Dont risk more doctors with no fcking idea. If she has PEM, join the

The Telegraph (@telegraph) 's Twitter Profile Photo

πŸ‡¬πŸ‡§ British man breaks 38-year record swimming across Lake Geneva in 22 hours – fuelled on doughnuts Neil Gilson from North Devon shaved 33 minutes off the long-standing record set by Swiss Olympian Alain Charmey in 1986 Read the full story ⬇️ telegraph.co.uk/swimming/2024/…

πŸ‡¬πŸ‡§ British man breaks 38-year record swimming across Lake Geneva in 22 hours – fuelled on doughnuts

Neil Gilson from North Devon shaved 33 minutes off the long-standing record set by Swiss Olympian Alain Charmey in 1986

Read the full story ⬇️
telegraph.co.uk/swimming/2024/…
PANS PANDAS UK (@panspandasuk) 's Twitter Profile Photo

Many thanks to SEND_Network for promoting much needed awareness of PANS and PANDAS across the education sector and many thanks to nasen for their kind permission to share. send-network.co.uk/documents/what…

Hopeful (@hopesaxons) 's Twitter Profile Photo

We recently saw a haematologist who said that he has seen a sharp increase in B12 deficiency since 2020/21. All 3 of my daughters have had #EBV - another trigger. Ruling out B12 deficiency (homocysteine & MMA levels) is so important tern Dr Claire Taylor 𝑫𝒓 π‘΅π’Šπ’ˆπ’‰π’‚π’• π‘¨π’“π’Šπ’‡

We recently saw a haematologist who said that he has seen a sharp increase in B12 deficiency since 2020/21. All 3 of my daughters have had #EBV - another trigger.
Ruling out B12 deficiency (homocysteine &amp; MMA levels) is so important <a href="/1goodtern/">tern</a> <a href="/drclairetaylor/">Dr Claire Taylor</a> <a href="/DrNighatArif/">𝑫𝒓 π‘΅π’Šπ’ˆπ’‰π’‚π’• π‘¨π’“π’Šπ’‡</a>
Linn JΓ€rte (@linnjarte) 's Twitter Profile Photo

A poorly understood condition that unquestionably has seen this sharp increase since the start of the pandemic. The medical community has lots to learn (the need and frequency of injections for one). The updated NICE guidelines and the Club-B12 is an excellent start.

PANDA Mama (@pandamama2024) 's Twitter Profile Photo

Imagine you finally realize what made your child become unrecognisable & it is #medical, can be treated effectively if caught early, but all you meet is...#roadblock #diversion #controversial #PansPandasHour #MedTwitter #InflamedBrain #FamilyMentalHealth #Strep #virus #infection

Imagine you finally realize what made your child become unrecognisable &amp; it is #medical, can be treated effectively if caught early, but all you meet is...#roadblock #diversion #controversial #PansPandasHour #MedTwitter #InflamedBrain #FamilyMentalHealth #Strep #virus #infection
tern (@1goodtern) 's Twitter Profile Photo

"Long Covid inflicts deep scars on the lungs" I see lung damage *everywhere* around me in England. What percentage of people? I don't know. But it's huge.

"Long Covid inflicts deep scars on the lungs"

I see lung damage *everywhere* around me in England.

What percentage of people?
I don't know.
But it's huge.
PANDA Mama (@pandamama2024) 's Twitter Profile Photo

#PansPandasHour PP parents are amazing, awareness is everything. If you are a #nurse #teacher #sports #coach #volunteer #aunt #uncle #cousin #grandparent please read and remember πŸ‘‡πŸ‘‡πŸ‘‡πŸ‘‡

Joanne Holloway (@charmingangelco) 's Twitter Profile Photo

Everything starts with awareness without which the correct treatment can neither be sought or given.Awareness is the key 2 change & with the growth of that awareness resistance 2 change must cease!Further generations should not be allowed 2 succumb 2 #Pans #Pandas #PansPandasHour

Everything starts with awareness without which the correct treatment can neither be sought or given.Awareness is the key 2 change &amp; with the growth of that awareness resistance 2 change must cease!Further generations should not be allowed 2 succumb 2 #Pans #Pandas #PansPandasHour
Hopeful (@hopesaxons) 's Twitter Profile Photo

Children are going back to school this week in the UK. How many of those will have #Covid #Strep infections this academic year & develop #Pans #Pandas? 😞 #PansPandasHour

Jess (@meetjess) 's Twitter Profile Photo

More cases of nervous system condition connected to COVID-19 « Pre-pandemic about 25% of her patients were living with POTS. She said today more than 75% of her patients have been diagnosed with POTSΒ Β» kare11.com/article/news/l…