Hopeful
@hopesaxons
Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection
ID: 1299432666236846087
28-08-2020 19:44:36
122,122K Tweet
1,1K Followers
2,2K Following
π° Exciting Coverage in The Economist! π In this insightful piece, journalist Natasha Loder highlights PANDAS as a key example of the growing body of research supporting the link between infections and neuropsychiatric symptoms. π economist.com/science-and-teβ¦ #PANS #PANDAS
My daughter a year ago today. Since March sheβs had difficulty walking - often using a wheelchair. She had Covid, EBV & Strep. The hospital diagnosed FND. In the past 2 months BTs showed high Strep (AntiDNASE 1020) & low Vit B12 PANS PANDAS UK Long Covid Kids - #LongCovidKids #PansPandasHour
Hopeful PANS PANDAS UK Long Covid Kids - #LongCovidKids I am sorry, itβs heartbreaking whatβs happening to our children. Sending you all hope for better days soon β€οΈ
Hopeful PANS PANDAS UK Long Covid Kids - #LongCovidKids π’ Just shocking. Our poor children. Why are medics so dismissive of the root cause of our children changing so much.
Hopeful PANS PANDAS UK Long Covid Kids - #LongCovidKids If she cant walk post viral its clearly not FND and its some horrible post viral syndrome like Long Covid or MECFS if she has a symptom called PEM. If she does have PEM Have her see an MECFS known doctor only. Dont risk more doctors with no fcking idea. If she has PEM, join the
Mum wants all parents to know about condition that destroyed her daughter's life PANS PANDAS UK mirror.co.uk/news/mum-wantsβ¦
Such a wonderful achievement - thank you Neil Gilson for all you do to raise awareness of #Pans #Pandas π #PansPandasHour
We recently saw a haematologist who said that he has seen a sharp increase in B12 deficiency since 2020/21. All 3 of my daughters have had #EBV - another trigger. Ruling out B12 deficiency (homocysteine & MMA levels) is so important tern Dr Claire Taylor π«π π΅πππππ π¨πππ