When @_GeorgiaHurst was on Patient Stories, she discussed the consequences of ovary removal and gave insight into approaching #genetictesting thoughtfully. Thanks for spreading awareness, Georgia! greygenetics.com/she-with-lynch… #GCchat

🤗

If you want to learn more about #EpidermolysisBullosa, check out our Patient Stories episode with Silvia, who discusses her son's experience living with the condition: greygenetics.com/epidermolysis-… #GCchat #ebawareness #cureEB

We were saddened to hear about Nicky's recent passing, and our thoughts are with him and his family. If you are interested in supporting Nicky's family during this difficult time, you can donate for funeral expenses here: gofundme.com/f/nickyfuneral. #GCchat #cureEB #EBawareness

Do you have a personal story related to NIPS / NIPT or other related genetic testing you’d like to share? Send an e-mail to [email protected]

Can’t get my recommended high-risk colonoscopy screening right now because I don’t have $800 toward a deductible lying around. My grandfather was dx at 29 with colon cancer and both my parents have had pre-cancer polyps in their 40s. Yay, American healthcare. 😑

NYT published an article focused on false positive rates in NIPS/NIPT. The reaction on Twitter from genetic counselors was mostly critical. Listen to the new episode of Genotypecast to hear GCs Eleanor Griffith and Katie Stoll discuss the implications of this article. #GCchat

You can listen to the new episode of Genotypecast discussing the recent The New York Times article here: anchor.fm/genotypecast/e… Katie Stoll Sarah Kliff Aatish #GCchat #NIPT #geneticcounseling #genetalk #medtwitter #genetictesting

THE PATIENT STORIES CLUB IS BACK! This club will allow those interested in #geneticcounseling to engage in conversations between peers, facilitated by a certified #genetic counselor! You can sign up here: linktr.ee/greygenetics #GCchat #genetalk #genechat #pregc

There are still a few spots left in the Patient Stories Club! The first meeting is Monday. You can sign up here: greygenetics.as.me/patient-storie… #GCchat #genechat #genetalk #genetics #geneticcounseling

"There are many incredible medical professionals out there. But the ones I saw failed me when I needed them most," writes Mia Clarke. washingtonpost.com/lifestyle/2022…

If anyone wants a quick link to a petition for a call to NSGC to start taking Requests for Proposals from new firms to lobby the US Government for CMS recognition so that we might be able to turn our attention to lobbying for our patients, it's right here: chng.it/rPSbkmc2WD

My mom’s story has long made me feel weird about my place in the abortion conversation. But, my disability is actually not a weapon against abortion access, like I have been made to believe. It’s an argument for it. My latest for New York Times Opinion: nytimes.com/2022/07/31/opi…

"For diseases like EDS, those illnesses so ignored or misunderstood that patients can barely find a knowledgeable doctor, much less the genetic source of their condition, it may require those with intimate, untapped knowledge — patients themselves — to shepherd science forward."