EhlersDanlos Support I have a question. My daughter and I both have the type III of Ehlers Danlos. Would most of you say you have tried about any and everything to ease the pain?

Random note: I’ve had a few people connect this account to my dogs’ Instagram - I am the handler of @/4leggedsaviors on instagram so that’s why you may recognize some pictures, nothing is being stolen!

Before you look at a wheelchair user with pity, just think of all the hills that you don’t get to roll down at max speed

Let’s play #SpotTheZebra! Look at old photos of yourself before diagnosis. Find where you can see hyperextension and other signs of EDS

How to know your muscles are dysfunctional: “it’s spasming as fast as my heart rate!”

Guess who finally has a phone that works! I’ll definitely be posting more ✌🏻 how has everyone been lately?

The rain is my enemy 😣 so much nerve pain and a massive migraine. Low barometric pressure is just the worst. Does it rain a lot where you live, and how do you cope with it?

Would any followers be interested if this page extended to Instagram? The Facebook group isn’t widely used (if you join, it would be awesome!!) but Instagram seems to be a fairly active site. Let me know!

What is something you never imagined you’d be able to do before this illness? For me, just the thought of sticking a needle into my chest would make me pass out, but now I access my port every week and don’t even flinch. I also wouldn’t expect to casually relocate every joint!

Stay safe out there in the cold! It’s dangerous for healthy people, but our joints, vessels, and nerves will be much more severely affected. Stay indoors as much as possible, and if you go outside BUNDLE UP! Make sure your fingers, toes, ears, and nose are covered as well

Let’s play a game of Physical vs Mental Pain: Which Will Make Me Cry First?

Whaaaaaat when did we pass 2k?! I know I had been inactive but that’s awesome ! Thank you all for building such a great community ❤️

I think my hip decided to go on vacation without telling me because I checked where it’s supposed to be and it definitely isn’t there 🙃

That feeling when something hurts but you never injured it, then you look down and the joint is backwards or sideways

I haven’t been active recently, and for that I’m sorry, but it’s been somewhat difficult with all the turmoil within the EDS community to find a good way to participate in a lot of discussions. I still love and support all you zebras ❤️🦓

Which joint is giving you the most trouble today?