Vote for @DystoniaSociety to win £25’000 #AvivaCommunityFundUk for our support groups! This money would help support our amazing groups, allow us to run localised “living with #dystonia” days & offer local advocacy services. community-fund.aviva.co.uk/voti…/project/view/4-2222

Time to cast your votes. We have a chance to win up to £25’000 with #AvivaCommunityFundUK for our amazing support groups & help them continue to provide a vital role in helping people with #dystonia in the UK. Please share this post! community-fund.aviva.co.uk/voti…/project/view/4-2222

#Fundrasing Special well done to Mark Hetherington who successfully completed his Carlisle Triathlon & raised £870 for #dystonia Thank you Mark for #doingfordystonia Would you like to fundraise for us? Whether it's a Marathon, Bake Sale, Skydiving or Triathlon, get in touch.

We are all so proud of Tully Kearney OBE PLY 💙💙

Hope you all have a great #Monday!

We have loads of exciting cycling challenges coming up in 2019. Vietnam, Rome, Paris, Amsterdam, UK & more. If you would like to complete a cycle for #dystonia & sign-up to one of these events then please get in touch. dystonia.org.uk/Pages/Events/C…

Hmmm Dystonia Toni @CEOdystoniaUK and Dayna Ferdinandi (She/Her) along with Monica Benson @dystoniaeurope are enjoying Halloween leftovers at a planning meeting. Big news coming soon.

Bethany Phelps has been successful with a ballot for #londonmarathon2019 & has chosen to use her place to raise funds for #Dystonia. If you or anyone you know has a ballot and would like to join #TeamDystonia’ we would love to support you and cheer for you on the day.

Vote for @DystoniaSociety to win £25’000 #AvivaCommunityFundUk for our support groups! This money would help support our amazing groups, allow us to run localised “living with #dystonia” days & offer local advocacy services. bit.ly/2qiDmGR

Whatever you're up to, @DystoniaSociety and I would like to wish you a #HappyBonfireNight

@DystoniaSociety funding our much needed work across the UK with everyone battling #dystonia There are some great prizes just before Christmas, if you would like some tickets please get in touch and help us to make a real difference. Thank you

Excited for my interview with BBC Manchester talking about representing Manchester at the forthcoming GreaterSport awards - and all things sport!

From me and everyone at @DystoniaSociety Happy #WorldKindnessDay We adore every single one of you! Please be kind to yourself and others 365 days a year! An act of kindness, big or small can make a wonderful difference!

Meeting some hero’s of the NHS with Dayna Ferdinandi (She/Her) #HBAwards18

Come and join the team 😍 together we can have a great day and raise awareness.

Good luck to all Dystonia UK runners in the Hampton Court Half marathon this weekend. We will be cheering you on. If you would like to run for dystonia please check our website for more fab events or tweet me 😊

We have created a facebook group purely for parents and carers of children or young people with dystonia. We recognise the challenges you face are unique & while there many groups for more general discussions this is a safe space for people who are on the same journey. 1/2

Having a fab time at #dystoniaday conference with Milo (the therapet), Jonny and Tim. Think I’m off to catch up with Tully Kearney OBE PLY too after her talk later!

We are live! Our new site has more accessible information, patient stories & the latest news & updates. so we can better support members of our community on their dystonia journey & raise awareness of the condition. Take a look, and explore for yourself! dystonia.org.uk/news/welcome-t…