As parents of children in Hospital, would you prefer to be asked what you feel is best for your child? I am not a parent but I know I would! As parents they spend all... cff.org/CF-Community-B…

This is getting ridiculous! :( breakingnews.ie/ireland/limeri…

Please Please sign this petition! UHL is getting beyond bad!! :( Thank you to Anne Micks for sharing with me facebook.com/IrishDysautono…

*Shakes my head!!... Simon Harris TD, what are you actually doing? or NOT doing as the case may be! Jeebus!! :( :(

*Shakes my head!!! Simon Harris TD, what are you actually doing? or NOT doing as the case may be! ... Jeebus!! :( :( limerickleader.ie/news/home/3737…

Would you try this?? uvaphysicianresource.com/venous-stent-p…

Now these are actual pictures from UHL, an absolute disgrace! :( irishexaminer.com/breakingnews/i…

The Largest pots survey, run in 2015 by MyHeart.Net of over 900 people, really interesting findings. myheart.net/pots-syndrome/…

<3 facebook.com/IrishDysautono…

IrishDysautonomia hello. I made a video about my own experience with POTS Syndrome, and wanted to share it with others living with thos illness: youtu.be/cxNRrTSx37U

this is more of an ANTI WOO WOO Wednesday post, Folks this is SERIOUS, people are dying and it is completely preventable :( So sad :( bbc.com/news/health-47…

Woo Woo Wednesday... Thanks Social Media :( :( :( Folks please be careful and verify what you read about vaccinations, and no... Dr. Google does not qualify as... independent.co.uk/news/health/va…

My sister did an EDS awareness video for her college FYP, I am very proud! Please check it out and let us know what you think :) Thanks Jess McNamara for your hard work <3 vimeo.com/330350991

When we put this diagram together in 2014 this was the situation... 5 years later in 2019 from what I can tell, nothing has changed :( The Diet and Mobility Allowance have still not been replaced and... facebook.com/IrishDysautono…

An utter disgrace! limerickpost.ie/2019/04/20/dis…

ah here!! :o this is officially the worst I have heard recently got to do with the hospitals, OMG! :o This is beyond grim reading! :o irishexaminer.com/breakingnews/i…

Limerick March on May 4th in the city, There are to be a few of these protests around the country. The state of the HSE has just gotten increasingly worse and worse over the last few years and no one wants to take the blame! limerickleader.ie/news/home/3765…

facebook.com/IrishDysautono…

Folks please get in contact with Aoife if you are interested in a new extra support group 💜

Happy EDS awareness month, folks! How are you all keeping during these crazy times?