The ALPHA alert - Exciting new tool from Elizabeth Evans, Prof Shea Palmer & colleagues at Cardiff University to help with the diagnosis of adult hip dysplasia! ✨ #Hypermobility #HipPain #hipsubluxation #hipdysplasia #snapcracklepop

🌍 Engage with EULAR Communities, which work tirelessly to reduce the impact of rheumatic and musculoskeletal diseases (RMDs) and improve the quality of life for those affected across Europe! Watch 👉 pulse.ly/qv7ys0ez4s #EULAR #eularHPR #eularPARE #eularEMEUNET #eularPAED

Shoulder symptoms in hEDS/HSD are common yet significant gaps in knowledge remain. This NEW paper reviews what we currently know about non-surgical interventions like exercise, taping and compression garments. sciencedirect.com/science/articl… First publication for Anna Higo's PhD 👏

The project page about Anna Higo's PhD on the hypermobile shoulder has been updated! A review paper has been published and ethics has now been approved for a survey that will go live soon so watch this space to take part! hedstogether.com/projects/suppo… Anna Higo

The hEDS-START team (Dervil Dockrell Kathryn Berg) are engaging with policymakers on the findings of thier report on the lived experiences of those with hypermobile Ehlers-Danlos Syndrome & Hypermobile Spectrum Disorders in Scotland. Read more here: ed.ac.uk/institute-gene…

Kathryn Berg and I were back in Scottish Parliament today, sharing the results of the hEDS-START study at a round table hosted by Michael Marra MSP, and asking MSPs to commit to the development of a care pathway for hEDS/HSD patients in Scotland. #heds #hsd

🎧Listen to the latest #eularHPR #Podcast! "Remote Care in RMDs". 🗣Listen to our new episode on Spotify👉pulse.ly/xs9vmd9azz 🗣Listen to our new episode on Apple Podcast👉pulse.ly/yvcjun7tsy #EULAR #Rheuma Dr Sarah E. Bennett

Every Last Station JELLY HEAD Campaign for Level Boarding Louise Haigh This is the Matterhorn Gottardbahn railway in Dissentis, Switzerland. 1,130m above sea-level. Do you what they did? - Instigate standards - bought the new trains - adjusted the platforms ✅✅✅

Thursday 3rd October 2024 Thought Of The Day 1 From Morden Underground Station Support #DysautonomiaAwarenessMonth

Do you have hypermobile #EhlersDanlosSyndrome or a similar diagnosis? Do you have issues with your shoulder? Are you an adult living in the UK? Please complete this survey to let us know your experience & if you might want shoulder support or not 😊 app.onlinesurveys.jisc.ac.uk/s/coventry/the…

🌐Explore our #WAD2024 infographic on accessing accurate #RMD information! ✨Remember, knowledge is power! Learn more on our dedicated webpage: pulse.ly/jkknj1ypfm #WorldArthritisDay #RMDs #EULAR #KnowledgeIsPower

Check out Anna Higo's blog with some fantastic news! Anna Higo In the blog she summarises a recent publication on shoulder treatments for hypermobility & launches a NEW SURVEY! Have a look, share with others and take part 😁❤ THANK YOU 🙏 hedstogether.com/annas-blog-abo…

Many thanks Dr Alexandros Mitropoulos, it was fascinating to hear all about your new research! 😀 #EULAR #EULARHPR #SystemicSclerosis #fatigue

#PARE2024 officially kicks off with a welcome from #EULAR #PARE Chair Peter Boyd and EULAR President Daniel Aletaha. Keynote from EULAR Treasurer @LGossec on collaborative research through the lens of the past, present and future. EMEUNET EULAR Young PARE

🚀Join us for our "How to integrate the patients' perspective in research? The value of the updated EULAR recommendations for collaborative research" webinar! 💻Wednesday, 05 February, 2025, 18:00 -18:45 CET Register here👉 pulse.ly/fa0zmvogio #EULAR #Rheumatology

Our survey on hypermobility and the shoulder is closing soon. This is a final push so please do take part and/or share! :) Participants need to be 18+ in UK with a hypermobile diagnosis like hEDS, HSD, EDS type III, EDS-HT, JHS. Find out more here app.onlinesurveys.jisc.ac.uk/s/coventry/the…

Fabulous new open access work by Helen Eftekhari Dr Gemma Pearce Sophie Staniszewska and Kate Seers in partnership with hEDStogether and PoTS UK 🎉🥳The first study to provide an in-depth understanding of the experiences of both people with #POTS and health professionals!!🌟

Pob lwc to Ospreys Wheelchair Rugby women's team who will be competing this weekend at Nottinghamshire Police and Fire Rescue HQ 🖤 #TogetherAsOne

A pleasure to chat with Fer Estevez-Lopez and Dr Rafa Prieto-Moreno in our latest #EULARHPR #podcast, chatting about the 2024 EULAR Points to Consider for #patienteducation in #physicalactivity & #selfmanagement in #transitionalcare! ✨#pain #HPR #rheumatology

Excited to be the new Editor-in-Chief of Rheumatology Advances in Practice Rheumatology & Rheumatology Advances in Practice Honoured to follow in the footsteps of Prof Richard Watts and Dr Ai Lyn Tan The best way to predict the future is to create it. Join our vibrant community BSR doi.org/10.1093/rap/rk…