Dr Ian Frayling ๐Ÿ‡บ๐Ÿ‡ฆ #LongCovid (@doctor_imf) 's Twitter Profile
Dr Ian Frayling ๐Ÿ‡บ๐Ÿ‡ฆ #LongCovid

@doctor_imf

Past-President Association of Clinical Pathologists, patient, retd NHS. I usually do hereditary cancer. Trustee of @Long_Covid Support. Views my own.

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calendar_today12-01-2015 16:10:22

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Supporting Healthcare Heroes UK (@supportinghh_uk) 's Twitter Profile Photo

We've just published our latest long covid story - Dianaโ€™s Story - Click the link to read all the detail #LongCovid shh-uk.org/dianas-story/

We've just published our latest long covid story - Dianaโ€™s Story - Click the link to read all the detail #LongCovid

shh-uk.org/dianas-story/
Dr Ian Frayling ๐Ÿ‡บ๐Ÿ‡ฆ #LongCovid (@doctor_imf) 's Twitter Profile Photo

๐Ÿ™ I'm the original subject in the first study by Prof Cummings on the effect of #LongCovid on language & cognition. Cummings, L. Int J Language Studies 15(3), 1-24. ISSN 2157-4898 researchgate.net/publication/35โ€ฆ RCSLT ๐Ÿ’™ Systems Immunity Research Institute Long Covid Support ๐ŸŒ

Long Covid Support ๐ŸŒ (@long_covid) 's Twitter Profile Photo

๐Ÿ“ฃ๐Ÿšจ From our charity Advisor Ziyad Al-Aly, MD: โ€œThe world must not turn its back on people suffering from #LongCovid. Long Covid is a global health crisis. Addressing Long Covid is not only a moral imperative, it is an economic imperative.โ€ #ConfrontLongCovid #LongCovidAwarenessDay

๐Ÿ“ฃ๐Ÿšจ From our charity Advisor <a href="/zalaly/">Ziyad Al-Aly, MD</a>:

โ€œThe world must not turn its back on people suffering from #LongCovid.
Long Covid is a global health crisis.
Addressing Long Covid is not only a moral imperative, it is an economic imperative.โ€

#ConfrontLongCovid
#LongCovidAwarenessDay
Dr Ian Frayling ๐Ÿ‡บ๐Ÿ‡ฆ #LongCovid (@doctor_imf) 's Twitter Profile Photo

Re lack of testing capacity in ๐Ÿด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ & premature discharge of elderly. The UK Covid-19 Inquiry should look into what happened to the negotiations with Roche by Gething that fell through. He said then wasn't the time to ask questions. Now is. #WalesLive Long Covid Support ๐ŸŒ Covid-19 Bereaved Families for Justice Cymru

Supporting Healthcare Heroes UK (@supportinghh_uk) 's Twitter Profile Photo

It's #LongCovidAwarenessDay. Why not listen to the latest EBNursingBMJ podcast by two of our trustees - Dr Michaela Barnard and Dr Alison Twycross RN: ebnbmj.podbean.com/e/reflections-โ€ฆ #ConfrontLongCovid #CareForThoseWhoCared

Resia Pretorius (@resiapretorius) 's Twitter Profile Photo

Today is #LongCovidAwarenessDay. My promise to patients who are desperate for acknowledgment and care: we will not stop until we have accessible diagnostics and accepted treatments. #noplaceforminimizers whn.global/scientific/speโ€ฆ

Today is #LongCovidAwarenessDay. My promise to patients who are desperate for acknowledgment and care: we will not stop until we have accessible diagnostics and accepted treatments.  #noplaceforminimizers 

whn.global/scientific/speโ€ฆ
Long Covid Patient Action Group UK (@lc_uk_action) 's Twitter Profile Photo

Dr Ian Frayling ๐Ÿ‡บ๐Ÿ‡ฆ #LongCovid Long Covid Support ๐ŸŒ There was a deliberate, concerted effort on Friday to poison public perception through the media. Even if corrections/retractions are made, the damage is already done. LC advocates don't have journalists in our pockets like these people do. We need scientists/Drs to speak up.

Dr Ian Frayling ๐Ÿ‡บ๐Ÿ‡ฆ #LongCovid (@doctor_imf) 's Twitter Profile Photo

Maybe Vaughan Gething and Welsh Government will now sit up, take notice and do something, such as providing medical Consultant-led #LongCovid clinics. If they don't then they will be discriminating against those disabled by #LongCovid UK Covid-19 Inquiry Long Covid Support ๐ŸŒ

Long Covid Support ๐ŸŒ (@long_covid) 's Twitter Profile Photo

We just want to do a shout-out and say a huge โ€˜thank youโ€™ to our fantastic Trustees & Members who were involved in this work - Ruairidh Milne, Margaret O'Hara, Jo D ๐Ÿ˜ท๐Ÿ’™, Mike Ormerod & Dr Ian Frayling ๐Ÿ‡บ๐Ÿ‡ฆ #LongCovid. We know when you have #LongCovid how much work like this takes out of you, so thank you all.๐Ÿ™

Kelly Kohut (@kohut_kelly) 's Twitter Profile Photo

Lynch Syndrome UK well done & thank you for another fantastic conference on Saturday at U of Warwick. An inspiring gathering of dedicated people with #lynchsyndrome, researchers and clinicians with shared goals to improve knowledge, care experience and outcomes for families.

<a href="/LynchSyndromeUK/">Lynch Syndrome UK</a> well done &amp; thank you for another fantastic conference on Saturday at U of Warwick. An inspiring gathering of dedicated people with #lynchsyndrome, researchers and clinicians with shared goals to improve knowledge, care experience and outcomes for families.
Resia Pretorius (@resiapretorius) 's Twitter Profile Photo

Our microclots methods finding traction! Prof Doug Kell CBE #FBPE #FBPA๐Ÿ”ถ๐Ÿ‡ช๐Ÿ‡บ Amyloid-Fibrinogen Aggregates ("Microclots") Predict Risks of Disseminated Intravascular Coagulation and Mortality PDF: ashpublications.org/bloodadvances/โ€ฆ

neil ryan (@neilajryan) 's Twitter Profile Photo

The proudest moment of my professional life. To win #teamscirnce AACR 2024 is beyond amazing. I cannot thank Emma Crosbie, Prof Evanโ€™s and the team everything. So proud to have impacted the care of #lynchsyndrome carriers. We do it for the patients. UoM Biology, Medicine and Health The Centre for Reproductive Health

The proudest moment of my professional life. To win #teamscirnce <a href="/AACR/">AACR</a> 2024 is beyond amazing. I cannot thank <a href="/ProfEmmaCrosbie/">Emma Crosbie</a>, Prof Evanโ€™s  and the team everything. So proud to have impacted the care of #lynchsyndrome carriers. We do it for the patients. <a href="/FBMH_UoM/">UoM Biology, Medicine and Health</a> <a href="/EdinUni_CRH/">The Centre for Reproductive Health</a>
Long Covid Support ๐ŸŒ (@long_covid) 's Twitter Profile Photo

๐Ÿ“ฃ Are you conducting/planning research in to #LongCovid? ๐ŸŒŸBook a slot with our newly launched Research Involvement Consultancy!๐ŸŒŸ Ensure your study is relevant, robust and keeps the patient voice at the centre. More info.: tinyurl.com/longcovidRIC #PatientInvolvement

๐Ÿ“ฃ Are you conducting/planning research in to #LongCovid?

๐ŸŒŸBook a slot with our newly launched Research Involvement Consultancy!๐ŸŒŸ

Ensure your study is relevant, robust and keeps the patient voice at the centre.

More info.: tinyurl.com/longcovidRIC

#PatientInvolvement
Dr Ian Frayling ๐Ÿ‡บ๐Ÿ‡ฆ #LongCovid (@doctor_imf) 's Twitter Profile Photo

Well done, in more ways than one by the look of it! Professor Ann Ager & I got married 41y ago on Tuesday. Had to get a mate (later the deputy CMO for Nigeria) to take the cardiac arrest bleep Addenbrooke's at 4am so I could get some kip before picking my suit up. Those were the days ...

Dr Ian Frayling ๐Ÿ‡บ๐Ÿ‡ฆ #LongCovid (@doctor_imf) 's Twitter Profile Photo

I'd go further: this adds to the increasing evidence showing breast is NOT part of Lynch. That said, when breast cancer does occur in women with Lynch it tends to loose mismatch repair (so a potential target for immunotherapy) and be medullary in type. doi.org/10.1093/jnci/dโ€ฆ