Defending William Against DMD (@defndwilliamdmd) 's Twitter Profile
Defending William Against DMD

@defndwilliamdmd

I'm a little boy who was diagnosed with Duchenne Muscular Dystrophy in January 2016. I tweet to raise awareness & funding for DMD. Follow my journey

ID: 926509289887367168

linkhttps://defendingwilliamagainstduchenne.wordpress.com/ calendar_today03-11-2017 18:00:03

371 Tweet

181 Followers

350 Following

Duchenne UK (@duchenneuk) 's Twitter Profile Photo

Huge thank you to our partners Saracens Rugby Club for supporting us at their pre-season friendly Vs Ulster Rugby tonight and giving William the chance to take the ball out! Catch up on the match here and text TACKLEDMD to 70085 to donate £10 saracens.com/live-streams/l…

Huge thank you to our partners <a href="/Saracens/">Saracens Rugby Club</a> for supporting us at their pre-season friendly Vs <a href="/UlsterRugby/">Ulster Rugby</a> tonight and giving William the chance to take the ball out! 

Catch up on the match here and text TACKLEDMD to 70085 to donate £10 saracens.com/live-streams/l…
Jo Eames | DWAD 💙👊🏻💙 (@jo_eames) 's Twitter Profile Photo

One of mummy's lovely friends is walking the Jurassic Coast today raising money for Duchenne UK Good luck Katie 🥰💙👊🏻💙 instagram.com/p/CdiDBUyolF6/…

Defending William Against DMD (@defndwilliamdmd) 's Twitter Profile Photo

I turned 10 and have had the best birthday party ever! Thanks to my lovely friends for coming and gaming the day away! Topped off with a sleepover with my bestie cousin Jack too 💙 instagram.com/p/Cnt0CecL9zu/…

Defending William Against DMD (@defndwilliamdmd) 's Twitter Profile Photo

I met Spiderman today!!! Thebrotherstrust thank you so much, #TomHolland was such a nice guy. The private film screening of #uncharted was brilliant. I am still buzzing. #dmd #duchenne #findacure #makeeverymomentcount Jo Eames | DWAD 💙👊🏻💙 Matt Eames

I met Spiderman today!!! <a href="/Tbrotherstrust/">Thebrotherstrust</a> thank you so much, #TomHolland was such a nice guy. The private film screening of #uncharted was brilliant. I am still buzzing. #dmd #duchenne #findacure #makeeverymomentcount <a href="/jo_eames/">Jo Eames | DWAD 💙👊🏻💙</a> <a href="/MEames1/">Matt Eames</a>
Duchenne UK (@duchenneuk) 's Twitter Profile Photo

Janet Hoskin has published a new paper: ‘More than a just a physical condition’ – recognising the educational and emotional needs of children and young adults with Duchenne muscular dystrophy (DMD). You can read the paper here: tandfonline.com/doi/full/10.10…

Janet Hoskin has published a new paper: ‘More than a just a physical condition’ – recognising the educational and emotional needs of children and young adults with Duchenne muscular dystrophy (DMD).

You can read the paper here: tandfonline.com/doi/full/10.10…
Joining Jack (@alljoinjack) 's Twitter Profile Photo

BREAKING NEWS A new medicine for DMD, funded by Joining Jack, Duchenne UK & DuchenneResearchFund has become the first approved treatment in the UK for all patients with Duchenne! NICE has approved vamorolone for use on the NHS to treat Duchenne - read full story duchenneuk.org/new-medicine-f…

BREAKING NEWS
A new medicine for DMD, funded by Joining Jack, <a href="/DuchenneUK/">Duchenne UK</a> &amp; <a href="/DuchenneRF/">DuchenneResearchFund</a> has become the first approved treatment in the UK for all patients with Duchenne!
NICE has approved vamorolone for use on the NHS to treat Duchenne - read full story 
duchenneuk.org/new-medicine-f…
Defending William Against DMD (@defndwilliamdmd) 's Twitter Profile Photo

Thank you Kevin Bonavia MP for taking the time to speak to me today about William, DMD & why we need your support. Let's get #Givinostat available to 1. Boys who achieve the EAP and 2. All boys with DMD like William. Duchenne UK #italfarmaco #MHRA #NHS #accessforall BBC Beds, Herts & Bucks

Defending William Against DMD (@defndwilliamdmd) 's Twitter Profile Photo

I would like to #ThankATeacherDay today to all the wonderful staff The Highfield School who have made my Year 7 journey such an amazing one. Huge shout out to my teachers and especially the SEND team 🙌