Defending William Against DMD
@defndwilliamdmd
I'm a little boy who was diagnosed with Duchenne Muscular Dystrophy in January 2016. I tweet to raise awareness & funding for DMD. Follow my journey
ID: 926509289887367168
https://defendingwilliamagainstduchenne.wordpress.com/ 03-11-2017 18:00:03
371 Tweet
181 Followers
350 Following
Huge thank you to our partners Saracens Rugby Club for supporting us at their pre-season friendly Vs Ulster Rugby tonight and giving William the chance to take the ball out! Catch up on the match here and text TACKLEDMD to 70085 to donate £10 saracens.com/live-streams/l…
Excited today to represent Stevenage Sporting Futures Team in the Herts School Games for Inclusive cricket 🏏 😀
I met Spiderman today!!! Thebrotherstrust thank you so much, #TomHolland was such a nice guy. The private film screening of #uncharted was brilliant. I am still buzzing. #dmd #duchenne #findacure #makeeverymomentcount Jo Eames | DWAD 💙👊🏻💙 Matt Eames
Its just so frustrating to book through Passenger Assistance & do all the ticks for an early app Great Ormond Street Hospital for Children. Leave our departure station & then arrive St. Pancras International 25 mins later to be told the lift has broken on both sides of the station Thameslink Tanni Grey-Thompson sophie morgan #fedup
BREAKING NEWS A new medicine for DMD, funded by Joining Jack, Duchenne UK & DuchenneResearchFund has become the first approved treatment in the UK for all patients with Duchenne! NICE has approved vamorolone for use on the NHS to treat Duchenne - read full story duchenneuk.org/new-medicine-f…
Thank you Kevin Bonavia MP for taking the time to speak to me today about William, DMD & why we need your support. Let's get #Givinostat available to 1. Boys who achieve the EAP and 2. All boys with DMD like William. Duchenne UK #italfarmaco #MHRA #NHS #accessforall BBC Beds, Herts & Bucks
I would like to #ThankATeacherDay today to all the wonderful staff The Highfield School who have made my Year 7 journey such an amazing one. Huge shout out to my teachers and especially the SEND team 🙌