David Ramsden (@davidramcft) 's Twitter Profile
David Ramsden

@davidramcft

Chief Executive of the Cystic Fibrosis Trust. Fighting for Life Unlimited for all! Views are my own.

ID: 961921402281562114

calendar_today09-02-2018 11:15:08

107 Tweet

819 Followers

51 Following

Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

Thank you BBC Radio 4 Today for covering the call for better communication and protections for immunosuppressed people on the show this morning. cysticfibrosis.org.uk/news/the-cysti…

David Ramsden (@davidramcft) 's Twitter Profile Photo

The CF Community is a special place - an end of year note simply to say thank you for the incredible support you give Cystic Fibrosis Trust Also, thank you to the amazing friends and colleagues working hard to make a difference for other conditions and causes – you inspire me every day!

David Ramsden (@davidramcft) 's Twitter Profile Photo

This is a really important report. Things must change and it is great to see the ambition in Asthma + Lung UK strategy. I look forward to Cystic Fibrosis Trust working with Sarah Woolnough and her team when we can make a bigger difference together.

David Ramsden (@davidramcft) 's Twitter Profile Photo

This is a really welcome investment in data infrastructure for research and development. The UK Cystic Fibrosis Registry shows how improvements in care can be driven by trusted data and the importance of focusing on the needs of those we are here to help.

Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

We are uniting people to stop #cysticfibrosis. Funding vital research, improve care, speak out and race towards effective treatments for all. Cystic Fibrosis Trust is here to make sure everyone with CF can live without limits. ow.ly/9X0e50I9a2g

David Ramsden (@davidramcft) 's Twitter Profile Photo

It's that brilliant day again..... #CFWeek #WearYellowDay Thanks to all who text to donate. 'YELLOW5' to donate £5, 'YELLOW10' to donate £10 or 'YELLOW20' to donate £20, to: 70500. (⚠Text messages cost the donation value + your standard network charge and ask the bill payer!)

It's that brilliant day again..... #CFWeek #WearYellowDay
Thanks to all who text to donate. 'YELLOW5' to donate £5, 'YELLOW10' to donate £10 or 'YELLOW20' to donate £20, to: 70500.

(⚠Text messages cost the donation value + your standard network charge and ask the bill payer!)
Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

Today, we’d like you to tell the Health and Social Care Committee (Health and Social Care Committee) how paying for your prescriptions in England affects you and your family. #reviewthelist (1/3)

David Ramsden (@davidramcft) 's Twitter Profile Photo

Fantastic to see this - brilliant work, brilliantly presented! @JoJofoth and @drchloejames Congratulations to all who made this happen!

David Ramsden (@davidramcft) 's Twitter Profile Photo

We are looking for some great people to join the Cystic Fibrosis Trust Team. Please have a look as there might be a fantastic new role for you! cysticfibrosis.org.uk/the-work-we-do…

David Ramsden (@davidramcft) 's Twitter Profile Photo

Great to have the opportunity this week to speak to the Health and Social Care Select Committee (alongside Chris Askew and Liz Ashall-Payne) about the potential of data and digital to transform care and support for people with cystic fibrosis.

Great to have the opportunity this week to speak to the Health and Social Care Select Committee (alongside <a href="/ChrisAskewCE/">Chris Askew</a> and <a href="/LizAshallPayne/">Liz Ashall-Payne</a>) about the potential of data and digital to transform care and support for people with cystic fibrosis.
AMRC (@amrc) 's Twitter Profile Photo

"...1 in 3 CF families revealed they had run out of food before they could afford to buy more, and 1 in 3 people with CF missed hospital appointments due to the cost." @CFtrust invite AMRC charities to get your conditions debated in Parliament next week too.

David Ramsden (@davidramcft) 's Twitter Profile Photo

A lovely morning for #WearYellowDay (there is even a bright yellow ball in the sky!) in a brilliant #CFWeek2023 Thank you to everyone who is getting involved and at the Cystic Fibrosis Trust we will not stop!

A lovely morning for #WearYellowDay (there is even a bright yellow ball in the sky!) in a brilliant #CFWeek2023  Thank you to everyone who is getting involved and at the <a href="/cftrust/">Cystic Fibrosis Trust</a> we will not stop!
David Ramsden (@davidramcft) 's Twitter Profile Photo

This is an incredible effort by Nick and Liam for a really important cause. Nobody with CF should have to pay for the drugs they need!

David Ramsden (@davidramcft) 's Twitter Profile Photo

Thank you for every step, every signature and every pound raised. Now is the time to make the change - no one with CF should have to pay for the drugs they need!

David Ramsden (@davidramcft) 's Twitter Profile Photo

Great to meet with the Welsh First Minister yesterday to discuss CF care and innovation and to emphasise the importance of removing any uncertainty about access to life-changing medicines for all those who could benefit in the future as soon as possible.

Great to meet with the Welsh First Minister yesterday to discuss CF care and innovation and to emphasise the importance of removing any uncertainty about access to life-changing medicines for all those who could benefit in the future as soon as possible.