May and GM1 Awareness Month is here! Don't miss our latest newsletter, the Cure GM1 Catalyst.

READ and SHARE: curegm1.org/may-2024-catal…

GIVE: curegm1.org/donate

#curegm1 #hope #advocacy #newsletter #raredisease #awareness #patients #community

At times, it can be confusing if a child has development delay to recognize a serious problem. Sometimes, it is even confusing to recognize loss of skills while skills are developing. See a geneticist ASAP if you are concerned.

curegm1.org/about-gm1-gang…

#curegm1 #raredisease

Prep for May by updating your profile image to spread awareness for GM1 Gangliosidosis Awareness Day!

FRAME: tinyurl.com/5a6m5bhv

LEARN MORE: curegm1.org/gm1day

#curegm1 #hope #raredisease #community #awareness #patients #advocacy #families

Will you join us by sharing and telling someone you know about GM1 gangliosidosis? This is a catastrphic condition in babies and children and promising possible treatments are shelved. Funding and execution for the work are possible.
#curegm1 #hope #fightforlife #raredisease

Are you ready to spread awareness for International GM1 Gangliosidosis Awareness Day on May 23rd? Don't forget to order your swag!
LEARN MORE: curegm1.org/gm1day
#curegm1 #hope #raredisease #advocacy #awareness

We're already planning our virtual conference for 2024. Will you join us and save the date? More information to come!
#curegm1 #savethedate #raredisease #community #conference #events

It is with heavy hearts that we share this difficult news.
The Sanofi AMETHIST study has been 'discontinued
based on the absence of positive trends on clinical endpoints.'
curegm1.org/sanofi-amethis…
#curegm1 #raredisease #biotech #community #fightforlife

Support research by gardening this spring!
SHOP: curegm1.fpfundraising.com
#curegm1 #hope #community #raredisease #shopforgood #gardening

Have you ordered your swag or made a plan to contribute to GM1 gangliosidosis awareness? Learn more on curegm1.org/gm1day

Only one month to go from today!

#curegm1 #hope #community #raredisease #advocacy #awareness

There are so many worthy causes, including our environment and the planet earth and of course, rare diseases such as GM1 gangliosidosis.

#curegm1 #raredisease #advocacy #community

Together, we have the power to create meaningful change. Advocacy matters. The lives of all those suffering due to GM1 gangliosidosis matter. Help us change the future and change lives.

curegm1.org/donate

#curegm1 #hope #advocacy #clinicaltrials #genetherapy #change

Remembering little Diego who passed away a year ago.
curegm1.org/diegos-story
“You have been an extraordinary traveler. Your journey to the stars will be another fantastic adventure. Wherever we are, you will always be with us” — Diego’s mom

Our mission is critically important. Why is it that treatments are shelved and families impacted by GM1 must endure such devastation and suffering?

curegm1.org/take-action

#curegm1 #raredisease #hope #community #advocacy #patients

Families around the world are waiting for treatments and navigating life facing a truly devastating and fatal disease. Read and share our community stories: curegm1.org/stories
#curegm1 #hope #community #advocacy #raredisease #patients #families

Families around the world are waiting for treatments and navigating life facing a truly devastating and fatal disease. Read and share our community stories: curegm1.org/stories
#curegm1 #hope #community #advocacy #raredisease #patients #families

The global GM1 community is highly international. We invite anyone from around the world to plan an event in May. Will you join us?

LEARN MORE:

curegm1.org/international-…

#curegm1 #hope #global #raredisease #community

Fun new designs are available in our charity shop: curegm1.org/gm1-store

Help us spread awareness this spring! GM1 Day is coming also on 5/23 with new GM1 Day designs and Mother's Day t-shirts, flowers, and chocolate.

#curegm1 #awareness #hope #fightforlife #raredisease

Check out our new website page to help plan for GM1 Awareness Day on May 23rd! Want to help? Ask us how?

SEE: curegm1.org/international-…

#curegm1 #awareness #hope #community #advocacy #raredisease

Check out our new Mother's Day design options and our GM1 Day options for May. Order now to get shirts in time for May: curegm1.org/gm1-store

#curegm1 #raredisease #community #hope #donate #helpneeded #awareness

Every little bit helps and counts towards our critically important cause.

SHOP: curegm1.org/gm1-store

Please share with friends.

#curegm1 #raredisease #community #share #shopforgood #mothers #moms