The FARA Grant Program is proud to award a Postdoctoral Research Award to Sujyoti Chandra, PhD, at Stanford University University to study new pathways affecting the mitochondria in #FriedreichAtaxia. Read more about this grant and the research FARA funds at: buff.ly/4dS1ndt

Who better to teach the world about Ataxia than the beloved Science Guy?? It was a pleasure to work with Bill Nye on this project. Like, comment, and share his videos to help spread the word! More to come...stay tuned! Check it out here: youtu.be/LT2Hpg6O-SA

The FARA Grant Program is proud to award a Postdoctoral Research Award to Chen Liang, PhD, at the University of Rochester to characterize muscle fatigue and calcium ion contribution to muscle dysfunction in FA. Read more: buff.ly/3Xal758

We are 2 weeks away from our upcoming virtual listening meeting. Register to hear from #raredisease patients, advocates, & care partners on safety considerations for approved #genetherapy treatments & post-market studies: bit.ly/3XUEQrP

For people with a hereditary form of Ataxia, Bill Nye's experience of many family members having symptoms that affect their ability to walk is very common. Share this to teach your followers about Ataxia! youtu.be/Mk_OGpvNcMc

FARA, in collaboration with FARA-Ireland, is proud to award the Kyle Bryant Translational Research Grant to Stealth BioTherapeutics to support the development of SBT-589, an investigational mitochondrial therapeutic aimed at treating Friedreich’s ataxia. buff.ly/3MFmTGM

Join Katie Sale, ABC Executive Director for a conversation with Brigid Brennan, General Counsel and Director of Advocacy for Friedreich's Ataxia Research Alliance (FARA). Learn about their dedication to the pursuit of scientific research. Listen today: bit.ly/3ExBro9

The FARA Grant Program is proud to award a General Research Grant to Nadia D’Ambrosi, PhD at the University of Rome Tor Vergata to understand how low frataxin affects the immune cells of the central nervous system. Read more: buff.ly/4euXGL9

🏈 Calling all football fans looking to support Friedreich's ataxia research: There's still time to place your bids in the NFL Auction for autographed NFL items benefitting FARA! Your support helps fund game-changing FA research. Place your bids today! >> buff.ly/3NgLodP

🚨 Due to overwhelming interest, #ICAR2024 in London has reached full in-person capacity of 600—our largest-ever! We’re offering a limited online option to stream plenary sessions only (no workshops or interaction). Register by Nov 4 at icar2024.exordo.com

See you in London! #ICAR2024

Looking forward to Walter J. Koroshetz's #ICAR2024 keynote. See you in London!

The 2024 International Congress for Ataxia Research (ICAR) kicks off today in London, bringing together 600+ researchers and professionals from 32 countries to advance ataxia research and treatments. Read more: buff.ly/4fDSdSG #FriedreichAtaxia #ICAR2024

Capsida today announced new preclinical data for CAP-004, a systemically administered next-generation gene therapy for the treatment of FA. Data highlighting the therapeutic potential of CAP-004 will be presented in a poster presentation at #ICAR2024. buff.ly/3O2Osua

This morning, FARA CEO, Jen Farmer opened day 3 of #ICAR2024 and shared how research is central to the organization's mission. Jen also noted the tools and resources available to researchers—many of which can be found on FARA's newly redesigned website: buff.ly/415eLIf

In a press release this week, Lexeo Therapeutics reported that they have completed enrollment of LX2006 SUNRISE-FA Phase 1/2 trial and reached alignment with FDA on an accelerated approval pathway. Click here to read the full press release: buff.ly/4fr91fX

Help advance #FriedreichAtaxia research. Apply for funding from FARA. Letters of intent are due February 15. Learn more about the grant program's awards and priorities at: ow.ly/L3VM50UZ3sy

Don't miss the deadline to apply for research funding! Letters of intent are due on February 15. Apply today at ow.ly/NbaV50UZ3BS. #FARAGrantProgram #ResearchFunding #FriedreichAtaxia #Neuroscience #Cardiac #DrugDiscovery

Letters of intent for research funding are due February 15. Learn more about FARA's research priorities to advance understanding of #FriedreichAtaxia. Apply at ow.ly/cxfz50UZ3LA.

The CR likely to pass today will slash more medical research funding. This action, combined with the cuts to the NIH, weakens research infrastructure and delays patient treatments. Continue to let your members know what medical research means to your family.