Coalition Duchenne (@coalitiondmd) 's Twitter Profile
Coalition Duchenne

@coalitiondmd

We're on a mission to do everything FUN to raise global awareness for Duchenne muscular dystrophy, to fund research for a cure. Join us and climb Mt Kinabalu!

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linkhttps://linktr.ee/coalitionduchenne calendar_today23-02-2011 06:54:22

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Capricor Therapeutics (@capricor) 's Twitter Profile Photo

Capricor is pleased to provide a regulatory update for its DMD program—Deramiocel remains under Priority Review with FDA target action date set for August 31, 2025. Read more: bit.ly/3G28YuN $CAPR #Deramiocel #DMD #RareDisease

Capricor is pleased to provide a regulatory update for its DMD program—Deramiocel remains under Priority Review with FDA target action date set for August 31, 2025.
Read more: bit.ly/3G28YuN
$CAPR #Deramiocel #DMD #RareDisease
Coalition Duchenne (@coalitiondmd) 's Twitter Profile Photo

Hello everyone! I’d like to let you know about our upcoming Mt Kinabalu climb for Duchenne awareness. We have 5 spots remaining to join our international 13th annual Expedition Mt Kinabalu charity climb on August 12–14, 2025! Capricor Therapeutics NS Pharma REGENXBIO Satellos Bioscience

Hello everyone!  I’d like to let you know about our upcoming Mt Kinabalu climb for Duchenne awareness. We have 5 spots remaining to join our international 13th annual Expedition Mt Kinabalu charity climb on August 12–14, 2025!
<a href="/Capricor/">Capricor Therapeutics</a> <a href="/NSPharmaInc/">NS Pharma</a> <a href="/REGENXBIO/">REGENXBIO</a>  <a href="/SatellosBio/">Satellos Bioscience</a>
Coalition Duchenne (@coalitiondmd) 's Twitter Profile Photo

Please consider donating to our charity climb and also to support our first ever Duchenne specific workshop in Malaysia! spot.fund/2jzgqd7dc

Coalition Duchenne (@coalitiondmd) 's Twitter Profile Photo

I’m raising funds for a cause very close to my heart, and I’d love your support. The platform is 100% secure, and every dollar goes directly to the charity — no fees are taken out. Small or large, your donation makes a difference! #duchenne spot.fund/2jzgqd7dc

Coalition Duchenne (@coalitiondmd) 's Twitter Profile Photo

Coalition Duchenne to host the first ever Duchenne specific family workshop in Malaysia! #Duchenne theborneopost.com/2025/07/31/coa…

Coalition Duchenne (@coalitiondmd) 's Twitter Profile Photo

Some more press about our upcoming 13th annual Expedition Mt Kinabalu and the first Duchenne specific workshop! dailyexpress.com.my/news/263792/du…

Coalition Duchenne (@coalitiondmd) 's Twitter Profile Photo

We had quite a bit of media coverage for our 13th expedition Mt Kinabalu for #Duchenne awareness! hellosabah.com/malaysian-pare…

We had quite a bit of media coverage for our 13th expedition Mt Kinabalu for #Duchenne awareness! hellosabah.com/malaysian-pare…
Coalition Duchenne (@coalitiondmd) 's Twitter Profile Photo

Coalition Duchenne hosted the first ever Duchenne multidisciplinary family workshop in Kota Kinabalu, Malaysia, on August 10th. We collaborated with the Sabah Women and Children’s Hospital, alongside pediatric doctors and rehab specialists to create this educational workshop.

Coalition Duchenne hosted the first ever Duchenne multidisciplinary family workshop in Kota Kinabalu, Malaysia, on August 10th. We collaborated with the Sabah Women and Children’s Hospital, alongside pediatric doctors and rehab specialists to create this educational workshop.
Coalition Duchenne (@coalitiondmd) 's Twitter Profile Photo

We had over 100 participants including parents, caregivers, doctors, educators, specialists, and boys with Duchenne who travelled across Malaysia to attend! Many of the families live in rural communities with little access to multidisciplinary care. #Duchennefamilyworkshop

We had over 100 participants including parents, caregivers, doctors, educators, specialists, and boys with Duchenne who travelled across Malaysia to attend! Many of the families live in rural communities with little access to multidisciplinary care. #Duchennefamilyworkshop
Coalition Duchenne (@coalitiondmd) 's Twitter Profile Photo

Today on World Duchenne Awareness Day, we recognize the strength, compassion & dedication of all those with Duchenne and those who care for them. Your love and care are the foundation on which hope is built. ❤️💪✨ #WDAD2025 #DuchenneAwareness

Today on World Duchenne Awareness Day, we recognize the strength, compassion &amp; dedication of all those with Duchenne and those who care for them. Your love and care are the foundation on which hope is built. ❤️💪✨ #WDAD2025 #DuchenneAwareness
Coalition Duchenne (@coalitiondmd) 's Twitter Profile Photo

We were recently featured in Cedars-Sinai.org/DISCOVERIES magazine, a New Hope For Duchenne. We are honored to have been part of this long journey with Eduardo Marban, MD, PhD that will hopefully lead to the approval of a drug for Duchenne hearts. #deramiocel #cardiomyopathy Smidt Heart Institute at Cedars-Sinai

We were recently featured in Cedars-Sinai.org/DISCOVERIES magazine, a New Hope For Duchenne. We are honored to have been part of this long journey with <a href="/MarbanLab/">Eduardo Marban, MD, PhD</a> that will hopefully lead to the approval of a drug for Duchenne hearts. #deramiocel #cardiomyopathy <a href="/SmidtHeart/">Smidt Heart Institute at Cedars-Sinai</a>