NGS MRD Neg ALL patients have good outcomes without TBI. Let’s keep enrolling on ENRAD #tandem23 #lluch #llufmg #ptct

Tomorrow it's #RareDiseaseDay 2023! 💡 Light up at 7 pm wherever you are to raise awareness for people living with a rare disease! 🏛️ Find a monument being lit up near you: cutt.ly/MPUWDKx 🏠 Find out how to light up your home: cutt.ly/zPlxnHb #LightUpForRare

15th Annual Pig Week at the Jimmy Fund Clinic🐷 It’s pigs everywhere you turn…on the walls, crafts, floating in the air, & cookies🐷 Grace can’t get enough of her 1st Pig Day! She is loving everything about how her clinic has been transformed into adorable, sweet, happy Pigs💕

It is now #RareDiseaseDay across the globe 🌍 📌 Organise and post your event: cutt.ly/98d6NtE ✨ Join the Global Chain of Lights & #LightUpForRare: cutt.ly/zPlxnHb 📖 Share your story: cutt.ly/s8d612W 🔥 Share our resources: cutt.ly/M8d69nH

It is Rare Disease Day 2023- We honor those fighting their disease, for recognition, for understanding and so much more. I honored to be part of the team fighting for and often laughing with many young zebra warriors and their families. #RareDiseaseDay2023

35 states perform newborn screening for adrenoleukodysrophy due in large part to the work of the ALD Alliance. Newborn screening for this devastating disease can be life saving. We must support the work of those fighting for children in the remaining 15. ⁦ALD Alliance⁩

Feeling inspired… Listening to Dr. Kurtzburg, Dr. Steiner and Dr. Bonfim discuss their careers in pediatric stem cell transplant and critical care. PALISI

Palisi HCT takeaways: CR3 for ALL improved BMT Survival. Can we determine optimal time to IMV or NIV in HCT patients? Collaboration helps us get it right. Be flexible in your career plan. VOD SOS APP is live.

Tonight as Tennessee House Republicans push forward to schedule vote on our expulsion, Speaker Sexton orders the gallery cleared as crowd chants “fascists.” Media forced out at as well. Then, Rep. Lafferty (R-Knox) pushes me and grabs my phone. This is a sad day for Tennessee.

Salem boy with rare disease to be surprised with custom basketball court wmur.com/article/salem-…

The pediatric sos/VOD app is now available on Android. PALISI The PTCTC APHON play.google.com/store/apps/det…

Always proud of Grady youtu.be/KvqdSUT68j0

Our DFCI/BCH data also shows that we are not capturing all infants/toddlers who get VOD - and while many get critically ill, their survival is excellent! Check out our poster P469! The EBMT ChristyNDuncan

This is Stancy Cardwell. He stormed the beaches of Normandy carrying a 60mm Mortar. He’s 101 years old and deserves endless retweets 🇺🇸

A new guideline from ASTCT provides recommendations and a practical framework for pediatric-focused pre-HCT evaluation. Review the #openaccess guideline: ow.ly/eF4R50Oevjj Elsevier Hematology

#BlackLivesMatter

⁦seth rotz⁩ discussing fertility preservation! Great interview! podcasts.apple.com/us/podcast/thi…

Hedy Lamarr was a Hollywood actress in the 1940s and 1950s, and she was considered "the most beautiful woman in the world" during her time. She began her acting career in Austria and became notorious for being the first woman to simulate an orgasm on screen in 1933. It was during

I wish you could hear Emilia’s sweet giggle throughout the day!! We celebrated all last week & ended today with s’mores for all (microwave… no campfires)🔥☺️ Thank you One Mission for providing the funds for these special celebrations! Happy 4th of July♥️🤍💙

Fantastic presentation by Dr. Miki Nishitani on GVHD incidence in children. Kids are not just small adults….