ChildhoodTumourTrust
@ChildhoodTT
We are a UK based charity supporting children, young people & their families with the genetic condition Neurofibromatosis Type 1. NDA17 Winner
#CTT
ID:707680611604021248
http://www.childhoodtumourtrust.org.uk 09-03-2016 21:33:00
8,9K Tweets
1,9K Followers
510 Following
A hard secret to keep but today we can shout it out.
Thank you to absolutely everyone who donated & the celebrities who helped to raise so much money for small charities likes ours. This grant will help those affected by NF1 know that they are not alone Global's Make Some Noise #MakeSomeNoise
'Grateful beyond words! After 2 years of chemo thanks to @Prizes4GoodCauses, through CTT we enjoyed a beautiful week at Park Resorts Great Yarmouth. A cherished time with family after a tough journey. Deeply thankful for this generous gift. ❤️ #Gratitude #FamilyTime '
Last year £3000 was raised by Richard Yates, along with Sian Evie & her incredible family at a bingo & and entertainment evening which was split between @childhoodtt Crohn's & Colitis UK MS Society UK
This has now been matched by #ToyotaManufacturingUK
Quite simply - thank you
Wow -look what NF Warrior Lily did today -
British Bake Off winner #MattyEdgell awarded Lily 2nd place in the Spring Into Spalding Bake Off.
All your CTT zoom cookery sessions with Mrs Bun the Baker® have really paid off Global's Make Some Noise
We are all beaming with pride.
#NF1
Our young adults taking part in #WearAHatDay2024 - many of whom are affected by a brain tumour - ALL of them have NF1.
More research needs to be done into NF1 and brain tumours.
#BrainTumourAwareness
#NeurofibromatosisType1
#NF1
Brain Tumour Research
At @childhoodtt we have a great way for siblings of children with NF1 to bond: virtual cookery sessions via Zoom with Mrs Bun the Baker®
It's not just about food, it's about creating memories, support and lots of chat! 🍳💕 #TogetherStronger
Global's Make Some Noise
#NF1
Thank you to lorraine stanley
for writing the forward for Patches' new adventure - A delightful story written for @childhoodtt by Sophie Marsh
Join Patches on his journey as he bravely prepares for his very first MRI.
Order here forms.office.com/e/uxwgQDx5iV #NF1 #MRI
Thrilled to announce Rakie Ayola💜 Still Menopausal is jumping alongside lorraine stanley in a skydive for CTT. Prepare for courage, heart, & an adrenaline rush as they join supporters across the UK in leaping for NF1. Let's show them our unwavering support!
bit.ly/3xaEhic
#NF1
Very proud of this. So grateful to ChildhoodTumourTrust for their support in the making of Hedgehog.
#shortfilm #filmfestival #nf1 #Neurodiversity #RepresentationMatters
Genesis Cinema LIFF
The magic of a @childhoodtt zoom cookery session with Mrs Bun the Baker® Alfred is not only learning a lifelong skill but also finding comfort in knowing he's not alone Virtual connections creating real bonds! #NF1 #Neurofibromatosis #ChildrensMentalHealth Global's Make Some Noise
Wishing all our friends at NFIreland, those we support in Northern Ireland and our amazing PhD student from Dublin a very Happy St Patrick's Day
#StPatricksDay2024
#NF1
#NeurofibromatosisType1
#collaboration
🪂 Thrilling news! Our incredible patron, lorraine stanley is taking the plunge—literally! She's skydiving to support our cause! 🌟 Let's show her some love and support as she soars through the sky for those affected by NF1 🙌 Follow the link to donate bit.ly/48OOaPz
'This is my daughters 1st time at camp. She's looking forward to spending time with other children who understand what living with NF1 is like. Without CTT and the The National Lottery Community Fund she wouldn't have these chances. A big thanks to all involved' #NationalLottery
Isabel is so excited to go to her first ever CTT camp She is looking forward to making friends with other kids who have the same condition as herself, and just knows she is going to have an amazing time Thank you to The National Lottery Community Fund you really make a difference #NationalLottery #NF1
🌟 Exciting news! This year's CTT camp will be Emily’s first, & she's been counting down the years until she was 12 & old enough to join! She's excited to spend camp with her NF besties & make new friends Big thanks to The National Lottery Community Fund for making it possible! #CTT #NationalLottery