Today the #MillionsMissing are gathering & speaking out to ask, beg for help. You can’t see us, as we’ve been pushed out of society by complex & chronic health conditions with no treatment I can’t be in Parliament Square, but I am with you all. Wellcome please help us.

Thanks Steve Topple for reporting on the #MillionsMissing event in London demanding that people with M.E are treated not with pity but with respect by giving us all the resources we need to research, understand and treat our condition. #WeAreAllConnected x.com/MrTopple/statu…

If you have #ME #MECFS and you are in the UK pleeeeease sign up for DecodeME the ME/CFS Study , Complete the questionnaire & lets get some proper biomedical research done!! This is potentially game-changing stuff🤞

Public awareness of #MEcfs grows due to ⬆️ exposure of campaigning but also as consequence of ⬆️ virus and lived experience. How many more will join #MillionsMissing ? Wellcome biomedical funding is decades overdue Please help!#MyalgicEncephalomyelitis #WeAreAllConnected

So far today, the home secretary has resigned, a senior No.10 adviser has been suspended, the prime minister has double U-turned on pensions, and the government has called a vote of confidence in itself to coerce its MPs to vote against their own manifesto.

Pretty sobering press release that I've received from the Trussell Trust just now: need for food banks has outstripped donations for the first time. The charity distributed 46% more emergency food parcels in August and September than it did in 2021.

Liz Truss’ leadership style of major U turns seems to be catching on! The fact that MPs are even considering bringing back Boris shows how broken, desperate & lost they are.

NEW: Sources close to Privileges Committee say evidence is so damning that Boris Johnson could be 'gone by Christmas' if he returns. One Tory MP tells me any attempt to kill the inquiry could 'bring down the govt'. Yet momentum builds behind Johnson. itv.com/news/2022-10-2…

“My life as I knew it is unrecognisable… where is the support from the experts? We are the ill people” This #bbcqt audience member outlines her life-changing experience with long Covid and says she wants to get on with her life but “people are being left with no help”

There are half a million more people not working now than at the end of 2019. The number of people classed as economically inactive because they are long-term sick has reached a record 2.5 million, according to figures from the Office for National Statistics (ONS).

The wild plan to refreeze the Arctic - The Times and The Sunday Times apple.news/AABQ0BjSwSnyzc…

THREAD on the clinically extremely vulnerable and Covid... please read! First off, NHS estimates there are *3.7 million people* (6.6% of England population) who are clinically extremely vulnerable to Covid infection. 1/15

AND if they had Long Covid, they were *much* more severely affected. Vaccines have reduced but not eliminated Long Covid - CEV population is at much higher risk from infection both in immediate severity of illness but *also* in long term impacts. 7/15

These Five Women Are Helping Doctors Crack the Long-Covid Mystery - Bloomberg Businessweek (with a lot of help from #MEcfs researchers!) apple.news/AazogssP5TUunw…

🗝️Points 🔹Many #LongCovid researchers unaware or ignoring looking at #ME to understand #LongCovid 🔹Poor quality methodology being used in #LC like #ME - lessons not being learnt 🔹HCPs ingnoring or unaware of energy management in #ME 4 #LC 🔹No mixed cohort studies

Yes the science on the seriousness of the long covid crisis is unequivocal - still, crickets. It's important to ask why government is silent but there's a bigger question: Why is medicine silent? Why haven't authoritative medical voices relayed the science to the public, to drs?

Important 🧵Peased its being raised in parliament. Yes, #PwME have had their illness dismissed & ridiculed & treatment has been shocking. Our warnings surrounding #LC have gone the same way yet the government continues to choose to ignore & prefers to tell us Covid is over!

LIVE: Join us for a discussion on Covid-19 & the implications of health inequalities, with guests Professor Clare Bambra & Prof Arpana Verma, Prof Sheena Cruickshank (she/her) & Dr Zubaida Haque as hosts, and Prof. Christina Pagel - @chrischirp.bsky.social on numbers x.com/i/broadcasts/1…

Have you signed the petition calling on the UK Government to urgently fund research into treatments and cures for #MyalgicEncephalomyelitis and #LongCovid? It closes on 5th July and needs 10,000+ signatures to get a response. Make sure you sign and share! petition.parliament.uk/petitions/6305…

Long segment about #MECFS on BBC Breakfast (15 mins) includes interviews with Dr Binita Kane, Dr William Weir, Karen Hargrave and Oonagh Cousins Mentions symptoms, severity, history, Melvin Ramsay, psychological framing, NICE guidelines, problems receiving care for severe