Carole Bruce
@CaroleBruce17
Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
ID:870645098748497921
02-06-2017 14:15:42
32,4K Tweets
6,2K Followers
4,6K Following
Bhupesh K Prusty
@BhupeshPrusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.Janet Dafoe
@JanetDafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...Dan Wyke 🦠➡️🧠🔥
@Dan_Wyke
M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack Press, Waterloo Press)Tom Kindlon
@TomKindlon
With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrsKaty B
@KatyBruce108
Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwMEIt'sME(Jaime)
@exceedhergrasp1
Director of Sci & Med Outreach, #MEAction Stanford Med TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]ME/CFS News
@MECFSNews
News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.socialAdam
@ABrokenBattery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.Sten Helmfrid 🇺🇦
@StenHelmfrid
Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checkeddavidtuller
@davidtuller1
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.Christoph Ströck
@cstroeckw
Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founderLizzy H
@hopefullizzy
29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨Jonas R. Kunst (@kunstjonas.bsky.social)
@KunstJonas
Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]Martin Hippe
@pausedME
East Westphalia by Nature ⎮Lawyer by Profession | #Musikrecht ❤️| #MECFS | @Mirame_Arts | No medical advice!Whitney Dafoe
@DafoeWhitney
Severe ME/CFS patient and advocate. Photographer, filmmaker, artist, creative. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊Daniel Moore
@Talmandaniel
Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/HimBilly Hanlon
@bhanlon15
Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID AllyJo
@cfs_jo
CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. if X goes much further down I’ll be on BlueSky as JustJoNaomi Harvey PhD #WearAMask
@Naomi_D_Harvey
Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5Jenny K 🌿🌳🌍
@Knitty19
Parent. Nature lover. Standing up for trees. Not flying anywhere. Car free. Knitter. Degrowth. Green Party member. Dysautonomia.Anna / M.E. myself and I has left Tw*tter/X
@theslowlane_ME
No longer using Twitter/XWe Deserve Better
@_we_deserve_
#wedeservebetter than a race to the bottom by the Tories and Labour. Be part of the alternative - based on the politics of hope: https://t.co/8vjW5Yb9euElizabeth Ansell
@elizansell
Founder @njfatigue. Previously at Showtime and ABC News, among other places. Quit career due to #MECFS. This is #NotJustFatigue.Izzy
@IzzyRWeather
Tweets & likes disappeared? I declutter, many days I'm ill (still don't know what's wrong) & need to focus on something simple. #NotRecoveredTim Zaum
@islandmaster97
27 Life on pause due to severe Long Covid since 12/21 Always wanted to Help the Environment 🍀Chris #UniteToFight 🏳️🌈
@ungenesbar
LongCovid & ME/CFS activist // Core Member of @U2Fight_World // creator of https://t.co/O3DTXjWiPd // gayRosie
@rosie48235414
Carer to my younger sister who has very severe M.E.Local boy in a photograph.
@Griffdaz
Early BTC/INVESTOR .$CA & Hodl. DYOR. Financial security - when your wallet has a retirement plan too. #PTSD #M.E #PARAPLEGIAME Action Now
@MEActNOW
https://t.co/Vyrf7yGws7 🌱#Vegan 💙Photography💙Birds💙Animals 🌱Gardening 💙#MECFS LongCovid #POTS #MCAS💙BLM💙Resist💙Equal rights💙Gun Control IFollowLiz Meddings
@lzmddngs
Heat, vent engineer. Energy efficiency. Passivhaus Designer, Retrofit Coordinator. Wear pink hat for Headway. Disabled after mild brain injury.Yann (ME/LC Research & Advcacy)
@yann_mecfs
Very severe ME (Long Covid). Not always able to use phone. Bedridden/unable to speak. #MillionsMissing — read research critically — https://t.co/o1rZ4tNnZoAkiyoshi Kitaoka
@AkiyoshiKitaoka
I am an experimental psychologist who studies visual illusions as well as makes illusion artworks. #illusion #opticalillusion #perception #錯視RACliff
@Stormybeach
Ciara Wright PhD, Glenville Nutrition Ireland
@CiaraGlenville
Nutritional Therapist, Scientist, Director of Glenville Nutrition Ireland, Long Covid Mar 2022Thea
@TheaKnudsen4
Nicola Bedlington
@NABedlington
Passionate about health, engagement and sustainability. Collaborative leadership. Proud European living in Vienna. Love my Cumbria too ❤️My Year In A Crash
@myyearcrash
6 year sufferer of ME/CFS. Writing a light-hearted weekly blog on how I coped in the midst of a crash. https://t.co/C2VgEDDWz5 #ME #CF #ChronicFatigueOonagh Cousins
@oonagh_cousins
Visiting Research Fellow at Oxford University. Studying Long Covid. Ambassador for charity @long_covid BBC piece:Jessica DeMars
@BreathewellPT
Physiotherapist, mom and wife with a passion for biking and improving health through better breathing. Long Covid advocate. #countlongcovidLorri
@lorriberri
Social Media, Makerspaces, Libraries.under_transformation
@_trans4m8tion
Long covid brought me here, from fit to wheelchair. In a shitty club with great people #FBLC. No woowoo. #PEM #PESE #MECFS Mastodon: @[email protected]Iron Blake
@IronBlake1
Elrond Hubbard ME
@HuanaV544113
Murray Huana is back and is now part Elf-Lord as well as creator of a major western religion. This makes me always right and you - wrong. I am the light.T.M
@TadhgMccain
Severe myalgic encephalomyelitis.Jessica Wildfire
@JessicaLexicus
'Doomer.' https://t.co/pyKftMqz78Penny Miller
@penn_miller
All we have is this day.......... make it count ❤ #Fibro#EDS#CFS#ChronicIllness#Pwme #Coeliac#Gastroparesis ♿ Advocate for disability rights 👩🦼TopazStudios.com
@TopazStudiosCOM
We are all ONE serious #illness from #disabled — #longcovid #ckd #IgG #kidney #TD1 #me #pots #mcas #dysautonomia #pem #pene $ltnc #grandma — follow @RenegadeResSocialist 💙 #3.5% #resist#revolt#remove
@nornie24
True Socialist - ME/Fibro 23 yrs Loves - Husband (my rock)😍 Kids, mum, extended family. Dogs (more than people!)🐶 #Torys OutStephanie #KeepMasksinHealthcare (forever)
@acrobatsteph
Housebound with ME/CFS | Former circus performer | Engineer #MillionsMissing #pwME #MEcfs #MEawareness #KeepMasksInHealthCare ForeverALowerhouse
@VertigoGrl
An unintentional collector of an alphabet soup of chronic illnesses #MECFS #EDS #MCAS #POTS. Pronouns: she/herDeb
@buckleydebbie
Mary
@mariamaryamria
📚🎼🫖🍓❄️🐉 favoritförfattare Albert Camus / solution for ME-advocateKW
@wintersk362761
Health epidemiologist. PhD. ME/CFS for 15 years. Also Lyme & chronic UTI.Victoria
@VicGoesk
Meg Samuelson
@coastalthinking
i used to read think write teach (literatures of the South/Africa/Indian Ocean & environment littorals oceans women’s stories). #LongCovid #MECFSSolan
@SarahnSolan
https://t.co/Oj6q3AbStC,long distance/hill walker, canoeist, wood carver, top dog agility handler, gardener & much more in a previous life now bed/sofa bound due to MEDiane Corrigan#floxed
@DottyDee62
Iatrogenically harmed by #cipro Disabled, House/Wheelchair bound #fluoroquinolonetoxicity #floxed #fqad induced #mecfs #pots #tendinopathy #mcas #PSVTLong Covid Advocacy Ireland
@LCAIreland
The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patientsDillon Jaxxpoet
@dillon_jaxx
Poet-vegan-human #MEProf Ros Gleadow
@RosGleadow
climate change, plants that kill, #MECFS ally - views my own - #PlantSci #WomeninSTEM @rgleadow.bsky.socialSarah Ogden
@MrsSarahOgden
twitter sceptic and mommy of franny and Annabel#MillionsMissing Aus @mmissingaus.bsky.social
@MMissingAus
There are #MillionsMissing from their lives due to ME (Myalgic Encephalomyelitis or #MECFS). We're fighting for health equality and to make their voices heard.🌱 katski 💙
@katkatski
LiegendDemo auf dem Washingtonplatz, ME/CFS
@LiegendDemo
Hier werden alle Infos bezüglich der LiegendDemos und Trauergänge bekannt gegeben. 11.05.2024 große LiegendDemo in Berlin! Plakate und Handouts s. Link⬇️Lorna
@lornamcfindy
(She/her) Writer, Disability & Chronic Illness Advocate, Cat Momagerslinkymahlinky🏳️🌈🏳️⚧️
@slinkymahlinky
Caregiver, driver of the chronically ill, a fixture in waiting rooms throughout the nation. Part time fell omen. The pharmacists know me on sightCarrie Ann Beadman
@Cabbeadman
Medically retired respiratory therapist after 30 year career after getting ME from chronic shingles infections. Here to learn from amazing twitter communityCoRE Mount Sinai
@CoRESinai
The Cohen Center for Recovery from Complex Chronic Illness (CoRE) advances treatment and knowledge of Long COVID, Chronic Lyme, ME/CFS, and hEDS.💧🇵🇸🏳️🌈🏳️⚧️ paul
@kingfchicken
Ponderous soul wanting to leave planet a better place.