Thrilled to be back at #CFFVLC

Catching up on the latest few episodes of the #CFF Breaking Through podcast with Kristen Brockman and they’re awesome! Amazing stories...it’s clear that there’s no cooler group than the Tomorrow’s Leaders.

Advocacy making an impact!

We’re riding to support the CFF and efforts to find a cure! Cincinnati CF Cycle for Life 2019: Ray Poole - Cycle - Cystic Fibrosis Foundation fightcf.cff.org/site/TR/Cycle/…

Super excited!

The CFF VLC party is going to be the real deal this year with a 70’s theme for the 65th anniversary! Can you dig it!?! #cff

We have been continually monitoring COVID-19 developments and CDC guidelines, plus consulting with CF infectious disease experts to provide up to date information for those with CF. cff.org/Life-With-CF/D…. Stay cautious. Stay safe.

With the recent move from in person to online due to Coronavirus concerns, the CFF Volunteer Leadership Conference will go on tomorrow! Check out my latest blog about this.

“It always seems impossible UNTIL IT IS DONE.” Nelson Mandela #cffvlc

So Dr. Desai won’t be invited back onto Fox News but God damn it was worth it.

.Thomas Massie Senator McConnell's Press Office Rand Paul People with #cysticfibrosis shouldn’t have to choose between their health and their paycheck during #COVID19. Please act to expand paid leave for people with chronic conditions and their caregivers!

“Although I'm seeing so many levels of social distancing (or lack thereof), I can't help but feel like CF is making itself known now more than it ever has. We don't know when the risks will be low enough that we can get back to our normal.” -Julie Riedy on.cff.org/303gn3J

.Thomas Massie Senator McConnell's Press Office Rand Paul No person with #cysticfibrosis should be forced to choose between their health and their livelihood during the #COVID19 pandemic. Expand paid leave for people with chronic conditions and working members of their households. #CFadvocacy

Cycle for Life is working hard to change lives for the better. Join me in supporting them by donating today! bndfr.com/dZ3lh

A great example of why I support the Cystic Fibrosis Foundation. The best story in medicine!

The Foundation announced today nearly $15M in funding for 33 academic studies into infection, as part of our $100M Infection Research Initiative to address the chronic and intractable infections that are a hallmark of #cysticfibrosis. on.cff.org/3aZB7yI

If there’s one thing CF Cornerman's wife has taught him, it's that amazing courage is not improved by focusing on the imposing strength of #cysticfibrosis; it's magnified by laughing in its face. on.cff.org/36w3wvN

.Thomas Massie Senator Rand Paul Senator McConnell's Press Office, as a constituent and someone personally affected by #cysticfibrosis, I’m calling attention to the need for new antibiotics. I urge you to cosponsor the PASTEUR Act to help tackle this complex issue that impacts us all! #CFadvocacy

.Thomas Massie Senator Rand Paul Senator McConnell's Press Office, as your constituent I urge you to cosponsor the PASTEUR Act. People with #cysticfibrosis and all Americans need innovative antibiotics to fight infections. #CFadvocacy

.Thomas Massie Senator Rand Paul Senator McConnell's Press Office, as your constituent and a #cysticfibrosis advocate, I urge you to oppose cuts to Medicaid, which will threaten patient access to care. #CFAdvocacy