Awareness leads to action. During #WorldFTDWeek, we highlight the need for greater research into FTD disorders. Whether you’re a person diagnosed with an FTD disorder, a caregiver, or a clinician, joining the Registry makes a difference. ftdregistry.org #EndFTD

NINDS and The National Institute on Aging (NIA) issue a notice of special interest for an administrative supplement program to add fluid-based biomarkers and APOE genotyping to NINDS ADRD human subjects research grants: grants.nih.gov/grants/guide/n…

🆕 New resource alert! The Progranulin Information Navigator is now available to help individuals and families affected by #FTD. Learn about research participation, access free genetic testing where eligible, and find education resources and support. 👉🏼l8r.it/gUd3

Join us today at 4pm ET for our Registry 101 Webinar. There is still time to sign up to learn more about the Registry and how to make the most of the new platform. #endFTD us02web.zoom.us/webinar/regist…

Did you know that 3-12% of FTD patients without a known family history have a genetic cause for their condition? 💡 You can learn about free genetic testing and counseling for FTD today at 👉🏽 bit.ly/3A5q8EG #FTD #ProgranulinNavigator #GeneticScreening

Considering genetic counseling? It can help you decide if genetic testing is right for you and your family. AFTD encourages meeting with a genetic counselor to review your family history, address concerns, and choose the best testing strategy. During counseling, you’ll establish

ICYMI: Last month at ISFTD, our team presented promising results from Cohort 1 of our upliFT-D trial, where PBFT02 demonstrated robust and durable increases in CSF progranulin levels for up to one year following treatment. View the poster here: loom.ly/8Iwdvu8

We’re proud to sponsor the 2024 #PennFTDCenter Caregiver Conference today. This important event brings together caregivers, families, and experts to share knowledge and build a stronger community for those affected by #FTD. l8r.it/x0vM #ProgranulinNavigator

📢 Publication alert 👉🩸 Thrilled to share our latest findings from the #DROPAD project on using capillary finger #blood for the detection of #progranulin that can identify mutation carriers in FTD! #Biomarkers #DROPAD alz-journals.onlinelibrary.wiley.com/doi/full/10.10…

Are you or a loved one impacted by GRN-FTD? Finding the right clinical research study can feel overwhelming, but we're here to help 💡 Visit our Clinical Research Study Directory for a comprehensive, searchable list of trials and studies. 🔗 Start Now: progranulinnavigator.org/directory

Important work by @KukarLab dissecting the minimal functional unit(s) of #progranulin.

🚨 Mark your calendars! Join the Year in Review Webinar Series hosted by the #FTD PIA. 🗓️ Jan 21, 2025 | 2:30 PM CT 🎙️ Speaker: David Foxe 💡 Moderator: Arabella Bouzigues 💬Panelists: Maura Malpetti CarmelaTartaglia Don’t miss it! Register now: alz.org/research-webin…

Thank you Linde for bravely sharing your family's story and making such a profound impact in the fight to #endFTD.

Registration is now open for the the Penn Frontotemporal Degeneration (FTD) Center's fifth annual familial conference, Uncovering the Genetics of Familial FTD/ALS. It will be held on Tuesday, February 25, 2025, from 3:00PM-6:00PM EST. Register here: pennmedicine.org/FTDCFamilialCo…

Registration is open for the fifth annual Penn Frontotemporal Degeneration (FTD) Center, Familial Conference: Uncovering the Genetics of FTD/ALS. This virtual conference will take place on Tuesday, February 25, 2025, from 3:00PM-6:00PM EST. Registration link in bio!

The UK DRI's Prof Julie Williams has launched an excellent new podcast alongside her friend and co-host Justine Pickering 👏 'In Two Minds' navigates the complexities of dementia with inspiring guests, and discussions about current research and future

Heading to #AFTD2025? Progranulin Information Navigator will be exhibiting there. Stop by our booth! We’re here to answer your questions about #GeneticTesting, #clinicalresearch opportunities, and #FTDSupport for the #FTDCommunity. 📲Get event info: theaftd.org/education-conf… #FTDSupport #FTD

📣 Attending #APA2025 in LA? Learn how Progranulin Information Navigator supports families + individuals facing #FTD with free genetic counseling, clinical trial info & more.📍Stop by booth #1502 to connect—#psychiatrists play a key role in early, accurate diagnosis. #Neurodegeneration #EndFTD

Online now! Rowan Saloner et al. used large-scale CSF proteomics to uncover molecular signatures in frontotemporal dementia, revealing RNA splicing and synaptic protein candidate markers for genetic and sporadic disease progression. UCSF MAC ALLFTD doi.org/10.1038/s43587…

Today is Clinical Trials Day — a moment to recognize the vital role clinical research plays in advancing treatments and improving lives. We're proud to connect individuals affected by FTD with opportunities to participate in research. Join us: ftdregistry.org #EndFTD