Huge thanks to Leanne Lyons and the team challenging themselves to complete Tough Mudder 2023, raising some funds for Be More Ruby while they’re at it! 💪🎗️ They’d be very grateful for donations to spur them on! justgiving.com/fundraising/le…

We are so, so grateful to the Perth High School YPI winners for choosing us as their charity and working so hard to achieve the win. It means so much, and we know how much it would mean to Ruby, who always wanted to help other children like her. Thank you all 💗 @CCLG_UK

The YPI group from Perth High Drama were absolutely fantastic! Did such a brilliant job, Ruby would have been immensely proud of you all 🦄💗

Beat the ex pro (giant fluffy unicorn) goalie at Inchture village fête yesterday. Ruby’s Daddy being more Ruby 💗🦄 There was blood. There was lots of sweat 😅 we don’t think there were any tears. We hope Ruby is giggling somewhere this Father’s Day. She should be here 💔

Busy party planning with our friends at Racquet Buddies 🤩 Some fantastic prizes to be won from local businesses ☺️ Aiming for a great celebration and lots of funds raised in Ruby’s memory 💗 Get in touch for tickets or to donate👍 Email [email protected] for more info!

July is #SarcomaAwarenessMonth 🎗️💛 7 in 10 children who are diagnosed with #rhabdomyosarcoma will survive – but this is a lot lower than the average survival across all cancers. That’s why #SNFs like Pass The Smile For Ben🎗🌻🐋 & Be More Ruby 🎗🦄💗⭐️🌈 are so important 👇🏻

Our Art in the Park #childhoodcancer art exhibition is on display in the woods near the Coventry Peace Orchard until 24th Sept. It's a lovely space to display the art and stories Video credit: Shawry's Videos and Images #GoGold #CCAM #ChildhoodCancerAwarenessMonth #Covhour

We wish we lived nearer so we could visit this beautiful exhibition. Thank you Pass The Smile For Ben🎗🌻🐋 for organising it and including Ruby’s art once again. It looks lovely. A perfect, peaceful setting for this important #CCAM display. We wish Ruby was here to create more 💛🎗️

LAUNCH OF OUR 25TH ARC IN THE UK - NEIVE'S ARC Welcome Neive's Arc to our ever-growing army of UK Arcs. Neive is currently on palliative care. She has run out of treatment options. This is not good enough. Read her story here. #thearcs #rhabdomyosarcoma alicesarc.org/arc/neive-warw…

Today on Jeremy Vine | Here, on Tiktok, Insta & Facebook Listen from 1:31:35 to hear Ruby’s mummy talk about anticipatory grief. The life of a child forever changed by cancer is a life that creates grief, regardless of the outcome. So much more to say… bbc.co.uk/sounds/play/m0…

Very proud to be involved in this research. Representing our daughter’s wishes to help others like her 🩷🦄

📢CAN YOU HELP? We're developing an online resource about Living-REFoRMS to let families & professionals access info about studies in the review. We’d love you to get involved if you have experience of #rhabdomyosarcoma - fill out the form: forms.gle/oYuozX5CrJ2jei… or email/DM us

Happy birthday Ruby 🩷 You should be 11 today. We should be celebrating with you. Instead we are joining kindred spirits and clever minds to work on a resource to help children like you. We miss you. We love you 🩷💔

We chatted about the use and design of the online resource. All of this information will be used to improve the accessibility and transparency of research into treatments for children with relapsed/refractory #RMS And we even finished the day with some amazing cupcakes!!

International childhood cancer awareness day. Reminding people of the stats and why change is needed. #sophieslegacy #childhoodcancer

Be More Ruby day at Inchture Primary! So grateful to Ruby’s school for continuing to remember and celebrate her life 💗 More photos to come 😍 #teaminchture #bemoreruby

This means so much to us. Huge thanks to Inchture Primary for raising this incredible amount to pay for the installation of a Be More Ruby bench in the school grounds 💗🦄 A lasting legacy for our girl. She would absolutely love it. #teaminchture #bemoreruby

📢 The 1st spin-off project from the baseline review has been published! The Local-REFoRMS paper looking at the use of combined surgery & brachytherapy for children/young people with relapsed/refractory #rhabdomyosarcoma is now available online! 👇 onlinelibrary.wiley.com/doi/10.1002/pb…

Ruby’s mum spoke to Laura Maxwell this morning on Good Morning Scotland. Talking about Ruby, research and rhabdomyosarcoma. You can listen via BBC Sounds from 08:42 - 08:47. New research is key to changing the future for children like Ruby 🩷🦄 bbc.co.uk/sounds/play/m0…

Thank you The Courier for continuing to share Ruby’s story. Research is key to improving outcomes for children with cancer🎗️ #ccam #rhabdomyosarcoma #childhoodcancerresearch