LOVE YOU Rep. Ilhan Omar

thank you for wanting to

THANK YOU

450,000 around world are #DyingWaiting, counting on US to lead the fight vs #ALS #MND FDA #RedTape blocks access to drugs helping "some" regain function #ALSHearings @RepAnnaEshoo Rosa DeLauro CathyMcMorrisRodgers Nancy Pelosi Chuck Schumer Rep. Brett Guthrie President Donald J. Trump Vice President JD Vance

Mom with aggressive ALS hopes to see sons graduate, asks drug company for help on.today.com/3fd0Q9k

odds are...

Congress must hold #ALShearings to demand U.S. FDA FIX ALS before many more die BioSpace #Alsa #endals Wall Street Journal Opinion #NUROWN Dr. Janet Woodcock #DRUGSINBODIES Secretary Xavier Becerra STAT President Donald J. Trump Senator Patty Murray Assistant Secretary for Health Richard Burr Rep. Frank Pallone CathyMcMorrisRodgers @RepAnnaEshoo Brett Guthrie

i have this too

Seriously? You set obstacles in front of people suffering who may not have the equipment or help to submit a written response or video? What the hell kind of help do you actually provide?

The ALS Association We have already been telling them our perspective and also you. You have blocked pals and you are trying to silence us. You are all talk talk talk talk talk talk and no action. You will not silence us no more

Thanks to Congresswoman Sara Jacobs (D-CA) for standing up for #veterans & Californians w #ALS by sponsoring the #ACTforALS. This disease is devastating families & your support is giving them real hope at accessing drugs that can change lives! #HR3537 Military Times @SDUT No More Excuses ALS Watchdogs!

.Etsy: Cancel the fee increase. Work with sellers, not against us! Join the campaign: coworker.org/petitions/canc… via Coworker.org

20 missing seats at the table 20 horrific deaths If your family had a chance to slow ALS progression in "some," would you exercise regulatory flexibility? We do it for oncology, why not #ALS? Dr. Robert M. Califf CDER Director FDA Biologics President Donald J. Trump First Lady Melania Trump Vice President JD Vance Secretary Xavier Becerra @RepAnnaEshoo

RT if you’re ready for Congress to take action to lower the cost of prescription drugs.

empathy is not endorsement... we are all humans who deserve to feel safe.

Great news! NIH has set up the #ACTforALS funding! First application date: June 9th Thank you Mike Quigley Rosa DeLauro Senator Chris Coons Sen. Lisa Murkowski @RepAnnaEshoo for all you did to make this happen! grants.nih.gov/grants/guide/n… Brian Wallach No More Excuses ALS Watchdogs! Lisa's Legacy for ALS axeALSFoundation

its not on you... #pals #als #MND Brenda instagram.com/p/CciIwKNO6SB/…

Legalize marijuana. Expunge past marijuana convictions. End the failed War on Drugs.

I will again extend my genuine invitation to a day at my home. You can watch what it takes to keep me alive If you're careful, I'll let you feed me. I can show you a few tricks on my tobii Just 1 day @califf001 CDER Director I promise you'll make more balanced decisions in ALS

Sandy Morris @califf001 CDER Director Wish every decisionmaker w FDA could spend 24 hrs with @Sandymorris333 & others w #ALS so they could better understand risk-benefit & what a clinically meaningful change is to someone fighting every single day for their life. Dr. Robert M. Califf @CBER CDER Director Dr. Janet Woodcock