The AFTD (@aftdhope) 's Twitter Profile
The AFTD

@aftdhope

AFTD envisions a world with compassionate care, effective support, and a future free of FTD. #EndFTD

ID: 305591010

linkhttps://linktr.ee/theaftd calendar_today26-05-2011 13:44:12

5,5K Tweet

2,2K Followers

989 Following

Cure MAPT FTD (@curemaptftd) 's Twitter Profile Photo

Member Linde Jacobs’ got a successful proclamation for #FTDAwareness week in Wisconsin for National FTD Awareness week September 22-29 The AFTD

Member Linde Jacobs’ got a successful proclamation for #FTDAwareness week in Wisconsin for National FTD Awareness week September 22-29 <a href="/AFTDHope/">The AFTD</a>
The AFTD (@aftdhope) 's Twitter Profile Photo

We are officially less than 16 days away from Food for Thought 2024! 🍩 🍕 🍦 Check out some of our amazing events from the past years! 👇

We are officially less than 16 days away from Food for Thought 2024! 🍩 🍕 🍦 

Check out some of our amazing events from the past years! 👇
The AFTD (@aftdhope) 's Twitter Profile Photo

People with lived FTD experience joined regulators, government and FTD biopharma representatives, academic researchers, dementia-focused nonprofits, and @endftdregistry and AFTD staff to work together to identify potential Biomarkers for FTD Clinical Trials at AFTD's

People with lived FTD experience joined regulators, government and FTD biopharma representatives, academic researchers, dementia-focused nonprofits, and @endftdregistry and AFTD staff to work together to identify potential Biomarkers for FTD Clinical Trials at AFTD's
The AFTD (@aftdhope) 's Twitter Profile Photo

Spencer and Paul may have crossed the finish line, but this journey wouldn’t have been possible without you! To everyone who followed, donated, supported, or rode along – you’ve made this special. Together, we’ve raised over $57,000 and powerful awareness for FTD. Thank you for

The AFTD (@aftdhope) 's Twitter Profile Photo

AFTD spoke with Passage Bio about their approach to developing a treatment for FTD-GRN. 👉 Read the full interview here: bit.ly/47aTRZ3

AFTD spoke with <a href="/Passage_Bio/">Passage Bio</a> about their approach to developing a treatment for FTD-GRN.

👉 Read the full interview here: bit.ly/47aTRZ3
The AFTD (@aftdhope) 's Twitter Profile Photo

Today, we honor all of the grandparents in our FTD community. Please know that all of us at AFTD stand with you and beside you – on this day and every day. ❤️

Today, we honor all of the grandparents in our FTD community. Please know that all of us at AFTD stand with you and beside you – on this day and every day. ❤️
The AFTD (@aftdhope) 's Twitter Profile Photo

Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) are federal benefit programs that can help persons living with FTD access financial relief and medical benefits after a diagnosis. 👉 Click the link to learn more: bit.ly/3z8D4t0

Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) are federal benefit programs that can help persons living with FTD access financial relief and medical benefits after a diagnosis.

👉 Click the link to learn more: bit.ly/3z8D4t0
The AFTD (@aftdhope) 's Twitter Profile Photo

Gear up for World FTD Awareness Week with the Social Media Toolkit! It’s packed with everything you need to spread awareness and support the fight against FTD. 👉 Download the toolkit from our website and start sharing today: bit.ly/472pwvO

Gear up for World FTD Awareness Week with the Social Media Toolkit! It’s packed with everything you need to spread awareness and support the fight against FTD. 

👉 Download the toolkit from our website and start sharing today: bit.ly/472pwvO
The AFTD (@aftdhope) 's Twitter Profile Photo

Why join the AFTD-Team at the Philadelphia Marathon? There are so many reasons why! Whether you’re interested in finding a community, wanting to promote awareness and advocacy, or just have fun, AFTD’s Events Department is here to help. 🔴 Join us today: bit.ly/3X6PkE3

The AFTD (@aftdhope) 's Twitter Profile Photo

AFTD is committed to supporting you on your FTD journey. Check out these upcoming virtual support groups: 1️⃣ College-Age Care Partners (Ages 17-26) Support Group 2️⃣ LGBTQIA+ Caregiver Support Group 3️⃣ Care Partners of People with PSP Experiencing FTD Behaviors 4️⃣ Living Well

AFTD is committed to supporting you on your FTD journey. Check out these upcoming virtual support groups:

1️⃣ College-Age Care Partners (Ages 17-26) Support Group
2️⃣ LGBTQIA+ Caregiver Support Group
3️⃣ Care Partners of People with PSP Experiencing FTD Behaviors
4️⃣ Living Well
The AFTD (@aftdhope) 's Twitter Profile Photo

Join us on September 30th at 1 PM ET for Navigating Behavioral Variant FTD Symptoms, a webinar in our Care Partner Learning Series. Dr. Katya Rascovsky from UPenn will share insights on managing disinhibition, executive dysfunction, and other bvFTD symptoms that can deeply affect

Join us on September 30th at 1 PM ET for Navigating Behavioral Variant FTD Symptoms, a webinar in our Care Partner Learning Series. Dr. Katya Rascovsky from UPenn will share insights on managing disinhibition, executive dysfunction, and other bvFTD symptoms that can deeply affect
The AFTD (@aftdhope) 's Twitter Profile Photo

AFTD’s annual Food for Thought campaign is almost here! 🍕 🍜 🍝 👉 Check out some of our fundraising volunteer events to raise critical funds and spread FTD education and awareness: bit.ly/3ZkWfKQ

AFTD’s annual Food for Thought campaign is almost here! 🍕 🍜 🍝 

👉 Check out some of our fundraising volunteer events to raise critical funds and spread FTD education and awareness: bit.ly/3ZkWfKQ
The AFTD (@aftdhope) 's Twitter Profile Photo

September is Suicide Prevention Month. Deb Jobe, a member of AFTD’s Persons with FTD Advisory Council, courageously shares the story of her suicide attempt following an FTD diagnosis, and how she returned from wanting to end her life to fully embracing it. 👉 Click here to

September is Suicide Prevention Month. 

Deb Jobe, a member of AFTD’s Persons with FTD Advisory Council, courageously shares the story of her suicide attempt following an FTD diagnosis, and how she returned from wanting to end her life to fully embracing it. 

👉 Click here to
The AFTD (@aftdhope) 's Twitter Profile Photo

🌟 Hispanic Heritage Month Spotlight 🌟 Did you know that obtaining a diagnosis for FTD can take an average of 3.6 years? For Hispanic/Latino families, this journey can be even longer. In one of the sessions from AFTD's 2024 Education Conference, specialists from Indiana

🌟 Hispanic Heritage Month Spotlight 🌟

Did you know that obtaining a diagnosis for FTD can take an average of 3.6 years? For Hispanic/Latino families, this journey can be even longer. In one of the sessions from AFTD's 2024 Education Conference, specialists from Indiana
The AFTD (@aftdhope) 's Twitter Profile Photo

One of our awesome AFTD Ambassadors, Deb Scharper, hosted her 8th annual Crusade for a Cure Golf Tournament over Labor Day weekend. Check out the photos from her event and her custom AFTD golf cart. 👉 Ever thought of hosting your own fundraiser? Start your journey today and

One of our awesome AFTD Ambassadors, Deb Scharper, hosted her 8th annual Crusade for a Cure Golf Tournament over Labor Day weekend. Check out the photos from her event and her custom AFTD golf cart.

👉 Ever thought of hosting your own fundraiser? Start your journey today and
The AFTD (@aftdhope) 's Twitter Profile Photo

In an interview with NeurologyLive®, Chris Berka of Adv Brain Monitoring discusses EEG as a diagnostic tool for clinicians to differentiate between #FTD and other dementias, as well as the challenges of diagnosing dementia early in progression. 👉 Click here to learn more:

In an interview with <a href="/neurology_live/">NeurologyLive®</a>, Chris Berka of <a href="/balert/">Adv Brain Monitoring</a> discusses EEG as a diagnostic tool for clinicians to differentiate between #FTD and other dementias, as well as the challenges of diagnosing dementia early in progression.
  
👉 Click here to learn more:
The AFTD (@aftdhope) 's Twitter Profile Photo

We are joining forces with BrightFocus Foundation on September 26 to discuss the latest #FTD research findings and clinical trial options with guest expert Dr. Brad Dickerson of Massachusetts General Hospital. 👉 Click here to register: bit.ly/4eqFxhD