Press release on Pan-European ME Patient Survey results: a shocking indictment of European policies “Failure to act decisively now will perpetuate unnecessary suffering and neglect of people with #MECFS—a clear violation of #HumanRights” EMEA, April 2024 europeanmealliance.org/emea-pan-europ…

Importance of Medical Education, Kindness, Compassion and Belief When Learning about Patients with ME/CFS “#MECFS is definitely not rare, but inexplicably and infuriatingly unacknowledged” Journal of the Royal College of Physicians of Edinburgh 2024 doi.org/10.1177/147827…

>> an upcoming meeting with social & disability services would necessitate meticulous planning > I need to map out an approach to have them change their stance Stakes: high. Failure: to be expected. Does anyone have practical advice to share on self-advocacy for #pwME / #pwLC?

With a dearth of expert knowledge, and an overabundance of widespread medical misunderstanding has come a mass gaslighting of those suffering with ME/CFS as head cases whose own troubled minds have manifested their physical symptoms into reality. medium.com/@socialcreatur…